55 episodes

The BeyondHAE Podcast is a series dedicated to amplifying the voices of young people affected by Hereditary Angioedema and raising awareness about the disease. Hear from a different host each episode as they share stories of perseverance, activism, and support. We hope that you find strength in listening to stories from HAEA community members. Everyone has a story and this podcast series is just that, an opportunity for young people affected by HAE to share their unique stories with you!

Visit www.haea.org for Hereditary Angioedema support, information and resources.

BeyondHAE Youth Produced Podcast US Hereditary Angioedema Association

    • Business
    • 5.0 • 10 Ratings

The BeyondHAE Podcast is a series dedicated to amplifying the voices of young people affected by Hereditary Angioedema and raising awareness about the disease. Hear from a different host each episode as they share stories of perseverance, activism, and support. We hope that you find strength in listening to stories from HAEA community members. Everyone has a story and this podcast series is just that, an opportunity for young people affected by HAE to share their unique stories with you!

Visit www.haea.org for Hereditary Angioedema support, information and resources.

    #BeyondHAE Podcast: A Day in the Life of Caroline

    #BeyondHAE Podcast: A Day in the Life of Caroline

    Dive into the latest episode of the #BeyondHAE podcast as we continue our Day in the Life interview series, featuring our special guest, 14-year-old Caroline. Diagnosed with HAE as a young child, Caroline shares her journey of managing HAE, discussing how she navigates attacks, administers medication, and handles situations as they arise, all while juggling middle school and pursuing her extracurricular passions. Join our host, HAEA Youth Leader Carlie, as she delves into Caroline's experiences growing up with HAE.



    This youth produced podcast is brought to you thanks to the support of the Hereditary Angioedema Association, a patient advocacy organization serving the needs of the HAE patient and caregiver community. To learn more about the HAEA and access our incredible support network, visit, ⁠⁠⁠www.haea.org⁠⁠⁠.



    Thank you to our sponsor ⁠Takeda⁠⁠⁠.

    • 15 min
    #BeyondHAE Podcast: A Day in the Life of Bryn

    #BeyondHAE Podcast: A Day in the Life of Bryn

    We are thrilled to introduce a fresh new interview series on the #BeyondHAE podcast! Our "Day in the Life" episodes will delve into the experiences of young individuals with HAE, spanning from diagnosis to treatment management and their everyday routines. In this episode, we shine the spotlight on Bryn who was diagnosed at 16. HAEA Youth Leader Kobe takes the reins, guiding us through a Day in the Life of Bryn.



    This youth produced podcast is brought to you thanks to the support of the Hereditary Angioedema Association, a patient advocacy organization serving the needs of the HAE patient and caregiver community. To learn more about the HAEA and access our incredible support network, visit, ⁠⁠www.haea.org⁠⁠.



    Thank you to our sponsor Takeda⁠⁠.

    • 27 min
    Sponsored by BioCryst: HAE, the holidays and you. Navigating the holiday season with HAE

    Sponsored by BioCryst: HAE, the holidays and you. Navigating the holiday season with HAE

    Senior Nurse Advocate with over 20 years of experience working with HAE patients will discuss tips and recommendations for successfully navigating the busy holiday season with HAE



    For more information about Hereditary Angioedema please visit ⁠HAEA.org

    ⁠This episode is brought to you by our sponsor: ⁠BioCryst Pharmaceuticals, Inc.

    • 7 min
    #BeyondHAE Digging Deeper Interview Series: The Parent Perspective (Nikia)

    #BeyondHAE Digging Deeper Interview Series: The Parent Perspective (Nikia)

    This month's #BeyondHAE Digging Deeper Interview Series features HAEA Youth Leadership Council Member Sophia who interviews Kia who is both diagnosed with HAE but who is also a caregiver to her son Noah. This episode focuses on Kia's expereinces as a parent caring for her son Noah.

    This youth produced podcast is brought to you thanks to the support of the Hereditary Angioedema Association, a patient advocacy organization serving the needs of the HAE patient and caregiver community. To learn more about the HAEA and access our incredible support network, visit, ⁠www.haea.org⁠.

    Thank you to our sponsors ⁠BioCryst⁠ and ⁠Takeda⁠.

    • 25 min
    #BeyondHAE Digging Deeper Interview Series: Overcoming Barriers to Pursue A Passion for Filmmaking (Natalie)

    #BeyondHAE Digging Deeper Interview Series: Overcoming Barriers to Pursue A Passion for Filmmaking (Natalie)

    This month's BeyondHAE Digging Deeper Interview Series features HAEA Youth Leadership Council member Noah who interviews Natalie, a award winning filmmaker who has HAE. In this episode, Natalie talks about what it was like for her growing up with HAE, and how she pushed beyond her diagnosis to achieve her goal of becoming a filmmaker and starting a family. This is Natalie's story.

    This youth produced podcast is brought to you thanks to the support of the Hereditary Angioedema Association, a patient advocacy organization serving the needs of the HAE patient and caregiver community. To learn more about the HAEA and access our incredible support network, visit, ⁠www.haea.org⁠.

    Thank you to our sponsors ⁠BioCryst⁠ and ⁠Takeda⁠.

    • 38 min
    #BeyondHAE Digging Deeper Interview Series: Studying Abroad with HAE (Nathan)

    #BeyondHAE Digging Deeper Interview Series: Studying Abroad with HAE (Nathan)

    The #BeyondHAE Digging Deeper Interview series continues this month with our guest, Nathan who chats with HAEA Youth Leadership Council Member Noah about what it's been like for him growing up with HAE. Nathan joined us from his study abroad program in Switzerland where he is attending college. Nathan discusses what it's been like studying abroad with HAE and what he did to prepare for his time away from home. If you're thinking about traveling internationally or applying for a study abroad program, you won't want to miss this episode! This is Nathan's story.



    This youth produced podcast is brought to you thanks to the support of the Hereditary Angioedema Association, a patient advocacy organization serving the needs of the HAE patient and caregiver community. To learn more about the HAEA and access our incredible support network, visit, ⁠www.haea.org⁠.

    Thank you to our sponsors ⁠BioCryst⁠ and ⁠Takeda⁠.

    • 18 min

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