44 min

Bringing Innovation and Hope to Alzheimer's and Dementia Care: Eleonora Tornatore-Mikesh, Stephani Shivers and Dr. Anne Kenney of CaringKind Raise the Line

    • Medicine

Promising research, a growing respect for the patient voice and innovative ways of using technology to support patients might be adding up to a new reality of Alzheimer’s and other dementias being experienced as chronic diseases like some cancers are now considered to be. We’re going to learn about that trend and other positive developments in the space on this special episode of Raise the Line with the leaders of CaringKind - one of the nation’s premier organizations focused on Alzheimer’s and dementia caregiving - who took time out from preparing for its annual gala on June 3 for an in-depth discussion of what’s new, what’s coming and what’s most important for the individuals and families affected by dementia. One welcome theme is that the voices of those with lived experience are being given more weight. “We're going to see more grassroots-driven change where people living with dementia are not just participants in research, but they are partners in research, and they’re actually pushing policy change," says Chief Innovation Officer Stephani Shivers. Tune in as host Michael Carrese explores advancements in diagnostics and research with CaringKind adviser Dr. Anne Kenney; gets briefed on a new Medicare pilot program from Stephani; and learns about the “Forget-Me-Not” gala -- which includes dancing robots -- from CEO Eleonora Tornatore-Mikesh. “For the gala, we're really excited about weaving in the work that we're diving into in the next couple of years to ‘connect to living’ -- to culture and music, people, science and services. Being able to utilize technology to bring joy and socialization back to your life is part of that.” This is a revealing look at the current and future state of caregiving for diseases that are affecting a rapidly growing number of Americans and their families.

Mentioned in this episode: https://www.caringkindnyc.org/gala/

Promising research, a growing respect for the patient voice and innovative ways of using technology to support patients might be adding up to a new reality of Alzheimer’s and other dementias being experienced as chronic diseases like some cancers are now considered to be. We’re going to learn about that trend and other positive developments in the space on this special episode of Raise the Line with the leaders of CaringKind - one of the nation’s premier organizations focused on Alzheimer’s and dementia caregiving - who took time out from preparing for its annual gala on June 3 for an in-depth discussion of what’s new, what’s coming and what’s most important for the individuals and families affected by dementia. One welcome theme is that the voices of those with lived experience are being given more weight. “We're going to see more grassroots-driven change where people living with dementia are not just participants in research, but they are partners in research, and they’re actually pushing policy change," says Chief Innovation Officer Stephani Shivers. Tune in as host Michael Carrese explores advancements in diagnostics and research with CaringKind adviser Dr. Anne Kenney; gets briefed on a new Medicare pilot program from Stephani; and learns about the “Forget-Me-Not” gala -- which includes dancing robots -- from CEO Eleonora Tornatore-Mikesh. “For the gala, we're really excited about weaving in the work that we're diving into in the next couple of years to ‘connect to living’ -- to culture and music, people, science and services. Being able to utilize technology to bring joy and socialization back to your life is part of that.” This is a revealing look at the current and future state of caregiving for diseases that are affecting a rapidly growing number of Americans and their families.

Mentioned in this episode: https://www.caringkindnyc.org/gala/

44 min