168 episodes

Crohn's disease and ulcerative colitis (collectively known as inflammatory bowel disease) are about more than diarrhea: they affect the whole person. About IBD focuses on health and lifestyle issues important to people living with Crohn's or colitis. IBD patients, doctors, therapists, and care partners give their tips and advice on topics including diet, nutrition, treatments, mental health, family dynamics, and sexuality as it relates to living with IBD.

About IBD Amber J Tresca

    • Health & Fitness
    • 5.0 • 26 Ratings

Crohn's disease and ulcerative colitis (collectively known as inflammatory bowel disease) are about more than diarrhea: they affect the whole person. About IBD focuses on health and lifestyle issues important to people living with Crohn's or colitis. IBD patients, doctors, therapists, and care partners give their tips and advice on topics including diet, nutrition, treatments, mental health, family dynamics, and sexuality as it relates to living with IBD.

    Connecting to Cure Crohn's and Colitis With Stacy Dylan

    Connecting to Cure Crohn's and Colitis With Stacy Dylan

    Amber is joined by Stacy Dylan, co-founder and executive director of Connecting to Cure Crohn's and Colitis (CtoC). CtoC is a patient advocacy group focused on addressing unmet needs in the IBD community. Stacy founded CtoC to help other families after her son was diagnosed with Crohn's disease. CtoC offers support groups, mentorship programs, and gut-friendly workouts. Stacy offers advice to parents of children with IBD, encouraging them to take things one step at a time and not be overwhelmed by information from the internet.
    Follow Connecting to Cure:
    Web: https://www.connectingtocure.org Twitter: @connecttocure Instagram: @connectingtocure Facebook: @ConnectingToCure Follow Stacy’s Medium page at: https://stacyjdylan.medium.com.
    Find Amber J Tresca at:
    AboutIBD.com: About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD Find Mac Cooney (mix, sound design, and theme music) at:
    Facebook: @maccooneycomposer Instagram: @maccooneycomposer YouTube: @MacCooneyComposer Web: Cooney Studio Theme music, IBD Dance Party, is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD155
    These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

    • 53 min
    Men's Health and IBD

    Men's Health and IBD

    There tend to be more women than men who share their journey with inflammatory bowel disease (IBD, Crohn's disease, ulcerative colitis). The reasons are challenging to uncover, but what's clear is that more can be done to raise the visibility of men living with an IBD, ostomy, or other digestive condition. My guest is Jordan William Henry Aggen, also known as Crohn's Trooper. Jordan emphasizes the importance of open communication, pre-planning, and finding support from friends, family, and social media to cope with the disease.
    Concepts discussed on this episode:
    Which is Nerdier: Star Wars or Star Trek? Find Jordan William Henry Aggen at:
    Facebook: @JWHA2011 Instagram: @crohnstrooper Find Amber J Tresca at:
    AboutIBD.com: About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD Find Mac Cooney (mix, sound design, and theme music) at:
    Facebook: @maccooneycomposer Instagram: @maccooneycomposer YouTube: @MacCooneyComposer Web: Cooney Studio Theme music, IBD Dance Party, is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD154
    These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

    • 38 min
    "Boo Can't Poo!" With Iris Wang, MD

    "Boo Can't Poo!" With Iris Wang, MD

    Dr Iris Wang, assistant professor in the division of Gastroenterology and Hepatology and the Associate Program Director of the GI fellowship at Mayo Clinic in Rochester, Minnesota and Amber Tresca discuss the stigma surrounding gut health and poop. Dr Wang shares the experience of writing a children's book focused on preventing and managing constipation titled "Boo Can't Poo!" They also discuss the challenges of publishing a book on gut health and the potential benefits of talking about poop and toileting, emphasizing the importance of open communication and personalized treatment. Listen to learn about where you can get "Boo Can't Poo!" and how parents with IBD can manage their anxiety around the idea of their kids developing IBD.
    Order "Boo Can't Poo!" ISBN 9798887701431:
    Mayo Clinic Press Amazon Barnes and Noble Bookshop.org Target Walmart Find Xiao Jing "Iris" Wang, MD at:
    Twitter: @IrisWangMD LinkedIn: @xiao-jing-wang-b755339 Instagram: @iriswangmd Find Amber J Tresca at:
    AboutIBD.com: About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD Find Mac Cooney (mix, sound design, and theme music) at:
    Facebook: @maccooneycomposer Instagram: @maccooneycomposer YouTube: @MacCooneyComposer Web: Cooney Studio Theme music, IBD Dance Party, is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD153
    These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

    • 32 min
    The GEM Project With Chantel Wicks

    The GEM Project With Chantel Wicks

    What is being done to help prevent inflammatory bowel disease (IBD) in the next generation? The Genetic, Environmental, Microbial (GEM) Project is a research study from Crohn's and Colitis Canada (CCC) focused on finding possible causes for Crohn’s disease by following healthy people who are at a higher risk for developing the disease. To talk about GEM, Amber interviews CCC volunteer Chantel Wicks. Chantel is the chapter president for the Durham Region in Ontario and the Chair of their Gutsy Walk, which is a fundraiser and event that takes place every year in the first weekend of June. Learn more about how the GEM Project is uncovering important information on the development of IBD and how to get involved in CCC and The Gutsy Walk.
    Find Chantel Wicks on the Guts and Glory Podcast at:
    Web: https://gutsnglory.ca/ Facebook: @GtsNGlry Twitter: @GtsNGlry Instagram: @gtsnglry Find Crohn's and Colitis Canada at:
    Web: https://crohnsandcolitis.ca/ The Gutsy Walk: https://gutsywalk.ca/ Facebook: @getgutsycanada Twitter: @getgutsycanada Instagram: @getgutsycanada Find Amber J Tresca at:
    AboutIBD.com: About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at:
    Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio Theme music, IBD Dance Party, is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD152
    These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

    • 42 min
    The Harms of Copay Accumulators

    The Harms of Copay Accumulators

    Did you notice that suddenly one year you started paying more for your healthcare? Crohn's disease and ulcerative colitis are sometimes treated with medications that are expensive. Manufacturers create programs to help patients afford these drugs. In the beginning, these payments from assistance programs counted toward a yearly health insurance deductible. Then, suddenly: they stopped counting. Overnight, patients found themselves responsible for more costs, while insurance carriers received what amounts to double payments. A 2023 court ruling says that this practice should be reversed again, but it's not happening. Amber McCown tells her story of how a copay accumulator program took her by surprise and why she's partnering with the HIV+Hepatitis Policy Institute and working with legislators and agencies to advocate for change.
     
    Aimed Alliance. How a Loophole in the Patient Protection and Affordable Care Act Can Impact Access To Your Necessary Treatments: https://aimedalliance.org/wp-content/uploads/2022/07/Aimed-Alliance-Non-EHB-Fact-Sheet-FINAL-1.pdf
    Patient Protection and Affordable Care Act; HHS Notice of Benefit and Payment Parameters for 2021; Notice Requirement for Non-Federal Governmental Plans: https://www.federalregister.gov/documents/2020/05/14/2020-10045/patient-protection-and-affordable-care-act-hhs-notice-of-benefit-and-payment-parameters-for-2021
    Copay Accumulator Programs: https://cga.ct.gov/2024/rpt/pdf/2024-R-0034.pdf?t=1713267305928
    State Insurance Departments: https://content.naic.org/state-insurance-departments
     
    From the HIV+Hepatitis Policy Institute:
    In 2022, the HIV+Hepatitis Policy Institute, two diabetes groups, and individual chronic disease patients filed a lawsuit in the U.S. District Court for the District of Columbia challenging the federal rule that allowed "copay accumulators."
     
    Insurers use "copay accumulator" programs to avoid counting the value of copay coupons that patients get from drug manufacturers toward a patient's deductible and out-of-pocket costs -- effectively double charging the patients.
     
    In 2023, the court ruled in favor of the plaintiffs and struck down the federal rule that had allowed health insurers to avoid counting copay assistance from drug manufacturers toward a patient's out-of-pocket cost. 
     
    But the government isn't enforcing the court's ruling, so patients are still subject to copay accumulator schemes. It's bad enough that the federal government is effectively ignoring a court ruling. Far worse is the fact that patients are still being unjustly subjected to copay accumulators that prevent them from being able to afford their prescription drugs as a result. Patients need the federal government to issue a new rule ASAP.
     
    Find Amber J Tresca at:
    AboutIBD.com: About IBD
    Verywell: Verywell Health
    Facebook: @aboutIBD
    Twitter: @aboutIBD
    Pinterest: @aboutibd
    Instagram: @about_IBD
     
    Find Mac Cooney (mix, sound design, and theme music) at:
    Facebook: @maccooneycomposer 
    Instagram: @maccooneycomposer
    Web: Cooney Studio
    Theme music, IBD Dance Party, is from ©Cooney Studio.
     
    Episode transcript and more information at: https://bit.ly/AIBD151
     
    These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

    • 35 min
    IBD and Somatic Therapy With Abri Bernstein

    IBD and Somatic Therapy With Abri Bernstein

    People with IBD are more likely to live with anxiety, depression, or other mood disorders than people who don't live with one of these conditions. For that reason, caring for mental health is as important as caring for physical health. But it doesn't always work out that way, as patients may not know how important their mental health is to their physical health, or may not have access to a mental health professional. Abri Bernstein shares her personal journey with ulcerative colitis (UC) and how somatic psychotherapy helped her cope with living with the disease. Abri explains somatic psychotherapy as a holistic approach to healing that focuses on the body and nervous system regulation. She describes various modalities, such as somatic experiencing, sensorimotor psychotherapy, and acceptance and commitment therapy (ACT), emphasizing the importance of addressing trauma stored in the body for healing to occur.
    Resources and information discussed in this episode:
    What Is Somatic Therapy? Trauma and the Nervous System: A Polyvagal Perspective Polyvagal Institute The Trauma Foundation Bonaz B, Sinniger V, Pellissier S. Therapeutic Potential of Vagus Nerve Stimulation for Inflammatory Bowel Diseases. Front Neurosci. 2021;15:650971. Published 2021 Mar 22. doi:10.3389/fnins.2021.650971. Polyvagal Theory: A Science of Safety Find Abri Bernstein at:
    Web: Healing With Abri LinkedIn: Abri Berstein Email: abribern@gmail.com Find Amber J Tresca at:
    AboutIBD.com: About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at:
    Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio Theme music, IBD Dance Party, is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD150
    These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

    • 53 min

Customer Reviews

5.0 out of 5
26 Ratings

26 Ratings

zylafone ,

Learn from the Expert

Amber is so well versed in IBD. She is an expert brings such wonderful information and knowledge to every episode. What a supportive community she has created and a wonderful resource for IBD.

Littleluna9 ,

Great information!

It was wonderful to meet you Amber, at Connecticut Children’s Medical Center College Night. Thank you for sharing your experience and insight. I enjoyed the latest episodes here and look forward to listening to many more. Very personal and meaningful 😊

A_spareparts ,

Relatable and informative

Amber always has relevant topics and guests talking about important things for IBD patients. She’s always relatable and makes great content FOR patients not about them.

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