Complex Regional Pain Syndrome Invisibility By Ciardha

Complex Regional Pain Syndrome (CRPS) Is poorly understood. CRPS is one of the highest pain & inflammatory diseases known carrying a 42/50 in the McGill pain scale. CRPS usually occurs after an injury. There is no simple cure or single treatment recommendations, it requires a multidisciplinary approach to help manage. 

CRPS has also been described as an “invisible” condition. People diagnosed with CRPS look perfectly healthy on the outside, nevertheless they are suffering from severe, life-altering chronic pain on the inside.  

The approximate overall incidence rate of CRPS was 26.2 per 100,000 person years with females affected at least three times more often than males. The highest incidence occurred in females aged 61-70 years.   

For newly diagnosed patients, it was found in research that one-year prior to diagnosis for all CRPS patients spent total costs of $7904 outpatient costs $6706 and pain prescription costs $1862-$7649. At the year of CRPS diagnosis, the median [IQR] costs were significantly higher than the baseline costs with a range of $8508-$16,666; outpatient costs $7251-$13,568; and pain prescription costs $2077-$8856. Over an eight-year period after CRPS diagnosis, costs between all the years ranged from the highest (one-year) to lowest (seven-years), $4845 to $3888.   

 

CELEBRITIES WITH CRPS 


 Paula Abdul; American singer and dancer. Former judge on American Idol 


Constance Marley; half-sister to Reggae singer Robert ‘Bob’ Nesta Marley 


Barby Ingle; the head spirit program coach at Washington State University 


Toria Sullivan; collegiate triathlete at Georgetown University 


George Clooney; American actor 


Nazair Jones; Seattle Seahawks  


Maria Cross; American Actress 




David Beckham; former professional soccer player and international icon 


Nicole Kidman, American Actress 


Jo Whiley; British Radio DJ and television presenter 


Soumitra Chatterjee; a legendary Indian actor 



 

SUPPORT/RESOURCES 


Women & CRPS - cordiscosaile.com/crps-resource-for-women-and-veterans 


Trial by Fire A film about a rare disease (CRPS) https://youtu.be/B_ocn8Pcsxo?si=GRpCqGV79f33v4Pd 


The CRPS Warriors Foundation https://hubs.ly/Q01ZYHlt0 


International Pain Foundation; https://internationalpain.org/ 


CRPS UK https://painuk.org/members/charities/crps-uk/ 


CRPS Facebook Group https://www.facebook.com/groups/2307309606/ 


The Purple Bucket Foundation https://www.tpbf.org.au/


London Pain Clinic https://www.londonpainclinic.com/complex-regional-pain-syndrome/living-with-complex-regional-pain-syndrome-a-guide-for-friends-and-family/ 



Chronic Regional Pain Syndrome there is nothing to be seen, apart from sometimes goose bumps or swelling. 

Remember, CRPS is a enfeeble and difficult condition so for those supporting someone with CRPS make sure that they talk to their friends and family as well, to express their emotions and fears, so that they can be more equipped to support the person with CRPS, even when it can be a very hard task at times. 

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"Invisible No More: Open eyes, open minds" 

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