Invisible Not Broken - Chronic Illness Podcast Network Hosts: Monica and Eva

Monica Michelle is joined by consultant and podcast host Tim Reitma.
Tim lives with Crohn's Disease.
In this episode, Monica and Tim discuss: 
Tim’s resiliency through managing his Crohn’sThe importance of self-advocacy, especially in the workplace Tim’s podcast why he shares stories of those with invisible illness 

TIMESTAMPS00:47 - Tim's diagnosis 
06:31 - How and why Tim applies self advocacy
15:41 - Why Tim started his podcast
22:42 - Invisible condition etiquette
31:00 - What HR can do better for employees with invisible illness
39:31 - Tools Tim uses to care for his Crohn’s outside the home
The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com

Hosted on Acast. See acast.com/privacy for more information.

Monica Michelle is joined by artist and disability advocate Sunny Ammerman
Sunny lives with Septo-optic dysplasia, panhypopituitarism, Optic Nerve Hypoplasia, and is missing a membrane in the brain called the "septum pellucidum".
In this episode, Monica and Sunny discuss: 
Sunny’s complex disorders and how she copes with themEverything VR provides from accessible gaming, social platforms and the potential for better online education.Various VR/AR games and their gameplay Sunny’s VR support group

TIMESTAMPS00:45 - What VR/AR offers for chronically ill and disabled folks
11:57 - Sunny’s conditions and how she copes with them
17:55 - Features that make VR games accessible or inaccessible as well as different games and their play experiences
37:13 - The social aspects of virtual gaming
51:32 - What opportunities VR has for the future
1:04:49 - Sunny’s VR support group 
The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com

Hosted on Acast. See acast.com/privacy for more information.

Monica Michelle is joined by Journalist Julia Metraux.
Julia lives with vasculitis, mild to moderate hearing loss, and has experienced long COVID.
In this episode, Monica and Julia discuss: 
Julia's diagnosis with vasculitis and how it influences her journalistic lensHow community impacts the mental health of those with chronic illnessHow Julia and Monica find positives and negatives in the internet spaces for chronically ill and disabled folksThe politics of how government, businesses, and celebrities influence the chronic illness community 

TIMESTAMPS00:32 - Julia's diagnostic journey
07:02 - Julia’s work reporting on the online community of chronic illness 
16:32 - The effect of Internet communities on chronically ill and disabled folks
26:46 - How Julia’s illness impacts her work, both in what she writes about and how she manages her lifestyle
The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com

Hosted on Acast. See acast.com/privacy for more information.

Monica Michelle is joined by author & physiotherapist Kevin Hunt.
Kevin lives with chronic pain.
In this episode, Monica and Kevin discuss: 
Kevin’s philosophy of pain management as a physiotherapist who experiences chronic pain. The Hexagon Model, a life-management tool for focusing on what’s important to you.Kevin’s idea behind his new book.Using pain as a guide.

TIMESTAMPS00:34 - Kevin’s work as a physiotherapist specializing in the experience of pain 
06:44 - The Hexagon Model for managing your life’s needs
14:00 - Putting aside the idea of a “quick fix”
19:45 - Kevin’s personal experience with pain and how he uses it with patients
28:44 - Kevin’s book, “Pain: The Ultimate Mentor”
The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com

Hosted on Acast. See acast.com/privacy for more information.

Monica Michelle is joined by author & personal trainer John K. Frazier.
John lives with ankylosing spondylitis.
In this episode, Monica and John discuss: 
John’s work as a physical trainer and authorChronic pain comparisonsPersonal triumph
TIMESTAMPS00:50 - John’s business & diagnosis
07:19 - Chronic pain olympics
09:31 - Talking about & hiding a diagnosis
15:09 - Personal triumph
18:24 - Staying in the present
23:29 - The superman complex
The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com

Hosted on Acast. See acast.com/privacy for more information.

Monica Michelle is joined by musician Laura Mustard.
Laura lives with VATER syndrome.
In this episode, Monica and Laura discuss: 
Laura’s inspiration for her upcoming musical EP.How Laura’s illness impacted her recent relationship & self-image.Laura’s creative process, new music, and social media pressure.
TIMESTAMPS00:30 - Laura’s new EP / Monica’s recent COVID experience
05:32 - Relationships with chronic illness
11:20 - Image and self acceptance with disability
15:32 - Laura’s creative process and current projects
20:05 - Pursuing creativity despite social media attention
The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com

Hosted on Acast. See acast.com/privacy for more information.