014 - Quadruple Feeding a Newborn with Down Syndrome More Milk, Please! - A Baby-Feeding Stories Podcast

Many of us have heard of triple feeding, but have you ever heard of quadruple feeding?

Quadruple feeding is doing four things to try to feed your baby every day, and it's exhausting!

Danielle Kawlewski's baby was born with Down syndrome and a heart defect.

In today's episode, she shares the struggles of feeding, losing the sucking reflex, and then going straight from tube feeding to thickened breastmilk through a straw by eight months old… along with trying everything else under the sun in between.

Connect with Danielle online:

* IG-  Danielles_scrunchy_kids
* FB- Danielle Kawlewski

She Also Shares:

* 2:45 - Living in Wisconsin on 50 acres 
* 4mins - Had Daughter in Aug 2021. Born with Down syndrome
* 6:30 - Started to try to collect colostrum at 37 weeks
* 7:30 - Birth Story - Started as a home birth with a pool and a midwife
* 9:15 - Found out her baby was in breach position
* 9:45 - Decide to go to hospital
* 11:15 - At the hospital, ended up having a C-section (because the baby was breach)
* 12:15 - Baby went to Nicu at a DIFFERENT HOSPITAL for 30 days because of low oxygen, and her Down syndrome caused two holes in her heart. But, they stayed so long mainly because of feeding issues.
* 15 mins - learn she was transferred to Madison Wisconsin hospital 90mins away because that's where they have all the Nicu resources for babies with Down syndrome
* 18:45 - Stayed at the Ronald MacDonald house around the corner. Baby got Donor milk for first 24hrs
* 19:20 -Able to use the colostrum she'd expressed before giving birth during the first 24hrs
* 20:40 - Explain all about a Ronald MacDonald House
* 23:30 - lactation cookies recipe
* 26:45 - Quadruple Feedings
* 27:20 - Sucking Reflex went away due to downs and the two holes in her heart
* 32:00 - Having a g-tube placed so they could go home from the Nicu
* 33:30 - How to thicken breastmilk
* 35:30 - Lactation consultants are the best
* 37mins - The Power of the Manual Pump
* 40:30 - Pumpin' Pals Silicone Flanges worked well for her
* 42 mins - What happened when daughter lost suction ability
* 44 mins - Getting heart surgery
* 48:30 mins - Bottle to a straw cup at eight months old
* 49:30 - Resource Share: Honey bear cups
* 51 mins - Started foods at five months
* 53:30 - pumped for 11 months
* 55:30 - The unexpected joy of it all
* 57:30 - Journaling
* 59 - Dealing with all the emotions after birth
* 60mins - EMDR Therapy (Eye Movement Desensitization and Reprocessing)
* 61:45 - Started an at-home daycare after her baby had heart surgery 65 mins - weaned off the breast pump with cabbage leaves
* 66 mins - Finding your voice after having a kid
* 69 mins - Scrunchy Kids
* 73 mins - Rapid Fire Question Round
* 74mins - Resource: Jill Rabin Book: Your baby can self-feed too.
* 78 mins - Resource: Breastfeeding and Down syndrome
* 79:45 - Resource: Badass Breastfeeder - Pumping Hacks episode is great