What does hypermobility do to your health? How can you help yourself feel better while improving your performance? Also referred to as being bendy or double-jointed, hypermobility can impact the entire body from pain and injury to organ health, mental health, and sleep. Welcome to Bendy Bodies with the Hypermobility MD, with founder and cohost, Linda Bluestein, MD, and cohost, Jennifer Milner. Conversations with specialists with diverse areas of expertise answer questions you didn't even know you had and cover topics you won’t find anywhere else all around optimizing your hypermobile he
36. Needling for Pain with Mandy Blackmon, DPT
What exactly is dry needling? How is it different from acupuncture? What sort of issues might it be used for?
Dry needling can be a vital part of an artistic athlete’s healthcare, but sometimes can be misunderstood. Mandy Blackmon, DPT, head physical therapist for Atlanta Ballet's company dancers also serves as an instructor in the Dry Needling Series for Myopain Seminars since 2014.
Mandy explains why she considers dry needling to be a highly effective tool for treating the hypermobile population, and how people with hypermobility can react differently to dry needling. She offers advice on where to start when faced with people with multi-systemic issues, and reveals why dry needling is like rebooting a computer!
Mandy tells us how to find a dry-needling practitioner, and what information to share with that professional, as well as outlining situations where dry needling might not be appropriate.
Whether you’re new to dry needling or use it as a regular part of your health maintenance toolbox, there’s a lot to learn from this excellent discussion.
To learn more about Dr. Blackmon and Myopain Seminars:
#dryneedling #dancemedicine #hypermobility #hypermobile #dancephysicaltherapy #chronicpain #ehlersdanlossyndrome #fibromyalgia #ehlersdanlos #heds #hypermobility #zebrastrong #BendyBodies #zebra #chronicpainwarrior #JenniferMilner #balletwhisperer #hypermobilityMD #BendyBodiesPodcast
35. Reeducating Mast Cells with Anne Maitland, MD, PhD
Mast cells: interesting and mysterious. You can’t be born without them, but they don’t show up in blood tests. They’re found throughout the body and can affect multiple systems in vastly different ways. What makes them misbehave?
We spoke with renowned Allergy and Immunology physician, Anne Maitland, MD, about the role of mast cells in the body, what happens when they go “off script”, and what we can do about it.
Dr. Maitland explains that mast cells are necessary for recognizing and healing tissue injury, and make a decision on how to react. But what if your mast cells perceive the situation incorrectly? What if they perceive a five-alarm fire when it’s just an overcooked, smoky dinner? The mast cells react disproportionately to the perceived threat, and the over-reaction manifests itself throughout the body.
She discusses how misbehaving mast cells manifest differently in different systems; she talks through examples of mast cell disorders; and she lists three questions to ask yourself as you try to figure out: are your mast cells misbehaving?
Dr. Maitland describes the challenges people with mast cell disorders face in getting properly diagnosed and treated, and outlines her approach to treating mast cell disorders. And finally, Dr. Maitland likens the hypermobile patient to a Maserati, and explains why proper maintenance is important sooner rather than later.
A deep dive into all things mast cell-related, this episode is full of wisdom you won’t want to miss!
Visit these links for more information about the books mentioned by Dr. Maitland.
#Mastcellactivationsyndrome #Mastcellactivationdisorder #Mastcelldisease #MastCell #Hypermobilityspectrumdisorder #Hypermobilityspectrumdisorders #Ehlersdanlossyndromes #Doublejointed #heds #ehlersdanlosawareness #BendyBodies #hypermobilityMD #BendyBodiesPodcast #JenniferMilner
For more information about Dr. Maitland, visit https://clinicalparadigms.com/ or https://chiarinsc.com/patient/
For more information about Dr. Linda Bluestein, visit https://www.hypermobilitymd.com/
For more information about Jennifer Milner, visit https://www.jennifer-milner.com/
34. Highlighting GI Disorders with Leonard Weinstock, M.D.
Are you suffering from gastrointestinal distress?
People with hypermobility disorders have a higher prevalence of GI problems than the general population. Dr. Leonard Weinstock, board-certified gastroenterologist with expertise in Ehlers-Danlos syndromes (EDS) and related disorders, sits down with Bendy Bodies to discuss this very topic.
Dr. Weinstock discusses the “unhappy triad" of EDS, postural orthostatic tachycardia syndrome (POTS), and mast cell activation syndrome (MCAS) and how MCAS may actually be at the heart of EDS. He lists ways to be evaluated for GI disorders and speculates that 10-17% of the general population may have undiagnosed MCAS. He stresses the importance of a multi-disciplinary approach to treatment and thinking outside the box.
We look at gastroparesis and small bowel intestinal overgrowth (SIBO) and their links to hEDS and hypermobility spectrum disorder (HSD), and Dr. Weinstock outlines the prevalence of median arcuate ligament syndrome (MALS) in people with MCAS or POTS. He elaborates on his prescribing practices with low-dose naltrexone (LDN) to help increase endorphin production and reduce inflammation, and lists vitamins and diet changes that can be effective in people with MCAS.
As one of the authors of "Covid-19 hyperinflammation and post-Covid-19 illness may be rooted in mast cell activation syndrome", Dr. Weinstock discusses the possible link between long-COVID 19 illness and MCAS. And finally, he shares suggestions on what to do if you’re having difficulty finding a GI specialist who understands complicated disorders like EDS and MCAS.
For anyone dealing with GI issues, as well as physicians looking to understand the connection between hypermobility and GI disorders, this is a timely and important podcast.
#Podcast #LeonardWeinstockMD #GIdisorders #EDS #zebrastrong #MCAS #MALS #POTS #SIBO #hEDS #autoimmunedisorders
#BendyBodies #BendyBodiespodcast #hypermobilitymd #lindabluesteinmd #jennifermilner #bodiesinmotion #balletwhisperer #hypermobility #mastcelldisease #mastcelldisorder #EhlersDanlos #EDSAwarenessMonth
33. Conquering the Wall: A Round Table Discussion
Do you live with a hypermobility disorder?
Whether you have a connective tissue disorder like Ehlers-Danlos syndrome or Marfan syndrome, or a hypermobility spectrum disorder, you are not alone. These conditions affect millions of people worldwide and disproportionately impact performing artists such as dancers, gymnasts, circus artists, and more. What do these have in common? Bodies that rely on aesthetics as well as maintaining peak performance. So how do you continue forward as your condition poses challenges to what you want to do?
And when your health derails your career plans, how do you recover from that?
We sat down with several athletic artists living with EDS, to hear their stories. We chatted with Marimba Gold-Watts, a former dancer and now Pilates trainer and teacher at Alvin Ailey; Mariana J. Plick, a circus artist; Kyle Thompson, a former elite baseball player and competitive cheerleader; and Cailey Brandon, a former dancer and now Pilates trainer.
Our panelists discuss the early days, when things were “easy”, and the point at which it became difficult. They share how their hypermobility disorders may have gone undiagnosed for a long time, lending itself to seemingly random and frustrating multiple injuries. Many identified with “hitting the EDS wall”, and the sharp turn their health seemed to take at that point.
We hear emotional stories, and lots of wisdom for other people also struggling with hypermobility disorders. The panelists also shared their hope, reflecting on ways that their disorders have made them even stronger right now, and revealed what advice they would offer to their younger selves if they had the chance.
Filled with “Oh my goodness, me too!” moments, as well as words of gut-level truth, this is an episode filled with bravery. You won’t want to miss it.
#hypermobility #heds #zebrastrong #hypermobilitydisorders #ehlersdanlossyndrome #hypermobileathletes #hypermobileartists #hypermobiledancers #hypermobilitymd #bendybodies #bendybodiespodcast #bodiesinmotion #jennifermilner
32. Embracing Neurodivergency with Jessica Eccles, MD
Neurodivergency occurs at a much higher rate amongst people with hypermobility disorders like Ehlers-Danlos Syndromes and hypermobility spectrum disorders. What’s the connection?
Jessica Eccles, MD, senior clinical academic psychiatrist at Brighton and Sussex Medical School, and specialist in brain-body neuroscience, recently spoke with Bendy Bodies about these neurological conditions that include dyslexia, autism, ADHD, dyspraxia, and dyscalculia. Dr. Eccles led the first neuroimaging study of hypermobility and her work has focused on neuropsychiatric manifestations of connective tissue disorders.
Dr. Eccles stresses that neurodivergency isn’t a disability or disorder, but a different way of neurological processing. She explains surprising findings of her research including possible explanations for the link between hypermobility and anxiety.
Dr. Eccles reveals that people with EDS (Ehlers-Danlos Syndromes) are seven times more likely to be autistic, and six times more likely to have ADHD, compared to the general population. She stresses the importance of recognizing the link between hypermobility and neurodivergency and dives into proprioceptive issues and dyspraxia.
Dr. Eccles offers suggestions for seeking help if you suspect you are neurodivergent. She also provides advice for teachers and parents to be more effective in their roles with neurdivergent artists. As Dr. Eccles states, “Neurodivergency shouldn’t be thought of as something to hold you back, but something to embrace.”
If you or someone you know may be neurodivergent, this is an episode not to be missed.
Find Dr. Eccles:
"The Relationship between Autism and Ehlers-Danlos Syndromes/Hypermobility Spectrum Disorders"
#autismacceptence #autismawareness #neurodivergent #autisticadults #neurodiversity #autistic #autimstruth #redinstead #bendybodies #bendybodiespodcast #lindabluesteinmd #jennifermilner #zebrastrong #hypermobility #hypermobilitydisorders
31. Allowing Imperfection with Bonnie Robson, MD
A very high percentage of dancers and athletic artists struggle with perfectionism: it’s what makes us so good at what we do, while at the same time can be unhealthy for us as individuals.
Bonnie Robson, world-renowned psychiatrist and dance medicine specialist, is back to talk to us about perfectionism in the arts world. She defines perfectionism, and explores the duality of perfectionism and anxiety. Bonnie discusses the difference between positive and negative perfectionism, and warns of the danger of the “I should” syndrome.
Bonnie shares techniques to get rid of negative thoughts and looks at performance STRIVINGS versus performance CONCERNS. She discusses the variables that differentiate between adaptive and maladaptive perfectionism, and how unhealthy competition actually decreases creativity.
We look at how the pursuit of perfection can increase stress, which contributes to social anxiety, eating disorder, and suicidal thoughts. Bonnie offers tips for training and setting reasonable goals, and shares tools for parents to recognize stress and anxiety in their young artists. As Bonnie reminds everyone who strives for perfection, “It’s ok to say that’s good enough”.
This episode is a must-listen for parents, artists, studio owners, and dance medicine professionals working with artists on a regular basis.
Link to "Brain structure and joint hypermobility: relevance to the expression of psychiatric symptoms" article mentioned in the episode:
#anxiety #mentalhealth #selflove #bodypositivity #mentalhealthawareness #disorderedeating #perfectionism #depression #perfectionist #ehlersdanlossyndromes #selfcare #mcas #healthcoach #movementismedicine #healthyliving #pots #inspiration #motivation #perfection #berealnotperfect #certifiedhealthcoach #IADMS #danceanxiety #mentalhealthfordancers #BendyBodies #BendyBodiesPodcast #jennifermilner #bodiesinmotion #balletwhisperer #hypermobilitymd
A light in the dark
Great resource that highlights so many topics that are not well-known in the medical community, but plague many people with hyper-mobility syndromes and EDS.
Informative and eye opening
As a newly graduated DPT especially interested in performing arts PT, this is my #1 podcast. I binged the whole show In 1 week and now look forward to every new episode. I have learned so much that isn’t taught in school and get to connect with the amazing guests they have on this show. Linda & Jennifer! Just know that you are inspiring my future career. I hope one day to connect with you all in a professional capacity! THANK you for providing this information 🖤