37 min
Destiny Van Sciver SCD Stories
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- Medicine
Destiny Van Sciver, the author of "Sickle Cell Superheroes" and a mother of a child with Sickle Cell Disease, shares her story on the SCD Stories podcast. She wants her book to empower people to live a good quality life despite their condition and be the superhero of their own story. After her child had a negative experience at school due to a lack of understanding about the disease, she donated books to the school. Her book is available on Amazon or the Hilton Publishing Co. website, and she hopes to get it into hematology clinics around the country. She emphasizes the importance of being tested for Sickle Cell and allowing children to collaborate in their care to learn how to advocate for themselves. Destiny's parents didn't know they carried the Sickle Cell trait because it wasn't tested for until the 90s.
Destiny Van Sciver, the author of "Sickle Cell Superheroes" and a mother of a child with Sickle Cell Disease, shares her story on the SCD Stories podcast. She wants her book to empower people to live a good quality life despite their condition and be the superhero of their own story. After her child had a negative experience at school due to a lack of understanding about the disease, she donated books to the school. Her book is available on Amazon or the Hilton Publishing Co. website, and she hopes to get it into hematology clinics around the country. She emphasizes the importance of being tested for Sickle Cell and allowing children to collaborate in their care to learn how to advocate for themselves. Destiny's parents didn't know they carried the Sickle Cell trait because it wasn't tested for until the 90s.
37 min