Lupus Ontario Podcast Lupus Ontario

For Lupus Awareness Month this May we are featuring two stories from lupus warriors: Heidi Nielsen and Sunita Mandi.



Heidi shared her story during our Lupus Ontario Gala speaking about how important it is to be your own advocate, while outlining her various symptoms and treatments. “We must find what works best for our bodies.”



To view the video referencing Heidi’s story: https://www.youtube.com/watch?v=uIj8rFBgEZA



Sunita spoke about her journey, focusing on the challenges of the past two years. Advocating for herself, trusting her rheumatologist, exploring new treatments, and leaning on her support team has brought her to a healthier place in her lupus journey.



Join us for these fascinating stories.

If you are looking for a support group to join, visit www.lupusontario.org/support/.

For more information about lupus, visit www.lupusontario.org.


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Hello everyone, coming up on the Lupus Ontario podcast, we
talk about Social Prescribing! What it is, all the aspects of support for an individual that it entails, how social prescribing is delivered and go through examples of how social prescribing can benefit you in your health journey.


We also speak about how Social Prescribing can benefit the entire health system including hospitals and primary care.

  

We also mention the Alliance for Healthier Communities. If
you would like to find out more about the Alliance or Social prescribing, you can visit https://www.allianceon.org/ or simply search for Alliance For Healthier Communities online.



Hopefully as you listen to this episode you gain some
practical takeaways on how you can use the principles of social prescribing in your everyday life, as well as ways to get involved in your community to help encourage others to make connections and support them in their health journey.



Question? media@lupusontario.org

www.lupusontario.org


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Our conversation today is on the Transition of Care - from Pediatrics to Adult Care. We are pleased to be joined by Dr. Stephanie Wong and Nameerah Hasan for today’s conversation.

Dr. Wong is the 2022-2023 Lupus Ontario Geoff Carr Fellow. Having completed her MD at the University of BC, Dr. Wong is expanding her clinical experience at SickKids Hospital in Toronto and also attending the transition clinics at Mount Sinai and Toronto Western. 

Nameerah Hasan is a lupus warrior. Contracting double pneumonia and experiencing a month-long hospital stay at the age of 12, Nameerah began exhibiting other hallmarks of lupus such as fevers, muscle and joint aches, migraines and blood clots. She was treated by the incredible team at SickKids Hospital and eventually diagnosed with SLE and Antiphospholipid Syndrome.

Enjoy the conversation!






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In this episode we speak with Dr. Zahi Touma, Director of the Lupus Program at UHN in Toronto, Ontario about organ damage caused by lupus, but also damaged potentially caused by treatments for the disease.



Please send us your lupus questions: media@lupusontario.org



Note: this podcast is not intended to convey health information specific to a person's health journey and is intended for educational purposes only. For concerns about your specific health journey, always contact your physicians and/or medical team.


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Today on the podcast we have a very special guest – Mary McNeil joins us to speak about Sjogren’s disease (www.sjogrenscanada.org).

Sjögren’s is a chronic, systemic, inflammatory autoimmune disease that usually attacks and damages salivary, tear and mucous secreting glands. This results in dry mouth which can impact the ability to communicate verbally, dry eyes, or even internal organ damage, arthritis, painful weak muscles, neuropathy, and debilitating fatigue.

Lupus patients often have associated illnesses, Sjogren’s is among the most common experienced by those with systemic lupus with some estimates indicating up to 19% of those with SLE also develop Sjogren’s disease.

Like lupus, Sjogren’s is difficult to diagnose and 90% of those diagnosed are women.

Mary McNeil is the Vice Preside of the Sjogren’s Society of Canada and also lives with Sjogren’s disease.



Be sure to checkout the 2022 Walk For Lupus event page: 

https://www.lupusontario.org/walk/



Register for our virtual symposium and tune in from anywhere in the world!

https://pheedloop.com/register/EVEDNDOVRDCBM/attendee/?


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For today’s podcast we have a special guest with us sharing her lupus story. Rupee discusses her diagnosis at a young age with lupus, the complications that arose and the importance of having a support network. We talk about how she satisfied her natural curiosity to learn about lupus and how her journey helped shape where she is at today.

Visit our website (www.lupusontario.org) or our social media to register on May 19th, 2022 for the virtual Lupus Symposium taking place on October 22nd, 2022. The symposium will bring together leaders in medicine, research, health-tech and even policy to further support the community we care so deeply about.

Register for the 2022 Symposium!

https://pheedloop.com/EVEDNDOVRDCBM/site/home/

Let us know what you want to see in a Lupus Symposium! Email is at media@lupusontario.org.




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