1 hr
Ehlers-Danlos Syndrome (EDS) Rare Disease Connection
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- Medicine
Hear from the experts in our conversations on a rare genetic disease: Ehlers-Danlos syndrome. We cover EDS diagnosis, new treatment options, and how to connect with the EDS community.
Experts in this episode include:
*Kelly Bontempo, a Genetic Counselor and Faculty Member at the Graduate Program in Genetic Counseling at Northwestern University.
*Jan Delariman a Senior Occupational Therapist at Lutheran General Hospital.
*Patricia Shimanek, PT, a physical therapist with expertise in EDS.
More resources and information for you: raredisease.com/eds
Hear from the experts in our conversations on a rare genetic disease: Ehlers-Danlos syndrome. We cover EDS diagnosis, new treatment options, and how to connect with the EDS community.
Experts in this episode include:
*Kelly Bontempo, a Genetic Counselor and Faculty Member at the Graduate Program in Genetic Counseling at Northwestern University.
*Jan Delariman a Senior Occupational Therapist at Lutheran General Hospital.
*Patricia Shimanek, PT, a physical therapist with expertise in EDS.
More resources and information for you: raredisease.com/eds
1 hr