A dynamic podcast exploring the different experiences people with cystic fibrosis may face during their lives. Gunnar Esiason joins Tiffany Rich and Lea Faraone, otherwise known as the Salty Cysters, to talk about the in's and out's of cystic fibrosis from some of the anxieties and stresses that patients face to some of the lighter sides of the disease. Breathe In: A Cystic Fibrosis Podcast aims to characterize the disease in a positive way while showcasing the challenges that people with cystic fibrosis face and the people who face them.
Breathe In #98 - The Legal Marriage Question
This week on Breathe In, Tiffany is on her own again while Gunnar battles his way through final exams. Tiffany is joined by a new voice on the podcast, Holly Seay, 24, from Georgia, a newlywed with CF. Holly takes us through her life with CF and how she met her now husband. Prior to their wedding, Holly and her now husband never lived together. Holly talks about the adjustment period and how her husband has acclimated to the CF life. She gives advice to those that are wanting to get married. The podcast ends with Holly and Tiffany's recommendations for the week.
Breathe In #97 - Misdiagnosed
On this episode of Breathe In, Gunnar takes the day off and Tiffany takes over with a returning guest, Audrey Kostelec, 23 from Washington State. You may remember Audrey from the emergency podcast we had on FaceBook Live in March. This time we talk about Audrey and her CF journey. Audrey explains how she was misdiagnosed and has recently been placed on disability. The two chat about how being on disability has helped Audrey's health in a positive way. They end the podcast with the usual fun recommendations segment (Girly ones, sorry guys!). You won't want to miss this episode!
Breathe In #96 - The Triple Combo
A mere few days following the FDA's approval of Trikafta, cystic fibrosis patients across the United States began dosing. This week's podcast looks back at Gunnar's time in the triple combo study. Think of this podcast as a follow to Gunnar's blog over on GunnarEsiason.com. Gunnar talks about both the immediate and long term affects of having been on the medication and what his hopes are for the CF community. Gunnar and Tiffany reaffirm the scientific community's commitment to a treatment for the final 10% of CF patients and a cure for all CF patients.
Breathe In #95 - Breathe In Fall
Gunnar and Tiffany welcome back the podcast after a brief (unplanned!) hiatus. Tiffany announces that she started working a new job and has begun living out her goal of working full time. Gunnar talks about fighting through a round a midterms in the first quarter MBA term. The duo chat about getting their flu shots, why CF community members must adhere to flu shot recommendations from the CDC and how patients and families can be proactive during peak cold and flu season.
Breathe In #94 - Self Care
After a few weeks off, Gunnar and Tiffany return to the podcast with Gunnar's girlfriend, Darcy. This time, though, Darcy puts on her social worker hat and takes the podcast through a clinical lens into the world of self care. It's established early on in the podcast that self care is a bit of a misnomer these days because of Instagram, while Darcy actually defines it as doing things that are often uncomfortable or that we avoid, and ultimately contribute to bettering our minds, bodies and spirits. The podcast is then broken down into seven buckets:
1) Saying No
2) Accepting Help
3) Practicing Self Compassion
4) Letting go of what you can't control
5) Making time for things or people that are important
6) Setting boundaries with people that bring you into their drama or dysfunction
7)Making a long list of short term and long term goals
Breathe In #93 - Pregnancy With Low Lung Function
Tiffany is joined by Ashlee Terwilliger, 35, with cystic fibrosis and a double lung transplant survivor. The two talk about Ashlee's life growing up and how becoming a teacher affected her health and how she handled all the germs. As her health declined, she became pregnant and Ashlee takes us through being pregnant and labor with a low lung function and then ultimately needing to have a lifesaving double lung transplant. They end the podcast with awesome recommendations and advice for those wanting to have a child. You won't want to miss this!
Customer ReviewsSee All
This is the best podcast I’ve ever listened to. I want to do research on cystic fibrosis because I think it’s interesting to me.
Upbeat informative podcast about life with cf
A well-done podcast hosted by young adults with cystic fibrosis. Topics range from “How to have a social life with cf” to information on new drug treatments. I began listening to this podcast after my 3-yr-old granddaughter’s cf diagnosis - to give me an idea of the cf-unique challenges she will face, physically and emotionally, as she grows up. The cf Community is amazing and I am so extremely impressed by the adults in their 20’s and 30’s and 40’s who balance full and busy lives with time consuming cf self-care and also take time to reach out and support each other.
This podcast is a good resource for anyone in the cf community - patients and their families. I also see it as a great educational tool for the general public, as people living with cf live longer, healthier, more social
lives, with careers and families of their own. Great job, G, T, & L!!!
Best CF podcast
This is the best cystic fibrosis podcast! Both hosts are very knowledgeable. Although, CF is a very serious disease, they have a way of bringing some light and joy to it which it makes it easy and fun to listen to!