Arthritis At Home (+ On the Go)

Arthritis Consumer Experts
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Arthritis At Home (+ On the Go) makes it possible for people living with arthritis to watch or listen to interviews with Canadian experts in clinical rheumatology, arthritis scientists, physio and occupational therapists, psychologists and health economists, as well as patient experts and advocates. We hope you find Arthritis At Home informative and fun as you live your best life with arthritis.

  1. 2D AGO

    Australian Patient Advocacy Alliance partners on launch of Patients and patents campaign

    In this episode of Arthritis At Home, host Cheryl Koehn speaks with Deidre Mackechnie, Executive Officer of the Australian Patient Advocacy Alliance, about her organization’s partnering with the Patients and patents campaign. The interview will explore what the Australian Patient Advocacy Alliance does for patients, why the Patients and patents campaign is important for patients in Australia, and discuss ways patients can help share the information. Additional learning resources Patients and patents: A grassroots education campaign on pharmaceutical patentsAbout the Australian Patient Advocacy Alliance

    14 min

  2. MAR 5

    National Survey on Lupus Report Highlights

    In this episode of Arthritis At Home, we speak with Dr. Stephanie Keeling about the results of the National Survey on Lupus conducted by Arthritis Consumer Experts and Lupus Canada. Dr. Keeling will review the Survey highlights, including the difficulty people with lupus face getting diagnosed and the challenges they face remaining physically active and happy in all aspects of their lives. Dr. Keeling is a clinical rheumatologist and Professor in the Faculty of Medicine and Dentistry at the University of Alberta. She is a former board member and current member of the guidelines committee of the Canadian Rheumatology Association and a member and treasurer of the Canadian Network of Improved Outcomes in Systemic Lupus Erythematosus (CaNIOS).  Additional learning resources JointHealth™ insight - National Survey on Lupus ReportLiving with Lupus – Arthritis Consumer ExpertsJointHealth™ Education: Arthritis and Mental HealthCanadian Network of Improved Outcomes in SLE (CANIOS) registry

    23 min

  3. FEB 27

    Advanced physiotherapist practitioner in juvenile idiopathic arthritis care

    In this episode of Arthritis At Home, we are sharing the #CRArthritis interview with Ms. Julie Herrington, an Advanced Physiotherapist Practitioner with ACPAC (Advanced Clinical Practitioner in Arthritis Care) training working with the pediatric and young adult rheumatology teams at McMaster Children’s Hospital in Hamilton, Ontario.  In her discussion with Cheryl, she shares highlights from her two posters. The first poster looked at an advanced physiotherapist practitioner’s level of safety performing juvenile idiopathic arthritis care. They compared quality and standards of care, safety, and performance indicators between patients receiving advanced physiotherapist practitioner care with those in the PR-COIN Registry. PR-COIN is a collaborative community where patients, parents, clinicians, and researchers work together to improve the health and care of children and youth with rheumatic conditions.  The second poster highlights parents and teens’ feedback about their satisfaction with the advanced physiotherapist practitioner model of care in pediatric rheumatology. The study found that satisfaction level is high. The parents and teens felt that appointments were thorough and valuable. Additional learning resources Pediatric Rheumatology (PR-COIN) Care & Outcomes Improvement NetworkAdvanced Training in Extended Practice Roles in Rheumatic and Musculoskeletal DiseaseMcMaster Children’s HospitalArthritis Consumer Experts’ About Juvenile Idiopathic Arthritis pageCanadian Alliance of Pediatric Rheumatology Investigators

    27 min

  4. FEB 19

    Patients and patents: Understanding how pharmaceutical patents affect medication cost

    In this episode of Arthritis at Home, we explore an issue that affects every person who relies on medication to manage their disease: why are some medications so expensive, and what role do pharmaceutical patents play in access to affordable treatment?  Host Kelly Lendvoy speaks with Cheryl Koehn, President, Arthritis Consumer Experts, about the launch of the new Patients and patents website as part of a global, patient-led initiative designed to help patients better understand how patent rules can influence the cost and availability of the medications they depend on. Together, they discuss how patents are meant to protect innovation but sometimes are used in ways that delay access to affordable options like biosimilars, and what patients and organizations can do to get involved in the campaign.  Additional learning resources  Patients and patents: A grassroots education campaign on pharmaceutical patentsThe “Patients and patents” campaign infographic

    18 min

  5. FEB 12

    A conversation on arthritis and mental health

    What does mental health really look like when you are living with arthritis? In a new episode of Arthritis at Home, Kelly Lendvoy talks to Cheryl Koehn, President, Arthritis Consumer Experts about the emotional challenges of living with arthritis and the launch of JointHealth™ Education – Arthritis and Mental Health, covering important topics for people living with arthritis: What patients told us about the emotional toll of arthritis in ACE’s National Survey on Arthritis and Mental HealthWhy mental health is still not routinely discussed in appointments The two-way relationship between pain and mood How small, realistic steps can strengthen resilienceWhy asking for support is a sign of strength, not weaknessThe new  JointHealth™ Education online course was developed to help people living with arthritis better understand the connection between arthritis and mental health and to provide practical strategies to strengthen emotional well-being. Additional learning resources Click here to take the courseArthritis Consumer Experts Survey Report on Arthritis and Mental Health Mental Health Commission of Canada

    14 min

  6. FEB 5

    Blind studies and therapeutic effects in scleroderma

    In this episode of Arthritis At Home, we are featuring the #CRArthritis with Dr. Inés Colmegna, clinician-scientist in the Division of Rheumatology at McGill University. Dr. Colmegna talks about a poster she presented at the Canadian Rheumatology Association’s Annual Scientific Meeting. She explains why blind studies are important in studying the therapeutic effects of scleroderma and shares some key takeaway messages from her poster. Additional learning resources Scleroderma CanadaArthritis Consumer Experts’ About Scleroderma pageSingle, Double & Triple Blind Study – Definitions and Examples

    25 min

  7. JAN 29

    Palliative care in rheumatic diseases and quality of life

    In this episode of Arthritis At Home, we are featuring the #CRArthritis with Dr. Alexandra Saltman, an Assistant Professor at the Department of Medicine in the University of Toronto, and clinician teacher in the Division of Rheumatology and Palliative Medicine at Mount Sinai and the University Health Network. Dr. Saltman shares her unique perspective about integrating palliative care in rheumatologic care and how incorporating palliative care principles early on in the care plan could improve the quality and quantity of life for someone living with rheumatic diseases.  Additional learning resources  Palliative Care in Rheumatic Diseases: When Does the End Begin and Why Does it Matter? (Webinar)CRAJ Summer 2019 Palliative Care for the RheumatologistPalliative Care for the Rheumatologist: An Educational and Patient Care InterventionArthritis Consumer Experts’ Self-advocacy Tips

    14 min

  8. JAN 22

    A discussion on rheum-oncology and artificial intelligence in rheumatology

    In this episode of Arthritis at Home, Ellen Wang, Programs Coordinator at Arthritis Consumer Experts, has a discussion with Dr. Carrie Ye, an Associate Professor from the University of Alberta, about rheum-oncology and artificial intelligence in rheumatology.  Carrie shared how her interests developed at the intersection of patient care, epidemiology, and complex systemic disease, particularly in the context of cancer immunotherapies and their rheumatic and bone-related toxicities. The conversation explored rheum-oncology as an emerging discipline, highlighting the importance of collaboration between rheumatologists and oncologists, as well as her leadership with Canadian Research Group of Rheumatology in Immuno-Oncology (CanRIO) in building national capacity and shared learning in this space. The episode concludes with a thoughtful discussion on the biggest opportunities for artificial intelligence in rheumatology, such as earlier detection and more personalized care, alongside key challenges including accuracy, bias, and environmental impact. Additional learning resources Arthritis Consumer Experts National Survey on Artificial Intelligence and Arthritis Care ReportLearn more about Carrie’s projectDoctors of BC: Using AI Scribe Technologies

    14 min
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About

Arthritis At Home (+ On the Go) makes it possible for people living with arthritis to watch or listen to interviews with Canadian experts in clinical rheumatology, arthritis scientists, physio and occupational therapists, psychologists and health economists, as well as patient experts and advocates. We hope you find Arthritis At Home informative and fun as you live your best life with arthritis.

Information

  • Creator
    Arthritis Consumer Experts
  • Years Active
    2020 - 2026
  • Episodes
    181
  • Rating
    Explicit
  • Copyright
    © 2026 Arthritis At Home (+ On the Go)
  • Show Website
    Arthritis At Home (+ On the Go)