Diagnosing Dementia During Covid-19 Understanding Dementia Diagnosis Research Team

In this bonus episode of the series, the project’s lived experience group, BUDDs, and the research team discuss co-producing the project, 'Sharing the diagnosis of dementia in the post-Covid clinic: patient and practitioner perspectives'. The team discuss the co-produced approach of the project, share their highlights of working together, and give some insight into the benefits and challenges of co-producing research.

Joining this episode are BUDD members, Louise, Margaret, Barry, Elaine and Claire, and researchers from the University of Edinburgh, Lindsay Kinnaird (also presenting), Denise Munro, Dr Tom Russ and Dr Rosie Ashworth. Dr Tom Russ is also an Old Age Psychiatrist based in Edinburgh, Director of the Alzheimer Scotland Dementia Research Centre, an Honorary Clinical Senior Lecturer at the University of Edinburgh and Research Champion for the NHS Scotland Neuroprogressive and Dementia Network. Dr Rosie Ashworth also works with NHS Scotland Neuroprogressive and Dementia Network as lead for Partners in Research and is experienced in co-producing research in collaboration with people with lived experience of dementia.

For a subtitled version of this episode please visit: https://media.ed.ac.uk/media/Episode+7A+The+Final+Tale/1_49u8d0z9



This episode is co-produced with the Better Understanding Dementia Diagnosis (BUDD) stakeholder advisory group and funded by Economic and Social Research Council as part of the UKRI's Rapid Response to Covid.

You can find out more about the research project at: https://www.alzscotdrc.ed.ac.uk/dementia-diagnosis-post-covid



Follow us:

Twitter on @AlzScotDRCFacebook https://www.facebook.com/AlzScotDRC



For dementia support services contact:

Alzheimer Scotland Dementia 24 hour Helpline: 0808 808 3000/ https://www.alzscot.org/findsupport 

Alzheimer Society Dementia Connect Support Helpline: 033301503456/ https://www.alzheimers.org.uk/getsupport 

MECOPP: https://www.mecopp.org.uk/contact-us 

Dementia UK: 0800888 6678/ https://www.dementiauk.org/

If you’re interested in getting involved in research please visit: https://www.joindementiaresearch.nihr.ac.uk/

Following on from episode five, ‘The Results Tale’, this episode discusses the findings from research which investigated changes to dementia diagnosis and assessment in the UK during the Covid-19 pandemic. The team explore what the results highlight for dementia diagnoses, including the benefits and challenges of using digital technology when diagnosing dementia.
Joining this episode are BUDD members, Louise, Margaret, Barry, Elaine and Claire and researchers from the University of Edinburgh, Lindsay Kinnaird (also presenting), Denise Munro, Dr Tom Russ and Dr Rosie Ashworth. Dr Tom Russ is also an Old Age Psychiatrist based in Edinburgh, Director of the Alzheimer Scotland Dementia Research Centre, an Honorary Clinical Senior Lecturer at the University of Edinburgh and Research Champion for the NHS Scotland Neuroprogressive and Dementia Network. Dr Rosie Ashworth also works with NHS Scotland Neuroprogressive and Dementia Network as lead for Partners in Research and is experienced in co-producing research in collaboration with people with lived experience of dementia.



For a subtitled version of this episode please visit:
https://media.ed.ac.uk/media/Episode+6A+Diagnosing+Dementia+During+Covid-19+Podcast/1_3578x2wp  



This episode is co-produced with the Better Understanding Dementia Diagnosis (BUDDs) stakeholder advisory group and funded by Economic and Social Research Council as part of the UKRI's Rapid Response to Covid.

You can find out more about the research project at: https://www.alzscotdrc.ed.ac.uk/dementia-diagnosis-post-covid

Follow us on:

Twitter on @AlzScotDRCFacebook https://www.facebook.com/AlzScotDRC



For dementia support services contact:

Alzheimer Scotland Dementia 24 hour Helpline: 0808 808 3000/ https://www.alzscot.org/findsupport 

Alzheimer Society Dementia Connect Support Helpline: 033301503456/ https://www.alzheimers.org.uk/get-support 

MECOPP: https://www.mecopp.org.uk/contact-us 

Dementia UK: 0800 888 6678/ https://www.dementiauk.org/

If you’re interested in getting involved in research please visit: https://www.joindementiaresearch.nihr.ac.uk/

Researchers, Lindsay Kinnaird and Dr Rosie Ashworth, share the results of the Diagnosing Dementia During Covid-19 study. This project investigated the changes to dementia diagnosis and assessment during the Covid-19 pandemic.

Lindsay and Rosie are both researchers on the project, 'Sharing the diagnosis of dementia in the post-Covid clinic: Patient and Practitioner Perspectives' at the University of Edinburgh. Rosie also works with NHS Scotland Neuroprogressive and Dementia Network as lead for Partners in Research and is experienced in patient and public involvement and co-producing research in collaboration with people with lived experience of dementia.

For a subtitled version of this episode please visit: https://media.ed.ac.uk/media/Episode+5+-+The+Results+Tale/1_p9x741ot 

This episode is co-produced with the Better Understanding Dementia Diagnosis (BUDDs) stakeholder advisory group and funded by Economic and Social Research Council as part of the UKRI's Rapid Response to Covid.

You can find out more about the research project at: https://www.alzscotdrc.ed.ac.uk/dementia-diagnosis-post-covid

You can also follow us on:

Twitter on @AlzScotDRC
Facebook https://www.facebook.com/AlzScotDRC

For dementia support services contact:

Alzheimer Scotland Dementia 24 hour Helpline: 0808 808 3000/ https://www.alzscot.org/findsupport Alzheimer Society Dementia Connect Support Helpline: 033301503456/ https://www.alzheimers.org.uk/get-support MECOPP: https://www.mecopp.org.uk/contact-us Dementia UK: 0800 888 6678/ https://www.dementiauk.org/

If you’re interested in getting involved in research please visit: https://www.joindementiaresearch.nihr.ac.uk/

Researchers Lindsay Kinnaird and Rosie Ashworth discuss co-producing research and co-producing with people with lived experience of dementia. 

Lindsay and Rosie are both researchers on the project, 'Sharing the diagnosis of dementia in the post-Covid clinic: Patient and Practitioner Perspectives' at the University of Edinburgh . Rosie also works with NHS Scotland Neuroprogressive and Dementia Network as lead for Partners in Research and is experienced in patient and public involvement and co-producing research with people with lived experience of dementia.

BUDDs, the co-production group for research investigating dementia diagnosis during Covid-19, also share their experiences of co-production.

For a subtitled version of this episode please visit: https://edin.ac/3MCTETw 

This episode is co-produced with the Better Understanding Dementia Diagnosis (BUDD) stakeholder advisory group and funded by Economic and Social Research Council as part of the UKRI's Rapid Response to Covid.

You can find out more about the research project at: https://www.alzscotdrc.ed.ac.uk/dementia-diagnosis-post-covid

You can also follow us on:

Twitter on @AlzScotDRC
Facebook https://www.facebook.com/AlzScotDRC

For dementia support services contact:

Alzheimer Scotland Dementia 24 hour Helpline: 0808 808 3000/ https://www.alzscot.org/findsupport Alzheimer Society Dementia Connect Support Helpline: 033301503456/ https://www.alzheimers.org.uk/get-support MECOPP: https://www.mecopp.org.uk/contact-us Dementia UK: 0800 888 6678/ https://www.dementiauk.org/

If you’re interested in getting involved in research please visit: https://www.joindementiaresearch.nihr.ac.uk/

Dr Tom Russ, Dr Lucy Stirland and Dr Catherine Pennington discuss the diagnosis of dementia and the changes to diagnosis during Covid-19 restrictions.

Dr Catherine Pennington is a Consultant Neurologist who works in the memory clinic in Edinburgh and in NHS Forth Valley. Catherine is also Honorary Senior Clinical Lecturer at the University of Edinburgh.

Dr Lucy Stirland is an old age psychiatrist in training who works in NHS in Lothian but often moves around Health Boards. At the time of the discussion, Lucy worked in NHS Borders. Lucy is also an epidemiological researcher at the University of Edinburgh.

Dr Tom Russ is an old age psychiatrist in Edinburgh and Director of the Alzheimer Scotland Dementia Research Centre at the University of Edinburgh. Tom is also the Principal Investigator for the research project: ‘Sharing the diagnosis of dementia in the post-Covid clinic: Patient and Practitioner Perspectives’.

This episode is co-produced with the Better Understanding Dementia Diagnosis (BUDDs) stakeholder advisory group and funded by Economic and Social Research Council as part of the UKRI's Rapid Response to Covid.

You can find out more about the research project at: https://www.alzscotdrc.ed.ac.uk/dementia-diagnosis-post-covid

You can also follow us on:

Twitter on @AlzScotDRC
Facebook https://www.facebook.com/AlzScotDRC

For dementia support services contact:

Alzheimer Scotland Dementia 24 hour Helpline: 0808 808 3000/ https://www.alzscot.org/findsupport

Alzheimer Society Dementia Connect Support Helpline: 033301503456/ https://www.alzheimers.org.uk/get-support

MECOPP: https://www.mecopp.org.uk/contact-us Dementia UK: 0800 888 6678/ https://www.dementiauk.org/

If you’re interested in getting involved in research please visit: https://www.joindementiaresearch.nihr.ac.uk/

Researcher, Lindsay Kinnaird, explores personal experiences of receiving a dementia diagnosis with Claire, Elaine and Pooja Jain, who share some of their personal experiences of dementia diagnosis. Elaine and Pooja also discuss some of their professional experiences around dementia and diagnosis.

Claire and Elaine are both members of the co-production group for research investigating patient and practitioner perspectives of dementia diagnosis during UK Covid-19 restrictions, as well as the development of this podcast.

Pooja Jain is Founder & CEO of Cogni-Health, a Scottish health-tech start-up aiming to improve the quality of life for families impacted by dementia. Pooja was named one of Top 20 women to watch out for in Scotland in 2018 by Business Insider.

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This episode is co-produced with the Better Understanding Dementia Diagnosis (BUDD) stakeholder advisory group and funded by the Economic and Social Research Council as part of the UKRI's Rapid Response to Covid.

You can access a transcription for this episode at: https://media.ed.ac.uk/media/Episode+2A+The+Personal+Tale/1_qywqluhc

You can find out more about the research project at: https://www.alzscotdrc.ed.ac.uk/dementia-diagnosis-post-covid

You can also follow us on:


Twitter: @AlzScotDRC
Facebook: https://www.facebook.com/AlzScotDRC

For dementia support services contact:


Alzheimer Scotland Dementia 24 hour Helpline: 0808 808 3000/ https://www.alzscot.org/findsupport
Alzheimer Society Dementia Connect Support Helpline: 033301503456/ https://www.alzheimers.org.uk/get-support
MECOPP: https://www.mecopp.org.uk/contact-us
Dementia UK: 0800 888 6678/ https://www.dementiauk.org/

If you’re interested in getting involved in research please visit: https://www.joindementiaresearch.nihr.ac.uk/