Cerebral Palsy is a complex health condition that impacts each individual differently. As a result, finding information about what might help improve function, increase participation, and achieve health and lifestyle goals can be difficult. This podcast is a place for conversations with experts about issues related to cerebral palsy that affect health, fitness, function and participation. We will cover a range of topics including: treatments and therapies, nutrition, neuroplasticity, genetics, exercise and fitness, adaptive sports, accessibility, and new trends.
Cerebral Palsy Health. Sarah Storck and David Stoner - Disability and Employment
On this episode, Jen talks with Sarah Storck, a Vocational Rehabilitation Counselor and Work Incentives Practioner, and David Stoner, a writer and an individual with Cerebral Palsy who has utilized the services discussed. They talk about the process of working with vocational rehabilitation, support during employment and mechanisms to help ensure that you can keep your benefits even while earning an income.
Noam Platt: Makers Making Change Assistive Technology
In this episode, Jen talks with healthcare architect Noam Platt about Makers Making Change, an organization that is creating affordable assistive technology for individuals with disabilities. They discuss how this program works, types of assistive tech that are being made to order, as well as tech designs that can be downloaded and made at home. Additionally, they discuss 3D printing, generative design and resources to learn more.
Theresa Sukal Moulton, PT, DPT, PhD and David Black: Frame Running - A cerebral palsy adaptive and recreational sport
Jen talks with physical therapist and cerebral palsy researcher Theresa Sukal Moulton and Frame Runner manufacturer/vendor David Black of RAD Innovations about the recreational and adaptive sport of Frame Running. A Frame Runner is an adaptive running frame that looks similar to a bike without pedals which allows individuals with CP run or walk with minimal to no assistance. They discuss the history of Frame Running, who can participate, how it works, research to support it and how to get involved.
Wendy Pierce, MD: What Does a Physiatrist Do Anyway?
On this episode, I have the honor of talking with Wendy Pierce, MD, a pediatric physiatrist at Colorado Children's Hospital about physiatry, also known as Physical Medicine and Rehabilitation. This fantastic field of medicine can be great for individuals with cerebral palsy across with lifespan, but it has a confusing name and sometimes a confusing job description. So we set out to help listeners better understand what a physiatrist does.
Iona Novak, PhD and Madison Paton, PhD: What's the Deal with Stem Cells Anyway?
On this episode I talk with Dr. Iona Novak and Dr. Madison Paton, two of the world's leading researchers about stem cell treatment for cerebral palsy. Stem Cells are a hot topic in cerebral palsy with many parents and researchers hoping that at the least, stem cells will lessen the impact of CP and at most hold the key to a cure. Dr. Paton and Dr. Novak will share their insider knowledge into this subject and help us sort through the hype and so we can hold onto our hope.
Amy Bailes, PhD, PT, PCS: ABC's of CP- GMFCS and GMFM
On this episode with Dr. Amy Bailes, we discuss the Gross Motor Functional Classification System (the GMFCS), the Gross Motor Functional Measure (the GMFM). The GMFCS is an important classification system that is relatively easy to understand and it helps create a shared language and framework for understanding a person with CP’s physical function. This can be very helpful for patients, families and providers, especially as it relates to acceptance of the diagnosis.