66 episodes
Arthritis At Home (+ On the Go) Arthritis Consumer Experts
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- Health & Fitness
Arthritis At Home (+ On the Go) makes it possible for people living with arthritis to watch or listen to interviews with Canadian experts in clinical rheumatology, arthritis scientists, physio and occupational therapists, psychologists and health economists, as well as patient experts and advocates. We hope you find Arthritis At Home informative and fun as you live your best life with arthritis.
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The latest advances in Canadian arthritis research
In this episode of Arthritis At Home, Kelly Lendvoy, Vice President, Communications and Public Affairs, Arthritis Consumer Experts (ACE), speaks to Ellen Wang, Programs Coordinator, ACE and PhD student at the University of British Columbia, about their experience leading the 9th annual #CRArthritis event at the 2023 Canadian Rheumatology Association and Arthritis Health Professions Associations Annual Scientific Meeting. Together, they highlight a handful of the exciting presentations in advocacy and disease research from researchers, clinicians and patient group leaders.
Additional learning resources
JointHealth™ insight: Spring 2023 – The latest advances in Canadian arthritis research#CRArthritis Interviews – Parts 1-4Arthritis Broadcast NetworkMyTransition App -
Joint Journeys, life with arthritis by Carrie
Arthritis Consumer Experts (ACE) is thrilled to launch its new blog Joint Journeys, life with arthritis by Carrie. Insightful, inspirational, heart-warming and fun, Carrie’s pieces are beyond living with arthritis – they are about life’s everyday moments, the ups and downs of a life worth living. A brief pause to look at life with a fresh lens, a breath of fresh air in our day and that reminds us we are not our arthritis; we are human beings living life, with arthritis. Carrie’s pieces will touch on travel, gardening, raising a family, exercise, and adventuring, among other life moments.
In this episode of Arthritis At Home, Cheryl Koehn, ACE’s President, speaks with Carrie Barnes about her new blog, Joint Journeys, life with arthritis. They will talk about the origin of the blog concept and riff on why they think it fills a void in the current arthritis blogging scene.
Additional learning resources
Joint Journeys, life with arthritis by CarrieAbout Carrie Barnes -
Inequities in Arthritis Care in Canada: An intersectional analysis of BIPOC women
In this episode, Kelly Lendvoy, VP Communications & Public Affairs speaks with Ellen Wang, ACE Programs Coordinator and Research Trainee at Arthritis Research Canada, about the presentation of an ACE research presentation (Abstract) at the annual scientific meeting of the European Alliance of Associations for Rheumatology (EULAR).
The Abstract - Inequities in Arthritis Care in Canada: An intersectional analysis of BIPOC women – presents detailed findings from the ACE National Survey on Health Inequities on barriers to access, discrimination and healthcare provider interaction among BIPOC (Black, Indigenous, and Person of Colour) women living with arthritis in Canada.
Additional learning resources
PowerPoint Presentation and SummaryArthritis Consumer Experts Survey on Arthritis and Health Inequities -
Drug development, review and public reimbursement in Canada
In this episode, Kelly Lendvoy, VP Communications & Public Affairs speaks to ACE’s Founder and President, Cheryl Koehn, about the long and winding road towards drug development, review and public reimbursement in Canada. They discuss the highlights from a recently published JointHealth™ insight: the phases of drug development, the drug review process, price negotiations, and how it affects the lives of people living with inflammatory arthritis.
Additional learning resources
JointHealth™ insight – From discovery to the patient: The long and winding road towards drug development, review and public reimbursement in CanadaInfographic: Canada drug review process at a glanceACE Arthritis Medications Report Card -
Global RA Network’s one-day annual workshop at EULAR
Made up of rheumatoid arthritis patient organizations and leaders from 18 countries, the Global RA Network (GRAN) was formed to build international relationships and identify and work on common goals and initiatives to improve the lives of people living with rheumatoid arthritis (RA) around the world. Arthritis Consumer Experts co-founded the Network in 2017 and serves as its Secretariat.
This episode of Arthritis at Home features Kelly Lendvoy, ACE’s VP Communications and Public Affairs and Isabelle Troïtzky, Programs Manager of the GRAN discussing the Network’s recent one-day annual Workshop held during the annual scientific meeting of the European Alliance of Associations for Rheumatology.
Additional learning resources
Globa RA NetworkACE National Survey on Arthritis and Health InequitiesInequities in Arthritis Care in Canada: An intersectional analysis of BIPOC women -
Equity considerations that impact access to research and care
In this episode of Arthritis at Home, Ellen Wang, ACE’s Programs Coordinator speaks with Megan Thomas, a PhD candidate at the University of British Columbia in the Department of Pharmaceutical Sciences. Megan is under the supervision of Dr. Mary De Vera and Dr. Mark Harrison. She completed both her MSc in Community Health Sciences and her Bachelor of Health Sciences honours degree at the University of Calgary. Megan’s work is focused on patient preferences, health equity, and patient-oriented research. More specifically her thesis aims to addresses equity considerations that impact access to research and care for patients with inflammatory arthritis. She plans do this through interviews with heath care providers and patients, as well as using a survey much like the one that ACE conducted!
Additional learning resources
More about PROGRESS-PlusAbout Megan Thomas