100 episodes

BloodStream is an entertaining and informational podcast for the bleeding disorders community. Each week, hemophilia patient Patrick James Lynch and former non-profit director Amy Board are joined by advocacy leaders, medical experts, and other guests to discuss the latest news, scientific advancements, policy initiatives, and so much more. Subscribe wherever you listen, or search BloodStream Podcast on YouTube to catch every episode there. Produced by Believe Limited. Presenting sponsor: Takeda.

BloodStream BloodStream Media

    • Mental Health
    • 5.0 • 32 Ratings

BloodStream is an entertaining and informational podcast for the bleeding disorders community. Each week, hemophilia patient Patrick James Lynch and former non-profit director Amy Board are joined by advocacy leaders, medical experts, and other guests to discuss the latest news, scientific advancements, policy initiatives, and so much more. Subscribe wherever you listen, or search BloodStream Podcast on YouTube to catch every episode there. Produced by Believe Limited. Presenting sponsor: Takeda.

    New mental health segment + listening to women w/ Jessica Lauren Richmond & Ijeoma Azubuko

    New mental health segment + listening to women w/ Jessica Lauren Richmond & Ijeoma Azubuko

    Patrick and Amy are joined by FLOW Podcast host Jessica Lauren Richmond to discuss assessing women’s health holistically and by Ruby Ball Foundation founder Ijeoma Azubuko to hear the harrowing story that led to her foundation’s innovative work. We also debut our new Let’s Talk mental health segment, featuring key moments from and expert insights into the Believe Limited documentary by the same name profiling mental health challenges in the bleeding disorders community.



    Notes:
    PRESENTING SPONSOR: Takeda - bit.ly/TakedaBDsite
    LET’S TALK SEGMENT SPONSOR: Sanofi Genzyme - http://bit.ly/LetsTalkMHBSP
     
    SUBSCRIBE to BloodStream on Apple Podcasts - bit.ly/BSPAP
    CHECK OUT all our stuff:  bit.ly/AllBloodStreamStuff
     
    FLOW Podcast: http://bit.ly/FLOWpod
    Ruby Ball Foundation: http://bit.ly/RubyBallIG
    Silent Podcast: http://bit.ly/SilentPodcastRBF

    • 42 min
    Remembering Adam, World Hemophilia Day + USP7’s Bo Bigelow

    Remembering Adam, World Hemophilia Day + USP7’s Bo Bigelow

    Amy and Patrick speak with students at Brown University who’ve been working with Save One Life in honor of World Hemophilia Day, and USP7 Foundation Chairman Bo Bigelow joins to discuss important news in the USP7 world on the heels of Hao-Fountain Syndrome Awareness Day. 
     
    Notes:
    PRESENTING SPONSOR: Takeda - bit.ly/TakedaBDsite
     
    SUBSCRIBE to BloodStream on Apple Podcasts - bit.ly/BSPAP
    CHECK OUT all our stuff:  bit.ly/AllBloodStreamStuff
     
    Breaking Through: https://bit.ly/3smEGpN
    Teen Impact Awards: https://bit.ly/2Q9zXue
     
    Help Save One Life: https://bit.ly/3elfs6f
     
    Stronger Every Day Podcast: https://bit.ly/3tmui2v
    USP7 Foundation: https://bit.ly/2Q6oEmH
    DISORDER Rare Disease Film Festival: https://bit.ly/3gcv7qK

    • 42 min
    Progress for women, bullying, and My Beautiful Stutter director Ryan Gielen

    Progress for women, bullying, and My Beautiful Stutter director Ryan Gielen

    Amy and Patrick review MASAC’s new recommendations for women with bleeding disorders, provide an important update on a recent clinical trial investigation, and discuss bullying during COVID.  Then filmmaker Ryan Gielen joins to talk about his new documentary, My Beautiful Stutter, now streaming on discovery+.
     
    Notes:
    PRESENTING SPONSOR: Takeda - bit.ly/TakedaBDsite
     
    MY BEAUTIFUL STUTTER: http://bit.ly/MBSLetMeSpeak
     
    SUBSCRIBE to BloodStream on Apple Podcasts - bit.ly/BSPAP
    CHECK OUT all our stuff:  bit.ly/AllBloodStreamStuff
     
    American Rescue Plan (ARP) info from NHF: http://bit.ly/NHFARP2021
    Gene Therapy Clinical Trial Investigation: http://bit.ly/GTinvestigation2021
    MASAC recommendations for women: http://bit.ly/MASACwomen
    Cyberbullying in India: http://bit.ly/CyberIndia2021

    • 42 min
    Patient advocates Delisa O’Brien & Laurence Woollard on curative therapies, COVID & patient education, and “the lost generation”

    Patient advocates Delisa O’Brien & Laurence Woollard on curative therapies, COVID & patient education, and “the lost generation”

    Lunula Nutrition’s Delisa O’Brien joins Amy and Patrick to discuss our relationship to exercise and curative therapies. Then, Laurence Woollard joins to discuss his recent articles, one on adolescent transitional healthcare, the other on COVID-19’s impacting patient education through social media.
     
    Notes:
    PRESENTING SPONSOR: Takeda - bit.ly/TakedaBDsite
     
    Check out how to customize your exercise routine with Takeda at http://bit.ly/LivingHealthyBD



    Delisa O’Brien - Lunula Nutrition Consulting
    http://bit.ly/DelisaOnNutrition
    http://bit.ly/DelisaOnTwitter
     
    Laurence Woollard - On The Pulse Consultancy 
    http://bit.ly/LaurenceInPEN
    http://bit.ly/LaurenceInRareRev
    http://bit.ly/LaurenceOnTwitter
     
    SUBSCRIBE to BloodStream on Apple Podcasts - bit.ly/BSPAP
     
    CHECK OUT all our stuff:  bit.ly/AllBloodStreamStuff

    • 1 hr 11 min
    Closing Word with NHF CEO, Dr. Len Valentino

    Closing Word with NHF CEO, Dr. Len Valentino

    Long-time physician and advocate of our community, NHF CEO, Dr. Len Valentino shares what this month of awareness means to him and what we can expect from the National Hemophilia Foundation in the months and years to come. We hope you felt celebrated and inspired during this month of awareness. From all of us at Bloodstream, we loved being with you during Bleeding Disorders Awareness Month!
     
    Learn more about how you can get involved during Bleeding Disorder Awareness Month with NHF: https://www.hemophilia.org/give/join-us/bleeding-disorders-awareness-month
    Show your pride for Bleeding Disorders Awareness Month with these resources from HFA: https://www.hemophiliafed.org/for-patient-families/meetings-events/bleeding-disorders-awareness-month/ 
     

    • 4 min
    World Hemophilia Day and Global Health (Spanish Language Episode)

    World Hemophilia Day and Global Health (Spanish Language Episode)

    Today we are traveling to the Caribbean island of the Dominican Republic with our guest, Dr. Ana Yolanda Santos, to celebrate World Hemophilia Day. To honor the language of the people of the Dominican Republic, the conversation in this episode is completely in Spanish. Dr. Ana Yolanda shares her migration story to the United States, what life is like in the DR for people with bleeding disorders, and what we can learn from the Dominican people to enhance the quality of life for the bleeding disorders community in the United States. 
     
    To connect with Dr. Ana Yolanda Santos: dra.yolandasbj@gmail.com 
    Learn more about how you can get involved during Bleeding Disorder Awareness Month with NHF: https://www.hemophilia.org/give/join-us/bleeding-disorders-awareness-month
    Show your pride for Bleeding Disorders Awareness Month with these resources from HFA: https://www.hemophiliafed.org/for-patient-families/meetings-events/bleeding-disorders-awareness-month/ 

    • 10 min

Customer Reviews

5.0 out of 5
32 Ratings

32 Ratings

Anthony "The Puma" ,

Great Listen!

Excellent podcast, super informative, and bursting with personality!

Wahnaaaay ,

What this community needed!

So smart, informative and enjoyable!

MK959 ,

Informative

An excellent way to keep up with national news related to the bleeding disorders community. Super engaging and informative: not too long either!

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