To celebrate Epilepsy Awareness Month, Greg sits down with mother, caregiver and author Kelley Coleman to talk about navigating through scary and uncharted waters after a difficult diagnosis. Kelley is the mother of two boys, and her youngest, Aaron, developed an undiagnosed genetic syndrome in addition to epilepsy, autism, cerebral palsy, cortical vision impairment, microcephaly, and motor/ sensory disabilities. Over the years of her preparation, planning and persistence, she developed systems, lists and how-to’s that she is now publishing as a practical guidebook for all parent caretakers to follow entitled Everything No One Tells You About Parenting a Disabled Child: Your Guide to the Essential Systems, Services and Supports. They also discuss motherly instincts and persistence with medical professionals, how she manages her self-care as a caretaker of others, and of course… Venus fly traps! We also get a bonus visit from a few celebrity friends who have very special messages for all caretakers this month.
The Talk About It podcast is sponsored by Seizures Are Signs — dedicated to educating families on the importance of early and specific diagnosis by providing an assessment to help get the conversation started, educational information, stories from families who have found a diagnosis, links to advocacy groups, and more. For more information, go to SeizuresAreSigns.com. Seizures are Signs is made available by Jazz Pharmaceuticals
Information
- Show
- FrequencyUpdated Bimonthly
- PublishedNovember 22, 2023 at 4:05 PM UTC
- Length45 min
- Season3
- Episode8
- RatingClean