New Books in Disability Studies New Books Network

Emily Pacheco speaks with writer and researcher Jessica Kirkness about her memoir, The House with All the Lights on: Three Generations, One Roof, a Language of Light (Allen & Unwin, 2023). Jessica has published in Meanjin and The Conversation, as well as other outlets. Her PhD focused on the ‘hearing line’: the invisible boundary between Deaf and hearing cultures. She is also a teacher of nonfiction writing at Macquarie University in Sydney, Australia.
The House With All The Lights On explores linguistic and cultural dynamics within Deaf-hearing families. Jessica shares her experience having Deaf grandparents and navigating the cultural borderline between Deaf and hearing cultures. It is a wonderful memoir about family, the complexities of identity, and linguistic diversity.
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In Disability Worlds (Duke UP, 2024), Faye Ginsburg and Rayna Rapp chronicle and theorize two decades of immersion in New York City’s wide-ranging disability worlds as parents, activists, anthropologists, and disability studies scholars. They situate their disabled children’s lives among the experiences of advocates, families, experts, activists, and artists in larger struggles for recognition and rights. Disability consciousness, they show, emerges in everyday politics, practices, and frictions. Chapters consider dilemmas of genetic testing and neuroscientific research, reimagining kinship and community, the challenges of “special education,” and the perils of transitioning from high school. They also highlight the vitality of neurodiversity activism, disability arts, politics, and public culture. 
Disability Worlds reflects the authors’ anthropological commitments to recognizing the significance of this fundamental form of human difference. Ginsburg and Rapp’s conversations with diverse New Yorkers reveal the bureaucratic constraints and paradoxes established in response to the disability rights movement, as well as the remarkable creativity of disabled people and their allies who are opening pathways into both disability justice and disability futures.
A transcript of this discussion is available here.
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During the COVID pandemic, billions of dollars in relief aid was sent out to help us ride out the storm, although many people who struggled through it might scratch their heads at such a number, having seen little of it make any concrete impact in their own lives. This discrepancy is indicative of the underlying problem with the contemporary care economy, a series of federal and state programs, healthcare facilities and NGO’s, all trying to bend the needs of those under their care to the mechanisms and incentives laid out by capitalism. The result is a massive apparatus that regularly fails to fulfill its supposed intentions, leaving workers and those in need of help in precarious and often dangerous situations. 
This apparatus is untangled and explained in clear detail by Premilla Nadasen in her book Care: The Highest Stage of Capitalism (Haymarket Books, 2023). Informed by both her work as a historian and as a political activist, she manages to untangle and explain why the massive apparatus regularly fails to fulfill its purpose. She also outlines offramps, forms of resistance that workers and activists have taken to develop alternative anticapitalist forms of care that might someday allow us to truly flourish together.
Premilla Nadasen is a professor of history at Barnard College, Columbia University. She is the co-director of the Barnard Center for Research on Women. She is also the author of Welfare Warriors: The Welfare Rights Movement in the United States and Household Workers Unite: The Untold Story of African American Women Who Built a Movement.
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What does an inclusive society look like? And what are the challenges and opportunities when the society in question, Timor-Leste, is one of the most resource-constrained in Southeast Asia? My guest today is interested in these questions of inclusion and participation, and argues that people with a disability are a key component of a truly inclusive society – and that employment can be a key policy lever for inclusion. With Timor-Leste recently ratifying the United Nations Convention on the Rights of Persons with Disabilities (UNCRPD), now is the time, she says, for building an evidence base for employment as a foundational right that has transformational potential not only for people with disability but for the broader community.
Dr Kim Bulkeley from the Faculty of Medicine and Health joins Dr Natali Pearson to share the work she is doing ion disability and work in Timor-Leste. Dr Kim Bulkeley is a Co-head of the WHO Collaborating Centre for strengthening rehabilitation capacity in health systems, senior lecturer in the Sydney School of Health Sciences and a stream leader in the Centre for Disability Research and Policy.
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A powerful analysis and call to action that reveals disability as one of the defining features of environmental devastation and resistance.
Deep below the ground in Tucson, Arizona, lies an aquifer forever altered by the detritus of a postwar Superfund site. Disabled Ecologies: Lessons from a Wounded Desert (U California Press, 2024) tells the story of this contamination and its ripple effects through the largely Mexican American community living above. Drawing on her own complex relationship to this long-ago injured landscape, Sunaura Taylor takes us with her to follow the site's disabled ecology—the networks of disability, both human and wild, that are created when ecosystems are corrupted and profoundly altered.
What Taylor finds is a story of entanglements that reach far beyond the Sonoran Desert. These stories tell of debilitating and sometimes life-ending injuries, but they also map out alternative modes of connection, solidarity, and resistance—an environmentalism of the injured. An original and deeply personal reflection on what disability means in an era of increasing multispecies disablement, Disabled Ecologies is a powerful call to reflect on the kinds of care, treatment, and assistance this age of disability requires.
A full transcript of the interview is available for accessibility.
Sunaura Taylor is an Assistant Professor in the Division of Society and Environment at the University of California, Berkeley. Taylor is a scholar and artist who works at the intersection of disability studies, environmental humanities, animal studies, environmental justice, feminist science studies, and art practice.
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In Crip Colony: Mestizaje, US Imperialism, and the Queer Politics of Disability in the Philippines (Duke UP, 2023), Sony Coráñez Bolton examines the racial politics of disability, mestizaje, and sexuality in the Philippines. Drawing on literature, poetry, colonial records, political essays, travel narratives, and visual culture, Coráñez Bolton traces how disability politics colluded with notions of Philippine mestizaje. He demonstrates that Filipino mestizo writers in the late nineteenth and early twentieth centuries used mestizaje as a racial ideology of ability that marked Indigenous inhabitants of the Philippines as lacking in civilization and in need of uplift and rehabilitation. Heteronormative, able-bodied, and able-minded mixed-race Filipinos offered a model and path for assimilation into the US empire. In this way, mestizaje allowed for supposedly superior mixed-race subjects to govern the archipelago in collusion with American imperialism. By bringing disability studies together with studies of colonialism and queer-of-color critique, Coráñez Bolton extends theorizations of mestizaje beyond the United States and Latin America while considering how Filipinx and Filipinx American thought fundamentally enhances understandings of the colonial body and the racial histories of disability.
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