9 episodes

Stream or download the episode today by visiting www.BloodLinePod.com!
BloodLine is a BloodStream Media podcast series featuring deep dives into the stories that matter most. This three-episode series focuses on von Willebrand Disease, and features stories of people affected by vWD alongside interviews with clinical experts. 
The series is sponsored exclusively by Shire and is intended to reduce the marginalization of people w/ vWD, increase clinical and organizational focus on vWD, and to give a voice to the diverse experiences of patients and families affected by vWD. 
For more information on living with von Willebrand Disease please visit www.BeyondTheBleed.com 

BloodLine Podcast BloodStream Media

    • Health & Fitness
    • 4.3 • 12 Ratings

Stream or download the episode today by visiting www.BloodLinePod.com!
BloodLine is a BloodStream Media podcast series featuring deep dives into the stories that matter most. This three-episode series focuses on von Willebrand Disease, and features stories of people affected by vWD alongside interviews with clinical experts. 
The series is sponsored exclusively by Shire and is intended to reduce the marginalization of people w/ vWD, increase clinical and organizational focus on vWD, and to give a voice to the diverse experiences of patients and families affected by vWD. 
For more information on living with von Willebrand Disease please visit www.BeyondTheBleed.com 

    BloodLine—FVIII Inhibitors: The Next Chapter—Episode 3

    BloodLine—FVIII Inhibitors: The Next Chapter—Episode 3

    Presenting a NEW BloodLine podcast, “FVIII Inhibitors: The Next Chapter.” In our third episode, we speak to community members and advocates about their hopes for the future of FVIII inhibitor treatment as well as local and nationwide resources available to FVIII inhibitor patients.
    “FVIII Inhibitors: The Next Chapter” is a three-part podcast series looking at the current and future state of living with hemophilia A with factor VIII inhibitors.
    Special, huge thanks to our guests:
    Justin Levesque
    Dr. Guy Young
    Sue Geraghty
    Liz Purvis
    Eric Lowe
    Janet Brewer
    and Benjamin Denman
    BloodLine—FVIII Inhibitors: The Next Chapter is produced by me, Patrick James Lynch, and Ryan Gielen. Written by Ryan Gielen. Edited by Josh Davis. Produced at BloodStream Media's Los Angeles studio, and mixed by Michael Capuano at Icemen Sound.
    For more information on the podcast, visit our website at www.BloodLinePod.com.
    This series was produced by Believe Limited in collaboration with Genentech, the makers of HEMLIBRA® (emicizumab-kxwh).
    What is HEMLIBRA?
    HEMLIBRA is a prescription medicine used for routine prophylaxis to prevent or reduce the frequency of bleeding episodes in adults and children, ages newborn and older, with hemophilia A with or without factor VIII inhibitors.
    What is the most important information I should know about HEMLIBRA?
    HEMLIBRA increases the potential for your blood to clot. Carefully follow your healthcare provider’s instructions regarding when to use an on-demand bypassing agent or factor VIII, and the dose and schedule to use for breakthrough bleed treatment. HEMLIBRA may cause serious side effects when used with activated prothrombin complex concentrate (aPCC; FEIBA®), including thrombotic microangiopathy (TMA), and blood clots (thrombotic events). If aPCC (FEIBA®) is needed, talk to your healthcare provider in case you feel you need more than 100 U/kg of aPCC (FEIBA®) total.
    How should I use HEMLIBRA?
    • Stop (discontinue) prophylactic use of bypassing agents the day before starting HEMLIBRA prophylaxis.
    • You may continue prophylactic use of factor VIII for the first week of HEMLIBRA prophylaxis.
    What should I know about lab monitoring?
    HEMLIBRA may interfere with laboratory tests that measure how well your blood is clotting and may cause a false reading. Talk to your healthcare provider about how this may affect your care.
    The most common side effects of HEMLIBRA include: redness, tenderness, warmth, or itching at the site of injection; headache; and joint pain.
    These are not all of the possible side effects of HEMLIBRA. Speak to your healthcare provider for medical advice about side effects.
    You may report side effects to the FDA at (800) FDA-1088 or www.fda.gov/medwatch. You may also report side effects to Genentech at (888) 835-2555.
    Please see the HEMLIBRA full Prescribing Information and Medication Guide for Important Safety Information, including Serious Side Effects, here: bit.ly/2kp959s
    HEMLIBRA® is a registered trademark of Chugai Pharmaceutical Co., Ltd., Tokyo, Japan. The Genentech logo is a registered trademark of Genentech, Inc. © 2019 Genentech USA, Inc. All rights reserved. EMI/053019/0107e 07/19

    • 38 min
    BloodLine--FVIII Inhibitors: The Next Chapter---Episode 2

    BloodLine--FVIII Inhibitors: The Next Chapter---Episode 2

    Presenting a NEW BloodLine podcast, “FVIII Inhibitors: The Next Chapter.” In our second episode, we learn about the ten-year journey to bring HEMLIBRA® (emicizumab-kxwh) to market and take a deep look at the clinical trials of HEMLIBRA.
    “FVIII Inhibitors: The Next Chapter” is a three-part podcast series looking at the current and future state of living with hemophilia A with factor VIII inhibitors.
    Special, huge thanks to our guests:
    Justin Levesque
    Dr. Guy Young
    Sue Geraghty
    Liz Purvis
    Eric Lowe
    Janet Brewer
    and Benjamin Denman
    BloodLine—FVIII Inhibitors: The Next Chapter is produced by me, Patrick James Lynch, and Ryan Gielen. Written by Ryan Gielen. Edited by Josh Davis. Produced at BloodStream Media's Los Angeles studio, and mixed by Michael Capuano at Icemen Sound.
    For more information on the podcast, visit our website at www.BloodLinePod.com.
    This series was produced by Believe Limited in collaboration with Genentech, the makers of HEMLIBRA® (emicizumab-kxwh).
    What is HEMLIBRA?
    HEMLIBRA is a prescription medicine used for routine prophylaxis to prevent or reduce the frequency of bleeding episodes in adults and children, ages newborn and older, with hemophilia A with or without factor VIII inhibitors.
    What is the most important information I should know about HEMLIBRA?
    HEMLIBRA increases the potential for your blood to clot. Carefully follow your healthcare provider’s instructions regarding when to use an on-demand bypassing agent or factor VIII, and the dose and schedule to use for breakthrough bleed treatment. HEMLIBRA may cause serious side effects when used with activated prothrombin complex concentrate (aPCC; FEIBA®), including thrombotic microangiopathy (TMA), and blood clots (thrombotic events). If aPCC (FEIBA®) is needed, talk to your healthcare provider in case you feel you need more than 100 U/kg of aPCC (FEIBA®) total.
    How should I use HEMLIBRA?
    • Stop (discontinue) prophylactic use of bypassing agents the day before starting HEMLIBRA prophylaxis.
    • You may continue prophylactic use of factor VIII for the first week of HEMLIBRA prophylaxis.
    What should I know about lab monitoring?
    HEMLIBRA may interfere with laboratory tests that measure how well your blood is clotting and may cause a false reading. Talk to your healthcare provider about how this may affect your care.
    The most common side effects of HEMLIBRA include: redness, tenderness, warmth, or itching at the site of injection; headache; and joint pain.
    These are not all of the possible side effects of HEMLIBRA. Speak to your healthcare provider for medical advice about side effects.
    You may report side effects to the FDA at (800) FDA-1088 or www.fda.gov/medwatch. You may also report side effects to Genentech at (888) 835-2555.
    Please see the HEMLIBRA full Prescribing Information and Medication Guide for Important Safety Information, including Serious Side Effects, here: bit.ly/2kp959s
    HEMLIBRA® is a registered trademark of Chugai Pharmaceutical Co., Ltd., Tokyo, Japan. The Genentech logo is a registered trademark of Genentech, Inc. © 2019 Genentech USA, Inc. All rights reserved. EMI/053019/0107e 07/19

    • 37 min
    BloodLine--FVIII Inhibitors: The Next Chapter--Episode 1

    BloodLine--FVIII Inhibitors: The Next Chapter--Episode 1

    Presenting a NEW BloodLine podcast, “FVIII Inhibitors: The Next Chapter.” In our first episode, we meet patients from around the country who live with hemophilia A with factor VIII inhibitors and hear about their journeys first hand.
    “FVIII Inhibitors: The Next Chapter” is a three-part podcast series looking at the current and future state of living with hemophilia A with factor VIII inhibitors.
    Special, huge thanks to our guests:
    Justin Levesque
    Dr. Guy Young
    Sue Geraghty
    Liz Purvis
    Eric Lowe
    Janet Brewer
    and Benjamin Denman
    BloodLine—FVIII Inhibitors: The Next Chapter is produced by me, Patrick James Lynch, and Ryan Gielen. Written by Ryan Gielen. Edited by Josh Davis. Produced at BloodStream Media's Los Angeles studio, and mixed by Michael Capuano at Icemen Sound.
    For more information on the podcast, visit our website at www.BloodLinePod.com.
    This series was produced by Believe Limited in collaboration with Genentech, the makers of HEMLIBRA® (emicizumab-kxwh).
    What is HEMLIBRA?
    HEMLIBRA is a prescription medicine used for routine prophylaxis to prevent or reduce the frequency of bleeding episodes in adults and children, ages newborn and older, with hemophilia A with or without factor VIII inhibitors.
    What is the most important information I should know about HEMLIBRA?
    HEMLIBRA increases the potential for your blood to clot. Carefully follow your healthcare provider’s instructions regarding when to use an on-demand bypassing agent or factor VIII, and the dose and schedule to use for breakthrough bleed treatment. HEMLIBRA may cause serious side effects when used with activated prothrombin complex concentrate (aPCC; FEIBA®), including thrombotic microangiopathy (TMA), and blood clots (thrombotic events). If aPCC (FEIBA®) is needed, talk to your healthcare provider in case you feel you need more than 100 U/kg of aPCC (FEIBA®) total.
    How should I use HEMLIBRA?
    • Stop (discontinue) prophylactic use of bypassing agents the day before starting HEMLIBRA prophylaxis.
    • You may continue prophylactic use of factor VIII for the first week of HEMLIBRA prophylaxis.
    What should I know about lab monitoring?
    HEMLIBRA may interfere with laboratory tests that measure how well your blood is clotting and may cause a false reading. Talk to your healthcare provider about how this may affect your care.
    The most common side effects of HEMLIBRA include: redness, tenderness, warmth, or itching at the site of injection; headache; and joint pain.
    These are not all of the possible side effects of HEMLIBRA. Speak to your healthcare provider for medical advice about side effects.
    You may report side effects to the FDA at (800) FDA-1088 or www.fda.gov/medwatch. You may also report side effects to Genentech at (888) 835-2555.
    Please see the HEMLIBRA full Prescribing Information and Medication Guide for Important Safety Information, including Serious Side Effects, here: bit.ly/2kp959s
    HEMLIBRA® is a registered trademark of Chugai Pharmaceutical Co., Ltd., Tokyo, Japan. The Genentech logo is a registered trademark of Genentech, Inc. © 2019 Genentech USA, Inc. All rights reserved. EMI/053019/0107e 07/19

    • 39 min
    Hemophilia and Young Adulthood, Part 3 - Dating & Intimacy, Family, and Hope

    Hemophilia and Young Adulthood, Part 3 - Dating & Intimacy, Family, and Hope

    In Part 3 of BloodLine’s Hemophilia and Young Adulthood Series - our final episode - eight members of the Hemophilia Association of New Jersey (HANJ) give their perspectives on DATING & INTIMACY, how hemophilia plays a role in a young adult’s FAMILY, and what they HOPE for the future of the hemophilia community. This conversation was recorded live on January 17th at the Madison Hotel in Morristown, New Jersey and was co-hosted by BloodStream Media’s Natalie and Patrick James Lynch.
    Series Sponsor: Shire. Visit bleedingdisorders.com to find useful tools and resources for managing life with a bleeding disorder.
    Patient Organization Partner: The Hemophilia Association of New Jersey (HANJ). Learn more about HANJ and their mission by visiting http://hanj.org.
    National Hemophilia Foundation’s Chapter Directory.
    Hemophilia Federation of America’s Member Organizations Search Platform.
     
    BloodLine is a BloodStream Media podcast series featuring deep dives into the stories and topics that matter most to the bleeding disorders community. Subscribe to The BloodLine Podcast on iTunes (http://bit.ly/BloodLinePod) or visit BloodLinePod.com to stream or subscribe via links.  Find all of BloodStream Media’s podcasts for the bleeding disorders community by visiting BloodStreamMedia.com.
     

    • 21 min
    Hemophilia and Young Adulthood, Part 2 - Pushing Limits, Emotional Support, Pain Management, and Substance Abuse

    Hemophilia and Young Adulthood, Part 2 - Pushing Limits, Emotional Support, Pain Management, and Substance Abuse

    In Part 2 of BloodLine’s Hemophilia and Young Adulthood Series, eight members of the Hemophilia Association of New Jersey (HANJ) discuss PUSHING LIMITS and finding boundaries, the need for EMOTIONAL SUPPORT, various forms of PAIN MANAGEMENT, and troubling topic of SUBSTANCE ABUSE. This conversation was recorded live on January 17th at the Madison Hotel in Morristown, New Jersey and was co-hosted by BloodStream Media’s Natalie and Patrick James Lynch.
     
    Series Sponsor: Shire. Visit bleedingdisorders.com to find useful tools and resources for managing life with a bleeding disorder.
    Patient Organization Partner: The Hemophilia Association of New Jersey (HANJ). Learn more about HANJ and their mission by visiting http://hanj.org.
    BloodLine is a BloodStream Media podcast series featuring deep dives into the stories and topics that matter most to the bleeding disorders community. Subscribe to The BloodLine Podcast on iTunes (http://bit.ly/BloodLinePod) or visit BloodLinePod.com to stream or subscribe via links.  Find all of BloodStream Media’s podcasts for the bleeding disorders community by visiting BloodStreamMedia.com.

    • 30 min
    Hemophilia and Young Adulthood, Part 1 - Identity, Disclosure & Transitions

    Hemophilia and Young Adulthood, Part 1 - Identity, Disclosure & Transitions

    In Part 1 of BloodLine’s Hemophilia and Young Adulthood, eight members of the Hemophilia Association of New Jersey (HANJ) weigh in on the topics of IDENTITY as someone with a bleeding disorder; DISCLOSURE in school, professional, and social settings; and TRANSITIONS, such as those from high school to college, from college into the professional world, and from singledom to marriage. This conversation was recorded live on January 17th at the Madison Hotel in Morristown, New Jersey and was co-hosted by BloodStream Media’s Natalie and Patrick James Lynch.
    Series Sponsor: Shire. Visit bleedingdisorders.com to find useful tools and resources for managing life with a bleeding disorder.
    Patient Organization Partner: The Hemophilia Association of New Jersey (HANJ). Learn more about HANJ and their mission by visiting http://hanj.org.
    BloodLine is a BloodStream Media podcast series featuring deep dives into the stories and topics that matter most to the bleeding disorders community. Subscribe to The BloodLine Podcast on iTunes (http://bit.ly/BloodLinePod) or visit BloodLinePod.com to stream or subscribe via links.

    • 30 min

Customer Reviews

4.3 out of 5
12 Ratings

12 Ratings

Top Podcasts In Health & Fitness

Listeners Also Subscribed To