Crohn’s Fitness Food Podcast is dedicated to raising awareness, sharing IBD stories, and offering support for those with Crohn’s & Colitis. If you’re going through your own IBD journey or are a family member supporting someone with this disease, I hope you find inspiration, confidence, and community through this podcast. Together we can share knowledge, experiences, and help show the world the many faces of IBD.
Heather Hausenblas, PhD: Mother of a Crohn‘s Warrior and Author (E66)
In today’s episode, Heather Hausenblas, PhD, shares her perspective and story as a mother of a son with Crohn’s Disease. Her son, Tommy, was diagnosed three years ago at the age of 16. Heather shares how she helped navigate his health and ultimately chronicled their journey in her new book, Invisible Illness: An Insider’s Guide to Eliminating Overwhelm and Rediscovering the Path to Health and Happiness with an Autoimmune Disease.
In this episode, she shares tips for parents who have children with IBD, cooking for a family, and journaling to track health and patterns. She is passionate about getting people talking about IBD and being more open to sharing their stories to help prevent others from suffering in silence for so long before seeking help.
Learn more about Heather and sign up for her weekly newsletters, including recipes and research, at:
Purchase her book on Amazon at:
Stephanie Gish solocast (E65)
It’s been a while, but I’m back with another solocast episode of the podcast. I wanted to share a quick peek into what life has been like during the past year for me from working at home, my morning routine with Crohn’s, and balancing life and fitness with fatigue to my recent kidney biopsy. I plan to connect with more of my fellow IBD warriors and bring you all more podcast interviews to listen to, but until then, I hope you enjoy this quick solocast.
Angela Spaulding: Crohn's Warrior & Runner (E64)
In today’s episode, Angela Spaulding shares her 16-year journey with Crohn’s Disease. Diagnosed in her early 20s, she spent many years angry–angry at the diagnosis, at the disease, at the world–and in denial. Like many others, she was forced to navigate the highs and lows of Inflammatory Bowel Disease and eventually found humor as a way to help shift her perspective.
Over the years, Angela quickly learned that stress is a major trigger for her Crohn’s flare ups. She was on and off medications for the first few years, but never wanted to stay on them long term. Though she did well for a few years and stayed in remission after stopping medications, in 2010 she found herself in the hospital and facing surgery.
In the hospital, the doctors found that her appendix was close to rupturing and scheduled her for an immediate appendectomy. The surgery went well, but she wasn’t recovering as expected. After a couple days in the hospital, she was taken back into surgery where the doctor found that a fistula had been connecting her colon to both her appendix and small intestine. When the doctor removed her appendix during the original surgery, he had unknowingly broken the connection to the fistula, which was allowing its contents to leak and make her sick. Having made a larger incision this time, the doctor found that 19” of her small intestine were badly diseased and removed it.
After surgery, the road to recovery was long. She had lost a lot of weight and all of her core strength. Describing her recovery process, Angela shared what it was like learning to eat without fear, how walking was the foundation for her recovery, and how discovering her love for running gave her strength. Running, she found, was not only a physical release for anxiety and stress, but also gave her a much needed mental break by giving her the time and space to clear her head.
Since 2011, she’s been off medications and she’s been in remission for the past couple of years. She’s learned to work with her body, navigate through mini flare ups, and find peace in the present moment. It’s taken time, but over the years she’s also learned to shift her mindset from being angry at everything to one of positivity. Though she admits that some days it felt like one step forward and two steps back, gradually her outlook shifted and she’s learned to focus on the good things in life while using humor to help her get through the difficulty of IBD. “We’re not always OK,” she said, but that’s what makes her more grateful for the times that she is.
Follow Angela on Instagram: @wanna.be.runner
Shelly Sulfrain: Ulcerative Colitis Warrior (E63)
In today’s episode, 12-year Ulcerative Colitis Warrior Shelly Sulfrain shares her IBD journey and how an ileostomy gave her back her life. At the age of 29, Shelly was working as a pharmacist and enjoying life, having just finished school. Then, her first symptom of blood in her stool led her to a trip to the emergency room. It took a few more visits to her primary care doctor and eventually a gastroenterologist to finally diagnose Ulcerative Colitis. From there, she faced a number of highs and lows as she cycled through medications and faced life-threatening side effects throughout the course of her journey.
Over the years, Shelly found brief periods of remission, but ultimately kept finding herself back in a flare and struggling to keep the symptoms away. She battled one major flare right before her wedding and found remission on Imuran while she carried her baby. But, after delivering a healthy baby boy, she went into her worst flare yet and was started on Remicade. Four years later, she experienced a life-threatening side effect.
The brain fog she developed and difficulty in finding the right words were a result of her neurons not functioning properly; a rare side effect of Remicade. It also meant there was a chance that she might only have a few months to live. While an MRI confirmed that she was not facing death, the damage that had been done was not reversible.
Her options for medications were dwindling and, for Shelly, it was a sign that the disease was getting worse and that it was winning. She went on to try Entivyo, Humira, and Xeljanz, but nothing worked. By this point, she was in a bad place emotionally and mentally and she leaned into meditation, prayer, and journaling to help her cope with the anxiety, stress, and depression.
Finally, her doctor suggested surgery. While she dismissed the idea at first, after reaching out to a number of different ostomy advocates on Instagram, she was ready to consider it. She gave one last effort to exhaust all non-surgical options and sought the help of a functional medicine doctor. After she still couldn’t find relief, she was ready for surgery. Though she faced a number of complications after her first j-pouch surgery, a year later Shelly had an ileostomy and today is living life to the fullest. She’s gained a lot of insight over the years and although times may get tough and bleak, she recognizes that having a positive outlook is vital and encourages others to remember that they are not alone.
Follow Shelly on Instagram at:
Logan Crumrine: Disability Process and IBD (E62)
In today’s episode, Logan Crumrine, a Crohn’s Warrior for nearly 30 years, joins me for an open and honest conversation about the disability process. Logan shares his experience of filing for disability due to Crohn’s Disease, shedding light on the entire process and answering many questions submitted by our listeners.
Logan’s IBD journey began 30 years ago as a teenager. But, after his initial flare and diagnosis, he went almost 20 years without a flare up and stayed in remission. Eight years ago, however, things changed and it was the start of an ongoing flare that eventually led him to file for and receive disability. You can hear Logan’s full story in episode 29 or listen directly here (update: Logan was declared to be in clinical remission this past June 🙌).
In 2012, Logan’s Crohn’s Disease had progressed so quickly, he had to quit work and in 2013 he and his wife began the journey of filing for disability. The first step: going to the Social Security Administration’s (SSA) website to file (https://www.ssa.gov/benefits/disability/). Then, as Logan describes it, you wait. This is probably the mentally toughest part of the process as the wait is not short. It took five months for Logan to receive a decision after filing, which turned out to be a rejection letter. Unable to work and describing himself as barely existing by this point, Logan’s thought was, “how sick do I need to be?”
The next step, after receiving the initial rejection, was to file an appeal with the SSA. But, unfortunately for Logan, the appeal resulted in another rejection letter that came almost six months later. Looking back on his journey with the perspective of having gone through it, Logan shared that he didn’t handle the waiting and stress very well, especially after having spent the previous 20 years in remission. He was hit with depression and his wife and sons, in addition to faith, helped him get through. If he had to go through it again, he said, and for anyone else facing the same situation, he shared that he would seek counseling at the onset to have a connection point and to better understand what he was experiencing.
The final step in seeking disability, for Logan, was to appeal to an administrative law judge. Logan explains that with the SSA, you basically have two chances to receive disability: the initial filing and the appeal. After that, you have to appear before an administrative law judge; this is the final course of action to continue in the process after receiving both rejections from the SSA. This is when Logan chose to hire a lawyer to help him through the process of appearing before a judge.
The first few months after hiring a lawyer was focused on data collection, including medical records, work history, and character information. It was a process that Logan described as invasive! Finally, once all the information was collected, it went into a case file that was given to the judge. And once again, there was a lot waiting before receiving a hearing date to appear in front of the judge at the federal courthouse.
On the day of the hearing, there were two people in the room with Logan: the judge and a vocational expert. In a disability case, after hearing all the testimony and evidence, the judge relies upon the vocational expert to simply state yes or no as to whether the person (Logan, in this case) is capable of holding a job, for any amount of time, in the American economy. For Logan, the answer was no. While it was the answer he sought, he also described what a punch in the gut it was to face the reality that this expert, in front of the judge, was declaring that he was not capable of holding any job in the condition he was in.
After the hearing, in 2015, there was one more round of waiting before receiving the official ruling. The letter came for Logan about two months later and he was declared disabled, back dated to the time of his initial filing in 2013.
Logan was gr
Raina O'Dell: Ulcerative Colitis Warrior finding the silver lining in every day (E61)
In today’s Crohn’s Fitness Food podcast interview, Raina O’Dell shares her journey with Ulcerative Colitis, talks about the growth and transformation in her life from @rainavsfood to @its.just.raina, and how she’s been able to stay positive – always searching for the silver lining.
While Raina struggled with symptoms for about a year before diagnosis, she found herself pushing through and just attributing the symptoms to either nutrition or stress. Finally, in the early part of 2016, she started searching for a doctor who could give her answers and eventually found one who performed a colonoscopy. She immediately came away with a diagnosis of Ulcerative Colitis, medication, and no knowledge of what IBD was.
After returning home from the hospital, she poured over research and learned as much as she could about what was happening with her body. Drawing upon her background and experience as a health and fitness coach, she was determined to help her body heal without the use of medications. She refocused her efforts in diet and exercise, using the tools and knowledge she had, and succeeded in achieving remission by October of that year – just over six months after being diagnosed. She stuck to the foods that made her feel good (“eat good, feel good” was her mindset), cut out inflammatory foods, and took the same approach with fitness.
But remission didn’t last and the stress in her life wreaked havoc on her IBD. Her previous efforts of diet and fitness were not enough to overcome the stress and flare up this time. Her IBD journey escalated quickly and in February of 2017, she was in the hospital. A few months later in May, she had a total colectomy and temporary ileostomy. In July, she went in for the j-pouch surgery, but knew immediately it wasn’t working. Despite knowing what her body was telling her, she left the hospital that summer and was back in February of 2018 with abscesses on her j-pouch and an infection. The next step was a permanent ileostomy.
But two and a half years later, she’s more vibrant, healthier than ever, and thriving. She’s spent the last few years focusing on reducing stress, becoming more mindful, and using movement and nutrition to intentionally care for her body and become her best self. Both meditation and mindfulness help to reduce the noise in life and allow her to take a breath and slow down. During her flare ups and surgeries, she took the time to listen to her body and allowed it two full years to heal, unable to even do yoga as she battled fatigue. Fast forward to today and there’s nothing she can’t do now. With the green light from her doctor to workout again after her last surgery, she slowly and steadily built up her strength and she loved every aspect of getting back into fitness. From bodyweight workouts and lifting to fitness bands and yoga, you won’t find her skipping a day of movement now!
Today, she finds the silver lining in being able to serve as an inspiration to others. Her journey has made her stronger and being able to help just one person to feel better keeps her motivated to do more, share more, and enjoy life more. To everyone out there with an ostomy, IBD, or anything else that might currently be holding them back, she dares you to talk about it and to search for the silver lining in every single day.
Want to get the shorts she wears when working out:
Use code: raina10
My favorite podcast
I absolutely love this podcast. I’ve been listening since 2018. Stephanie asks the most insightful questions to her guests that are helpful for the listener. She always stays on topic, she interesting to listen to and has a relaxing voice. I always get excited when I see there’s a new episode available. Thank you, Stephanie!
Loved this one and Stephanie's personal experiences. Lots of tips and good info for anyone to lead a healthier life!
Very Informative Podcast
This is a must-listen podcast for people with IBD whether into fitness or not. Stephanie is a skilled interviewer who gets the most and best information out of her guests. I think I say "wow!" at least once a podcast, as I learn, hopefully, better ways to deal with my Crohn's disease. I am especially interested in the connection between food and IBD, and Stephanie and her guests often give me great ideas to try. Great job, Stephanie!