4D: Deep Dive into Degenerative Diseases - ANPT Academy of Neurologic Physical Therapy

In this episode, Chris Burke interviews Kayla Chomko who, along with Jen Canbeck, Lauren Tabor Gray, and Rania Massad, won the DDSIG Best Poster Award at APTA’s Combined Sections Meeting in February 2024.  Chris and Kayla discuss her team’s poster, “The Tinetti Performance Oriented Mobility Assessment Discriminates between Fallers and Non-Fallers in pALS: A Retrospective Study”. They delve into the impetus for and findings from their research, how Kayla utilizes data from outcome measures to facilitate patient discussions in clinic, and what direction future research may take.  







The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy – www.neuroPT.org 







Are you a PT who works with this population? Participate in a national survey on outcome measures for Physical Therapists and Physical Therapist Assistants working with pALS (Link active as of April 2024): https://redcap.nova.edu/redcap/surveys/?s=JKYLEC3KC9RFK7WF 

In this episode of 4D, hosts Parm Padgett and 4D student intern Shannon Brown talk through the degenerative disease programming scheduled for CSM 2024. If you’re going to CSM this February, tune in while you travel, or even while you commute from your hotel in the morning to get some inspiration for what to see each day. We at 4D hope to see you there!  







The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy –www.neuroPT.org  







  







Learn more about CSM and the programming discussed by visiting the CSM website: https://www.apta.org/csm   







This is for informational and educational purposes only. It should not be used as a substitute for clinical decision making. The Academy of Neurologic Physical Therapy and its collaborators disclaim any liability to any party for any loss or damage by errors or omissions in this publication. The views or opinions expressed are those of the individual creators and do not necessarily represent the position of the Academy of Neurologic Physical Therapy

In this installment of our series on rare neurologic diseases, Christina Burke talks with Jeannie Stephenson and Staci Shearin about Friedreich’s Ataxia, a progressive, autosomal recessive hereditary multi-system neurodegenerative disease that impacts approximately 1 in 40,000 people in the U.S. Jeannie and Staci cover assessment, PT treatment and prognosis for people with this unique diagnosis that causes significant balance and gait challenges.  







The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy – www.neuroPT.org







Show notes available here :







https://www.neuropt.org/docs/default-source/degenerative-diseases-sig/4d-podcast-show-notes---2019/ddsig-podcast-show-notes-2023/show-notes---episode-47-jeannie-stephenson-staci-shearin.pdf

In this installment of our series on rare neurologic diseases, Ken Vinacco talks with Carolyn DaSilva about post-polio syndrome (PPS), which can occur in polio survivors 15-20 years after the initial poliomyelitis infection. The constellation of symptoms include new or worsening weakness, pain, and fatigue. Ken and Carolyn also discuss bracing and exercise recommendations in this population.  Listen in to learn more about this unique population!







The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy – www.neuroPT.org







Show notes available here:







https://www.neuropt.org/docs/default-source/degenerative-diseases-sig/4d-podcast-show-notes---2019/ddsig-podcast-show-notes-2023/show-notes---episode-46-carolyn-dasilva.pdf

In this second installment of our series on rare neurologic diseases, host Katy McGraw talks with Heather Cianci about Progressive Supranuclear Palsy (PSP), a neurologic disease that can mimic some features of Parkinson Disease (PD) like loss of balance and a tendency to fall backwards, but that also has unique features such as the loss of vertical gaze, and behavioral changes. Heather discusses clinical signs to look for to treat and/or refer out for. She also talks extensively about treating PSP clinically throughout the disease course, palliative care for patients with advanced PSP, working within interdisciplinary teams to support patients with PSP, and so much more.  







Enjoying our new series on rare neurologic diseases? We want to hear from you! Give us feedback, share ideas for future podcasts, and connect us to expert clinicians treating patients with those diseases. Email us at: neuroddsig@gmail.com 







The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy – www.neuroPT.org 







Show notes available: https://app.box.com/s/59dhwr9i0p29p4hrkxjnvbdyxl8kh94m

In this first installment of our series on rare neurologic diseases, host Jeff Schmidt talks with Kyle Reedy about Spinal Muscular Atrophy (SMA). Kyle discusses the etiology and clinical presentation of this disease, as well as best practices for treating patients living with this rare neuromuscular disease, in light of medical advances that have improved patient prognosis. From using SMA-specific outcome measures to advocate for patients to insurance companies, to designing comprehensive and tailored interventions to optimize function and mobility long term, Kyle delves into the research and interdisciplinary best practices for management of patients with SMA.The Degenerative Diseases Special Interest Group is part of the Academy ofNeurologic Physical Therapy – www.neuroPT.org







Show notes:







https://www.neuropt.org/docs/default-source/degenerative-diseases-sig/4d-podcast-show-notes---2019/ddsig-podcast-show-notes-2023/show-notes---episode-44-kyle-reedy_gdoc.pdf