The Lucky Few

The Lucky Few Podcast
The Lucky Few

Hey friends! Welcome to the Lucky Few Podcast where we are shifting the narrative by shouting the worth of people with Down syndrome. With your hosts, Heather Avis, Micha Boyett, and Mercedes Lara. Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

  1. HÁ 3 DIAS

    284. Why Does Inclusion for People with Down Syndrome Have to be a Distant Dream?

    We’ve talked about impactful PSAs that the Down syndrome community has put out over the years. Today we’re talking about the most recent PSA from our friends over at the National Down Syndrome Society, if you haven’t seen it already follow the link in our show notes and go watch their powerful, important, and impactful message and listen to some behind-the-scenes interviews on this weeks episode! We’re chatting with the president of NDSS Kandi Pickard, an amazing couple Jeremy and Audrey featured in the wedding scene, and Jamie Weitzman whose kiddos Hannah and Jedidiah were featured in the crowd at the wedding! We’re talking about every little detail, why it matters, and what we can do to help create this world that we all dream of for people with Down syndrome and that people with Down syndrome and disabilities deserve. This is an episode you don’t want to miss!  - - - - - - SHOW NOTES Watch the new NDSS PSA Town 21 NDSS 2018 PSA Bridging the Gap Watch the NDSS 40th Anniversary PSA  Check out Jeremy & Audrey’s Non-Profit Down Syndrome Rocks Our episode with Kandi Pickard celebrating their 45th anniversary: 262. 45 Years of Advocacy: A Conversation w/ NDSS President Kandi Pickard Our episode with Alex Bolden (who is in the closing scene): 277. Can A Person With Down Syndrome Vote? (w/Alex Bolden & Genevieve Thompson) Our episode with Matthew & Lucia: 244. Love, Advocacy, & A Viral Proposal (w/Matthew Schwab & Lucia Romano) Our episode with Craig & Heather:  231. Love, Marriage, & Eqaulity w/ Craig & Heather (w/Moms Lisa & Pat) JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today!  DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! THANK YOU TO OUR SPONSORS: Thank you, Enable SNP for sponsoring this episode! 47. Planning for the Future w/Phillip Clark from Enable SNP 191. Future Planning for the WHOLE Family - ft. Phillip Clark, Enable SNP Thank you, ABLEnow for sponsoring this episode! 115. How The ABLE Act Supports Your Child's Future (ft. Catherine Beck) LET’S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes. --- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

    1h17min
  2. 12 DE NOV.

    283. Navigating Tube Feeding With Down Syndrome (w/Dr. Lauren Fiechtner)

    Nutrition is key to a child's development, but for some children with Down syndrome, feeding challenges make it difficult to get the nutrition they need. That’s where tube feeding comes in. Today, we’re chatting with Dr. Lauren Fiechtner, Director of Nutrition at Mass General for Children, to talk about the different types of feeding tubes, why they are sometimes necessary, and the unique feeding challenges that children with Down syndrome may face. We’re chatting about when tube feeding is typically used, the emotional and physical challenges parents may experience, and how feeding therapies and supportive resources can make a difference. We hope Dr. Fiechtner’s compassionate advice helps families feel empowered and reassured as they navigate tube feeding and nutrition. - - - - - SHOW NOTES Learn more about Feeding Matters Learn more about The Oley Foundation JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today!  DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! THANK YOU TO OUR SPONSORS: Thank you, National Down Syndrome Society for sponsoring this episode! Check out episode 174 on The Down Syndrome Learning Profile Check out episode 181 with NDSS team member Dana Sciullo and her brother Anthony! Check out episode 262 with NDSS President Kandi Pickard celebrating their 45 years of advocacy! Thank you, Enable SNP for sponsoring this episode! 47. Planning for the Future w/Phillip Clark from Enable SNP 191. Future Planning for the WHOLE Family - ft. Phillip Clark, Enable SNP LET’S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes. --- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

    37min
  3. 5 DE NOV.

    282. Adoption, Purpose, and the Founding of RODS Heroes (w/Brady Murray)

    Happy first week of November AND National Adoption Month! Today we’re thrilled to welcome Brady Murray, the passionate founder of RODS Heroes. Brady’s nonprofit has helped hundreds of children with Down syndrome find loving homes around the world. As a father of eleven—including two children with Down syndrome—Brady shares his personal journey with adoption, from being adopted himself to adopting seven of his children from around the globe. Hear the inspiring story behind how a triathlon became the seed for RODS Heroes, the miracles he’s witnessed along the way, and why he believes that when we invest in causes greater than ourselves, we experience incredible transformation. This is an episode you don’t want to miss! - - - SHOW NOTES Learn more about RODS Heroes Follow RODS Heroes on Instagram and Facebook Follow Brad Murray on Instagram Follow Cooper Murray on Instagram NBC Nightly News story of Cooper Murray throwing out MLB first pitches JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today!  DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! THANK YOU TO OUR SPONSORS: Thank you, National Down Syndrome Society for sponsoring this episode! 174. Learning About the Down Syndrome Learning Profile! (ft. Jessica Kuss from the National DS Society) 181. How has your sibling changed your life? (ft. Dana & Anthony Sciullo from the NDSS team) 262. 45 Years of Advocacy: A Conversation w/ NDSS President Kandi Pickard Thank you, ABLEnow for sponsoring this episode! 115. How The ABLE Act Supports Your Child's Future (ft. Catherine Beck) LET’S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes. --- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

    53min
  4. 29 DE OUT.

    281. Can A Person With Down Syndrome Shift Narratives? (w/ Hilary Gauld & Kate Herron)

    This month we’ve celebrated Down Syndrome Awareness Month with episodes based on popular Google search topics! Today we’re joined by award-winning photographer Hilary Gauld and advocate Kate Herron for this episode all about answering the question: Can a person with Down syndrome Shift Narratives? In 2014, Hilary and Kate collaborated on a fundraising calendar featuring Kate's 10-month-old son, Caleb, for the Waterloo Wellington Down Syndrome Society (WWDSS). What began as a local project quickly grew into a decade-long advocacy journey, evolving into an internationally recognized series that challenges stereotypes and represents the Down syndrome community in meaningful, thought-provoking ways. Hilary’s sharing how her friend Kate’s invitation sparked her dedication to authentically representing the Down syndrome community, the impact her work has had on families seeing themselves and their loved ones reflected in media, and the powerful role of storytelling in breaking down barriers. We’re also chatting about their documentary Decade, which celebrates the ten years of this incredible project, the impact the last ten years have had on their advocacy, what they hope for the future, and so much more! Friends, this is an episode you don’t want to miss! - - - SHOW NOTES Follow One For The Wall on Instagram and Facebook Follow Waterloo Wellington Down Syndrome Society on Instagram Learn more about Decade documentary Check out the ‘Here I Am’ series  People Magazine article about the series ‘Believe in Me’ Check out all the incredible series from One For The Wall  JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today!  DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! THANK YOU TO OUR SPONSORS: Thank you, National Down Syndrome Society for sponsoring this episode! 174. Learning About the Down Syndrome Learning Profile! (ft. Jessica Kuss from the National DS Society) 181. How has your sibling changed your life? (ft. Dana & Anthony Sciullo from the NDSS team) 262. 45 Years of Advocacy: A Conversation w/ NDSS President Kandi Pickard Thank you, Enable SNP for sponsoring this episode! 47. Planning for the Future w/Phillip Clark from Enable SNP 191. Future Planning for the WHOLE Family - ft. Phillip Clark, Enable SNP LET’S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes. --- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

    56min
  5. 22 DE OUT.

    280. Can A Person With Down Syndrome Find Community & Belonging?

    This month we’re celebrating Down Syndrome Awareness Month with episodes based on popular Google search topics! On today’s episode, we’re answering the question: Can a person with Down syndrome find community & belonging? Today’s conversation is sparked by a recent blog post of Heather’s on why her daughter Macy didn’t attend homecoming this year, we’re chatting about what it truly means for someone with Down syndrome to feel a sense of belonging in school and their wider community. What can we all do to ensure inclusion happens? How can we help build bridges where isolation exists? From clubs and activities to real friendships, we’re chatting about inclusion, community, and what happens when we work together to make existing opportunities even better. Do we have all the answers…never! But we have hope having these tough conversations helps build and maintain those bridges toward community and belonging. - - - - SHOW NOTES Read Heather’s blog post Why My Daughter with Down Syndrome Won't be Going to Her Homecoming Dance Learn more about Best Buddies Listen to our episode with Val Schleider: 43. Back to School & All Things Best Buddies w/Val Schlieder & Allison Covell JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today!  DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! THANK YOU TO OUR SPONSOR: Thank you, ABLEnow for sponsoring this episode! 115. How The ABLE Act Supports Your Child's Future (ft. Catherine Beck) LET’S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes. --- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

    59min
  6. 15 DE OUT.

    279. Can A Person With Down Syndrome Live Independently? (w/Emily Kendall & Chad Mayer)

    This month we’re celebrating Down Syndrome Awareness Month with episodes based on popular Google search topics! Today we’re joined by Emily Kendall & Chad Mayer from EmpowerMe Living for this episode all about answering the question: Can a person with Down syndrome live independently? Today, we’re talking about the incredible work of EmpowerMe Living, a program designed to support individuals with disabilities in choosing the best living arrangement for their unique needs. We're with EmpowerMe Living founder, Emily and Chad, who lives independently through the program, as they share their insights on independent versus supported living, overcoming challenges, and how EmpowerMe Living helps families navigate these important decisions. This is an episode you don’t want to miss! - - - - SHOW NOTES Check out EmpowerMe Living’s website to learn more about our: Incredible team  Microhome concept  First property in Cincinnati  Our Cincinnati Housing Market Analysis    First Place Global Leadership Institute –Check out their groundbreaking research on housing, including “A Place in the World” and their housing market analyses. Organizations can partner with First Place to conduct a housing market analysis in their community to collect and analyze data about housing needs and preferences directly from adults with I/DD and their families which can then be used to drive effective solutions.   Learn more about Beyond Down Syndrome – a wonderful resource for people with Down syndrome and their families focused on independence  Blog Emily wrote for this summer about trusting intuition advocating for her son with Down syndrome   Emily wanted us to share her son, Luke Kendall on the news! It has been awesome for Luke’s confidence and skill building, foundations for independence!  Learn more about Timothy M Freeman Center, MD, Center for Developmental Disabilities provides adults with I/DD interdisciplinary, patient-centered healthcare. It is one of the few centers in the country pioneering this approach within an academic healthcare system.  Learn more about Enable Special Needs Planning to create a plan that enables your child with disabilities to live a great life JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today!  DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! THANK YOU TO OUR SPONSORS: Thank you, National Down Syndrome Society for sponsoring this episode! Learn more about the Adult Summit in Orange County and reserve your spot today! Thank you, Enable SNP for sponsoring this episode! 47. Planning for the Future w/Phillip Clark from Enable SNP 191. Future Planning for the WHOLE Family - ft. Phillip Clark, Enable SNP LET’S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes. --- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

    1h1min
  7. 8 DE OUT.

    278. Can A Person With Down Syndrome Travel The World? (w/ Erik & Emily Orton)

    This month we’re celebrating Down Syndrome Awareness Month with episodes based on popular Google search topics! Today we’re joined by Erik & Emily Orton for this episode all about answering the question: Can a person with Down syndrome travel the world?  They’re sharing their incredible story of sailing the Caribbean, with their family of seven and how their daughter Lily, who has Down syndrome, has inspired them to break boundaries, live without limits, and travel the globe! We’re chatting about caregiver fatigue, challenging conventional ideas of therapies, parenting our kids with and without Down syndrome, and so much more. This is an episode you don’t want to miss! - - - SHOW NOTES Follow Erik & Emily on Instagram Get your copy of Erik and Emily’s book Seven At Sea  Check out Erik & Emily’s Podcast and listen to their episode with Lily! Check out Erik & Emily’s YouTube channel Learn more about how to sail with Erik & Emily for a week! JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today!  DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! THANK YOU TO OUR SPONSOR: Thank you, ABLEnow for sponsoring this episode! 115. How The ABLE Act Supports Your Child's Future (ft. Catherine Beck) LET’S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes. --- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

    1h4min
  8. 3 DE OUT.

    BONUS: Why Is The Use Of Terms Like "Mentally Disabled" As An Insult So Harmful?

    Friends, we’re coming to you with a BONUS episode this week. Over the years we’ve worked hard to provide you with topics that are helpful resources, to be sources of encouragement, and never shy away from difficult conversations. Today, we’re coming to you with a difficult, yet important conversation. This one is taken directly from comments by one of the Presidential candidates. We want to be clear we’re not endorsing either candidate but as a platform that promises to shout worth and work to shift narratives for people with Down syndrome each week, we feel this is an important conversation we need to have with all of you. We hope you’ll join us in this unfiltered and honest conversation. - - - SHOW NOTES No Pity: People With Disabilities Forging A New Civil Rights Movement by Joseph R. Shapiro Listen to Amy Julia Becker’s podcast Reimagining The Good Life Listen to Amy Julia Becker’s episode with Anthropologist Tom Pearson  Articles about the comments: New York Times article Disability Scoop article Some helpful links on this topic: National Center on Disability and Journalism Terms to Avoid When Talking About Disability Words Matter! Disability Language Etiquette by the National Education Association How Ableism Affects People With Disabilities National Institute of Health article: Implications of internalised ableism for the health and wellbeing of disabled young people   Previous Episodes Like This: 88. (Un)learning the Advocacy Language 172. Defining Ableism, Allyship & Advocacy + Redefining "Inclusion" - ft. Dr. Priya Lalvani 197. Exposing The Roots (Racism, Ableism, Microagressions, + More) 208. Growing Through Uncomfortable Conversations (w/Ashley - TLFP Producer & Self-Advocate) 217. The Things People Say 250. Who Has The Right To Use Down Syndrome Or Disability As A Punch Line? JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today!  DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! LET’S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes. --- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

    27min
4,9
de 5
328 avaliações

Sobre

Hey friends! Welcome to the Lucky Few Podcast where we are shifting the narrative by shouting the worth of people with Down syndrome. With your hosts, Heather Avis, Micha Boyett, and Mercedes Lara. Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

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