Connecting ALS is a weekly podcast produced by The ALS Association in partnership with CitizenRacecar. We aim to discuss research and technology developments, highlight advocacy efforts, and share the personal stories woven through the community.
"Holidays With ALS..."
Welcome to Connecting ALS. This week, Jeremy is joined by Dr. Heidi Tarr Henson, a life coach and consultant who was diagnosed with ALS in 2021, who discusses in-the-moment advocacy, teachable moments and the power of setting boundaries with ourselves and others.
"Supporting Family Caregivers..."
Welcome to Connecting ALS. This week, Jeremy is joined by guest co-host Ken Paves to dig into some of the challenges of being a caregiver and Nancy LeaMond from AARP to talk about some of the ongoing public policy fights that will provide additional support for family caregivers.
"Moving ACT for ALS in Congress…"
Welcome to Connecting ALS. This week, Jeremy is joined by guest co-host Ashely Smith, The ALS Association’s Director of Advocacy, and talks to Rep. Mike Quigley (D-Ill.) to discuss the unanimous subcommittee vote to advance ACT for ALS in the House.
"Family Caregivers Month..."
Welcome to Connecting ALS. This week, Jeremy is joined by guest co-host Steve Becvar, Ann Larson, and Jennifer Myhre to kick off National Family Caregivers Month.
"Developing New Drugs…"
Welcome to Connecting ALS. This week Jeremy is joined by guest co-host Dr. Kuldip Dave and Dr. Daniel Elbaum to dig into the Lawrence and Isabel Barnett Drug Development Program.
"Genetic Counseling and Testing…"
Welcome to Connecting ALS. This week, Jeremy is joined by guest co-host Dr. Jill Yersak and Ellie Harrington to discuss the benefits of genetic counseling and learn more about some of the common questions that are answered in a genetic counseling session.
Great coverage of current ALS topics
The Connecting ALS podcast covers current topics and issues impacting the ALS community. I found it to be very professionally done and informative. They do a nice job of covering a variety of conversations that are timely for those living or caring for someone with ALS.
Much Needed Podcast
In an increasingly cluttered field of podcasts with similar approaches and topics, Connecting ALS stands apart for its focus and excellence in production. It's a fantastic effort from the ALS Association that is much needed by the community and I am so grateful it exists. Cannot wait for the next episode! Keep up the great work!