Alzheimer's Speaks Senior Resource Podcasts

Today we talked with Steven A. Barbieri and Truthful Loving Kindness, both living with dementia. It was a very interesting show with great insights. We covered a variety of topics listed below.


* The diagnostic process and the difficulty in getting an actual type of dementia pinned down.
Like Cancer, Dementia is a category, not an official disease like Alzheimer’s disease, Lewy Body Dementia, Vascular, FTD, CTE…
We also dive into the benefits of exercise.
The importance of the Phrases – Nothing About Us Without Us and Nothing About Me Without Me
Organizations that tout having a “Token” person living with dementia on the board… and the impact of that.
Truthful’s Blog on dementia symptoms and strategies.
Using a cell phone for strategies, pictures to help remember things or events, calendars, and reminder alerts.
Quality of Life for people living with dementia. *Bidets, what a wonderful tool as the disease progresses.

Helpful Resources Discussed


National Council of Dementia Minds also known as Dementia Minds

https://dementiaminds.org/


Life 360 – The Family Locator APP

https://www.life360.com/


Tru's Blog

https://alzheimersspeaks.com/blog/


GrandPad – A Communication and Engagement Tool

https://www.grandpad.net/

 

Find Us At:

Website     https://alzheimersspeaks.com/alzheimers-speaks-radio/

Youtube  https://youtu.be/Nc7xW7H3NSU

Apple Podcast    https://podcasts.apple.com/us/podcast/open-mic-airs-on-alzheimers-speaks/id986940432?i=1000653428716 

Spotify     https://open.spotify.com/episode/5CfOPWEv6nEGJususJGz88 

Pod Links     https://pod.link/986940432

 

Mark Your Calendars for our Next Open Mic on June 18th at 2 pm ET, 1 pm CT, 12 pm MT, 11 am PT

Share Your Story, Service, Product, or Tool on Alzheimer’s Speaks Open Mic

Join Alzheimer's Speaks Radio today on Open Mic as we shift dementia care from crisis to comfort around the world one episode at a time.  We love raising all voices and delivering sound news, not just sound bites!  So, we invite you to call in and tell us how you are improving dementia care. We just ask all parties to hold to have a respectful conversation.

Share your dementia or caregiving story. Tell us about your service, product, or tool you have that can help others dealing with dementia.  Have you written a book, penned, or produced a song or film?  If so, we want to hear from you.  Maybe you are working on a research project or have a trial you are promoting. 

Contact Us To Join Us On The Next Open Mic  https://alzheimersspeaks.com/be-a-guest/

 

Contact Lori La Bey with Alzheimer’s Speaks

Website –  https://www.alzheimersspeaks.com/

Contact Lori La Bey with questions or branding needs through www.AlzheimersSpeaks.com

Alzheimer's Speaks Radio - Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sound news, not just sound bites since 2011.

Alzheimer's Speaks is part of the Senior Resource Podcast Network.
Support this Show: https://alzheimersspeaks.com/donate-now/
See omnystudio.com/listener for privacy information.

Our Panel today consists of Craig Hanke, Ginger Smith, Harry Urban, Laurie Scherrer, Jennifer Bute, and Truthful Loving Kindness who are living with dementia.  You will hear about when they got diagnosed, how their diagnosis changed over the years, and how they are living life well with a form of dementia. 

Some of our panelists have been living 15 to 20  plus years with dementia!

Join us as we listen and learn from their lived experiences! Dementia Chats™

You can also watch the program on YouTube at

https://youtu.be/ulSIssz8-W0?si=ubOoi7UsLEQ1cG1u 

Educational Panel – Videos Raising Voices of Those Living with Dementia Dementia Chats™ was created in 2012, to educate people living with dementia, and their care partners including family, friends, professionals, and advocates. Dementia Chats™ positions our panelists to be the true experts.  They are those diagnosed with some form of dementia. 

Our panelists vary from program to program, depending on their schedules. New voices are always welcome to join us. Lori La Bey, the founder of Alzheimer’s Speaks facilitates Dementia Chats.  She learned how essential it was to listen to those diagnosed. Her mother lived for 30 years with dementia. Lori found that people living with dementia had great insights and creative ideas for care, and felt their voices needed to be lifted.  Those diagnosed show us how to be inclusive in new ways.

Our Panelists become spokespersons for themselves and others living with dementia positioning them as advocates, and many say it gives them a new sense of purpose and pride which allows them to continue to live a dignified and purpose-filled life. Learn

More About Dementia Chats Here: https://alzheimersspeaks.com/dementia... Are You Interested In Joining The Dementia Chats™ Panel?

Contact Lori La Bey at dementiachats@alzheimersspeaks.com

You can always go to our main website for more information

https://alzheimersspeaks.com/

Or Visit Alzheimer's Speaks Radio at

https://alzheimersspeaks.com/alzheimers-speaks-radio/

Contact Lori La Bey with questions or branding needs at https://www.alzheimersspeaks.com/ 

Alzheimer's Speaks Radio - Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sound news, not just sound bites since 2011.

Alzheimer's Speaks is part of the Senior Resource Podcast Network.
Support this Show: https://alzheimersspeaks.com/donate-now/
See omnystudio.com/listener for privacy information.

GrandPad: Facilitating Connection and Engagement in Alzheimer's Care

Lori La Bey talks with Scott Lien who is GrandPad's Co-Founder and Chief Executive Officer. His role has been to lead the company as it builds an accessible platform that empowers seniors to connect with family, friends, and caregivers. With GrandPad, Scott’s vision is to create a world where no seniors are lonely or isolated.

Learn:


How GrandPad was created by personal experience.
Who are Grand Advisors and why is their insight so important to the design and service offered?
How GrandPad promotes safety and security.
What ways are available to communicate?
Can you control who has access to communicate?
Why is engagement critical for all users?
The importance of promoting independence and inclusion.
No WIFI is needed
GrandPad supports 911
GrandPad tech support always connects you with a real person!

Listen and Subscribe to Alzheimer’s Speaks on Apple Podcast

https://podcasts.apple.com/us/podcast/grandpad-facilitating-connection-and-engagement-in/id986940432?i=1000652576146

 

Listen and Subscribe to Alzheimer’s Speaks on Spotify

https://open.spotify.com/episode/6AxU9wclZCcACKamg4pXtE

 

Other Podcasts

https://pod.link/986940432

 

Contact GrandPad

Website: visit www.grandpad.net

Phone 24/7 1-800-704-9412

LinkedIn: GrandPad

Instagram: @grandpad_social

Facebook: GrandPad

 

Contact Lori La Bey with questions or branding needs at https://www.alzheimersspeaks.com/

Alzheimer's Speaks Radio - Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sound news, not just sound bites since 2011.

Alzheimer's Speaks is part of the Senior Resource Podcast Network.

 
Support this Show: https://alzheimersspeaks.com/donate-now/
See omnystudio.com/listener for privacy information.

Adaptive Publications Providing Social, Cultural, and Spiritual Engagement 

Lori La Bey talks with a variety of founders who are providing a variety of adaptive reading publications. This is a fabulous show that can be life-enriching for not just those living with dementia but for all older eyes! I think you will be amazed at all the resources we discussed and why they were developed.

Laurette Klier is a career educator-turned-passionate advocate for adaptive publications for elders in life review. Her series, NANA’S BOOKS uses nostalgic art and literature in considerate formats to facilitate meaningful communication and unite generations. 

Nikki Jardin Publisher and Co-Founder of Mirador Magazine - an award-winning, adaptive text publication. 

Luke Gilligan is the founder and CEO of Resense, a company that creates innovative and restorative products for individuals living with Dementia. Luke has a passion for care and creating unique, dementia-friendly products and experiences for individuals living with Dementia. 

Eric Kolb is the Executive Director of Songs & Smiles. The nonprofit uses dementia-friendly singalongs and magazines to keep families connected during the Alzheimer's journey.

Ann Aubitz is the Co-owner and Publisher of Kirk House Publishers and FuzionPress. She is proud to present the Reminisce Line of reader-friendly books that is filling a huge gap for those living with dementia as well as our elders who are avid readers and are finding typical offerings either too difficult or too easy to read.

Lessons Learned:


How each person saw firsthand the need for adaptive reading publications in different ways
How enabling people to continue to read had a major effect on health and wellness.
Why a coalition of Adaptive Publications is critical to getting the word out these tools are available.
How are these products different and why?
Examples of how these "social prescriptions" are meeting a huge need in the reading industry.
Hear examples of how dignity, respect, and engagement are maintained.

Contact Information

Mirador Website   https://www.miradormagazine.com

Email Nikki Jardin Nikki@MiradorMagazine.com

Social Media @miradormagazine 

Nana’s books Website  www.nanasbookseries.com

          Email Laurette Klier  info@nanasbookseries.com

Resense™ Website  www.resensebox.com

          Email Luke Gilligan luke@resensebox.com

Text or call: 317-224-3946 

Songs & Smiles Website   https://www.songsandsmiles.com

          Email Erik Kolb info@songsandsmiles.com

Reminisce  Book Line Website https://www.kirkhousepublishers.com/reminisce

          Phone 952-465-2623

 

Watch on YouTube

https://youtu.be/_JA-ORL8wiQ

Listen and Subscribe to Alzheimer’s Speaks on Apple Podcast

https://podcasts.apple.com/us/podcast/alzheimers-speaks/id986940432

Listen and Subscribe to Alzheimer’s Speaks on Spotify

https://open.spotify.com/show/255okRnEgfCUqXq1NWcrT3

Other Podcasts

https://pod.link/986940432

Contact Lori La Bey with questions or branding needs at https://www.alzheimersspeaks.com/

Alzheimer's Speaks Radio - Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sound news, not just sound bites since 2011.

Alzheimer's Speaks is part of the Senior Resource Podcast Network.
Support this Show: https://alzheimersspeaks.com/donate-now/
See omnystudio.com/listener for privacy information.

Talking Tech Options To Live Well With Dementia

Lori La Bey talks with Abbie Richie who hosts Tech Tuesdays on Foresight TV and Tech Talks on CBS Channel 5. She is a TEDx speaker, a member of the AARP’s AgeTech Collaborative, and the director of corporate communications for The Smarter Service.

Tips For Picking and Customizing Technology To Meet Your Needs


Televisions
Phones
Computers
Hearing Aids
Monitoring Systems
Voice Transcribing
Notifications
Avoiding Scams
Social Engagement Apps

 

Watch the Video Interview Below

https://youtu.be/40ANNJwSqPs

Listen and Subscribe to Alzheimer’s Speaks on Apple Podcast

https://podcasts.apple.com/us/podcast/alzheimers-speaks/id986940432

Listen and Subscribe to Alzheimer’s Speaks on Spotify

https://open.spotify.com/show/255okRnEgfCUqXq1NWcrT3

Other Podcasts

https://pod.link/986940432

 

Contact Abbie Richie 

Website   www.smarterservice.com

Email   abbie@thesmarterservice.com

Instagram   https://www.instagram.com/abbie_richie/

LinkedIn   https://www.linkedin.com/in/abbie-richie/

 

Contact Lori La Bey with questions or branding needs at https://www.alzheimersspeaks.com/

Alzheimer's Speaks Radio - Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sound news, not just sound bites since 2011.

Alzheimer's Speaks is part of the Senior Resource Podcast Network.
Support this Show: https://alzheimersspeaks.com/donate-now/
See omnystudio.com/listener for privacy information.

25 Years of Supporting Families and Caregivers

Our host, Lori La Bey talks with a wonderful panel about the Normandale Center for Healing & Wholeness who give us insights from various perspectives.  We are lucky to have with us Jennifer Monroe, Executive Director, Becky Zinn-Caulfield, Caregiver Specialist, Leaf who is 93-years-old and who was recently diagnosed with early-stage Alzheimer's, along with Kennard Lehmann was diagnosed in 2010 with early-stage Alzheimer's disease and his wife and care partner Mary Margaret Lehmann.

Kennard and Mary Margaret Lehmann

Kennard Lehmann was diagnosed in 2010 with early-stage Alzheimer's disease.  Since then, he and his wife, Mary Margaret, have immersed themselves in the world of research, resources, and advocacy.  They have participated in support groups and have spoken in front of the Senate Finance Committee regarding problems faced by patients living with chronic disease illnesses.

Ken does weekly woodworking projects which are then donated to the Alzheimer's Association for auctions. 

Leaf 

Leaf is a 93-year-old devoted Christian and longtime member of Normandale Lutheran Church. She was recently diagnosed with early-stage Alzheimer's.

Becky Zinn-Caulfield

Becky Zinn-Caulfield has over 20 years of experience in clinical social work, including case management, palliative care, and hospice, and is passionate about supporting older adults and their families. Becky has a master’s degree in social work from the University of Denver and is trained in Caregiver coaching and consultation.

Jennifer Monroe

Jennifer has over 25 years of experience in prior leadership roles within the non-profit and public health sectors, including chief executive roles at philanthropic, ambulatory health care, and supportive service organizations. Jennifer is a trained yoga instructor and certified in multiple evidence-based modalities.

Learn:


What organizations were part of the original coalition supporting the Normandale Center?
When did the Normandale Center for Healing and Wholeness become a nonprofit organization?
What does the Normandale Center for Healing and Wholeness offer families dealing with dementia?
How those living with dementia and their care partners have been helped by Normandale Center.
How can the Normandale Center offer its services for free?
What programs do they offer?

Educational
Family meetings
Respite Care
Support Groups
Caregiver Assessments
Training volunteers to help support their programs



Watch the Video Interview Below

https://youtu.be/4A39HHqytfc

Listen and Subscribe to Alzheimer’s Speaks on Apple or Spotify Podcast

 

Contact information For Normandale Center

Website   https://www.normandalecenter.org

Email   info@NormandaleCenter.org

Phone    952-929-1698

LinkedIn   www.linkedin.com/company/normandale-center

FaceBook   www.facebook.com/NormandaleCenter

 

Contact Lori La Bey with questions or branding needs at www.AlzheimersSpeaks.com

Alzheimer's Speaks Radio - Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sound news, not just sound bites since 2011.

Alzheimer's Speaks is part of the Senior Resource Podcast Network.
Support this Show: https://alzheimersspeaks.com/donate-now/
See omnystudio.com/listener for privacy information.