Diabetics Doing Things Podcast Diabetics Doing Things

We’re bringing founder of @typeonetogether Raquel Baron to the pod! After
catching up at FFL this summer, Raquel joined Rob and Eritrea as they get
into:

* Her first time on the pod (lost files of 2020)

* Being the first person who ever recognized Rob IN THE WILD with T1D!

* Her transition across the country, out of a long-term relationship,
and letting go of what wasn't serving her

* A LIVE DIABETES ROLL CALL!

* Being a Diabetes Founder

* Founding @typeonetogether, a virtual and IRL resourced community of
babysitters and families living with diabetes

* Dedicating a certain amount of time to move forward at something
instead of giving up

* Being a Jewish person and representing for other Jewish people living
with diabetes.

* You can find Raquel on instagram at @typeoneday or check her out
@typeonetogether or her podcasts or more info about Type One Together
.

We want to hear from you. Send those questions, comments, queries, and
general diabetes concerns to THE MAILBAG at
mailbag@diabeticsdoingthings.com!

Policy and Advocacy Director at T1International, Shaina Kasper, joins Rob
and Eritrea on the show to discuss a wide range of topics, including:

* What $35 dollar insulin really means for people living with diabetes

* It’s been six months since insulin manufacturers announced that
programs were being rolled out for co-pay caps but many patients are
struggling to qualify for these benefits - whats going on?

* Shaina’s sister T1D diagnosis which led to her being in a clinical
trial that actually diagnosed her with T1D as well

* How rationing insulin led Shaina to looking for a diabetes community

* Accessibility being easier in countries like Canada, Mexico and
Europe

* Rationing insulin with diabetes is not rare. Globally 1 in 4 patients
with diabetes has rationed insulin

* Policies like Affordable Insulin Now Act being introduced by Sen.
Kennedy of Louisiana brings up $35 insulin caps for people who have
private insurance, not just Medicare

* The biggest issue with copay cap policies is that they don’t always
include private insurance, and it can create a reverse incentive for
large manufacturers to raise cost of insulin because they know
insurance will cover the difference

* A price cap on insulin is the most important thing to help most
people living with diabetes get access to these medications we need

* If you have experience going into the pharmacy and are unable to get
the lower priced insulin - write to your senator!

* Most people believe that affordability problem around insulin has
been solved, but were learning this isn’t the case

* Coupon cards and insulin savings cards don’t always work; they’re not
replacements for good public policy

* T1International is working on expanding Alex Law’s at the state level
to get emergency access to drugs and with expanding Kevin’s Law to
expand past the 42 states who have accepted it

* If you are interested in sharing your personal diabetes-rationing
story, please reach out to T1International who can help guide you on
how to to share your story with your Senator.

* Learn more about the T1International #insulin4all Summit happening on
September 30, 2023.

We want to hear from you. Send those questions, comments, queries, and
general diabetes concerns to THE MAILBAG at
mailbag@diabeticsdoingthings.com!

We’re back with another episode of The Rob & Eritrea Show. August got a
little busy, but we’re catching up. We’re here. We’re doing bits. We’re
getting serious. We’re digging into all sorts of topics:

* Big Tex and the State Fair of Texas

* Diabetes conference circuit

* Road trips with diabetes

* Being chronically ill and chronically busy

* Meeting internet friends IRL

* Top 20 for DCBerne Innovation Challenge

* Diabetes Legends Basketball Camp this weekend in Denver

* Inaugural Pickleball Classic

* Getting Started with Diabetes, our programming with North Texas Food
Bank

* Eritrea’s health updates

* Answering the Mailbag and making some corrections:

o Feet on the Floor Phenomenon

o Dawn Phenomenon

* A new sign-off from Rob

* and so MUCH MORE!

We want to hear from you. Send those questions, comments, queries, and
general diabetes concerns to THE MAILBAG at
mailbag@diabeticsdoingthings.com!

Ginger Vieira is here! You may know her from her work with T1DExchange or
her several books on diabetes including her newest book, Exercise with Type
1 Diabetes. On this episode, Ginger talks to Rob about:

* Challenges of diabetes and exercise

* Starting with a mindset shift

* Diagnosing herself at a school health fair!

* Weightlifting and as Nike says, “If you have a body, you’re an
athlete.”

* Having insulin on board for exercise

* Handling binges during lows

* Being okay making imperfect decisions

* Atomic Habits - you are what you consistently do

* and so MUCH MORE!

We want to hear from you. Send those questions, comments, queries, and
general diabetes concerns to THE MAILBAG at
mailbag@diabeticsdoingthings.com!

For the first time on the pod, we have a guest living with MODY 5
(Mature-Onset of the Young Type 5) diabetes: Rena Rossi aka
@renatherockharddiabetic on Instagram. Rob and Eritrea talk to Rena about:

* Initial diagnosis of gestational diabetes during her pregnancy in
2007

* A diagnosis of a polycystic kidney disease while running marathons

* Being in limbo between a Type 1 and Type 2 diagnosis

* Having a primary care team that had a personal relationship with her
and diabetes knowledge

* Not noticing symptoms because they align with getting into shape

* Having a personality to jump in and advocate for herself

* Advocating for a MODY diagnosis when complications were occurring

* Different types of MODY

* Diabetes being a genetic ticking time bomb for some

* Being a Special Ed teacher and Her Amazon Wishlist

* and so MUCH MORE!

We want to hear from you. Send those questions, comments, queries, and
general diabetes concerns to THE MAILBAG at
mailbag@diabeticsdoingthings.com!

We are very rooted in GRATITUDE THIS EPISODE! Recorded on the 8th year
anniversary of the conception of Diabetics Doing Things, we have third-time
guest and friend of the pod, Lauren Bongiorno!

* Changes and updates to routine and diabetes management even after 23
years of managing!

* Growing, changing but staying the same especially when it comes to
relationships and marriage

* Marrying her high school sweetheart Chris last fall

* How diabetes can impact interactions with friends, family and peers;
the impact of how a better relationship with diabetes can improve
lives

* The importance of language in treating people with diabetes and the
difference the right support can make

* Why outsourcing your authority isn’t helpful to you as active member
of your diabetes care

* Actionable and accessible management changes when not feeling
motivated or have too many other things going on

* Looking at yourself without judgment and where to start with that

* Leaving firsts in her 20’s: happy firsts and devastating ones

* Goals are for people who want to win once, systems are for people who
want to grow repeatedly

* How being an athlete can be a huge part of your identity and life
after sports

* T1D Starter Kit

About Lauren

"Lauren Bongiorno, diagnosed with Type 1 Diabetes at age 7, is the founder
and CEO of Risely Health, a leading virtual Type 1 Diabetes Health Coaching
company. Guided by a team of Nationally Board Certified coaches who live
with T1D, Risely elevates beyond the traditional standard of diabetes care
through innovative coaching programs and communities that empower T1D
individuals and families to live with more freedom and confidence.As of
2023, Lauren and the Risely team have coached over 600 people and
Georgetown medical school is publishing a study on the quantitative and
qualitative results clients see in their programs.Lauren has been featured
on the TODAY Show and has partnered with renowned brands such as Omnipod,
Dexcom, Abott, Lululemon, and Nike. To connect with her more, you can find
Lauren on various social media platforms, listen to the Reclaim Your Rise
podcast, and dive deeper by visiting Riselyhealth.com."

We want to hear from you. Send those questions, comments, queries, and
general diabetes concerns to THE MAILBAG at
mailbag@diabeticsdoingthings.com!