Bruised Not Broken: Life with Glanzmann's Thrombasthenia Glanzmann's Research Foundation
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We focus on everything and anything Glanzmann's Thrombasthenia. From treatments to community spotlights, experts, and of course, the most current updates on the cure. The GRF podcast is sure to have something of interest to the GT community. Please visit our website at curegt.org and consider donating to help us continue our efforts to find a cure.
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Lauren's Adoption Journey: Parenthood with Glanzmann's Thrombasthenia
In the latest episode of "Bruised Not Broken: Life with Glanzmann's Thrombasthenia," Melissa Zdziarski and guest Lauren Hurley share their heartfelt stories of navigating motherhood while affected by GT. Lauren, a GT patient from Massachusetts, recounts her lifelong battle with Glanzmann's Thrombasthenia and her determination to become a mother through adoption. The episode explores the complexities of the adoption process, touching on emotional challenges, financial considerations, and the s...
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Resilience with Glanzmann's Thrombasthenia: Robie’s Story
In this podcast, host Taylor and guest Robie share a heartfelt conversation about Glanzmann's Thrombasthenia, a rare genetic bleeding disorder. They discuss Robie's journey, struggles, surgeries, and life lessons. The dialogue covers adapting to the disorder, family decisions, and not letting it limit one's life. Want to Sponsor the Podcast? Contact Us Here Have GT? Join Our Support Group Visit Our Website
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Young Adults & Teens with Glanzmann's Thrombasthenia
WE'RE BACK!!! After a brief hiatus while planning and organizing the 2023 GRF Conference, Bruised Not Broken: Life with Glanzmann's Thrombasthenia is back. This episode is slightly different than other episodes, and that's because not only were we able to record it together in person, but we sat around a table and just had a conversation about growing up with GT, transitioning to adulthood, and looking toward the future. Want to Sponsor the Podcast? Contact Us Here Have GT? Join Our Sup...
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Gene Therapy, Haemnet & Glanzmann's Thrombasthenia
Taylor and Peter chat with Luke Pembroke from Haemnet. Luke is the Director of Community Engagement with Haemnet and spearheads their podcast, Haemcast. Haemnet is a specialist research and communications consultancy in the bleeding disorder community. You might be familiar with their name; they conducted the Glanzmann's 360 survey. It was during a podcast interview about the Glanzmann's 360 survey with Luke and their Director of Research, Kate Khair, that Peter and Taylor discovered tha...
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Diagnosing Glanzmann's Thrombasthenia
April’s episode of Bruised Not Broken: Life with Glanzmann’s Thrombasthenia features Dr. Alan Michelson.Dr. Michelson’s achievements throughout his almost 50-year career in medicine are numerous. He is currently Professor of Pediatrics and Medicine, Emeritus at Harvard Medical School. He also serves as the Center for Platelet Research Studies’ Director Emeritus. He was formerly the Director of the Thrombosis and Anticoagulation Program at Dana-Farber/Boston Children’s Cancer and Blood Disorde...
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A Glanzmann's Thrombasthenia Patient's Advocacy Journey
Esme Vazquez found her calling in life through her work in occupational therapy. She believes having Glanzmann's Thrombasthenia helps her empathize and better care for the children she works with. Advocating for her patients became a passion that spilled over into her personal life and fueled her drive to advocate for the voiceless in her world of ultra-rare bleeding disorders.In a short time, she has become a champion for those underserved and is making waves in the national bleeding disorde...