1 hr

Ehlers-Danlos Syndrome (EDS‪)‬ Rare Disease Connection

    • Medicine

Hear from the experts in our conversations on a rare genetic disease: Ehlers-Danlos syndrome. We cover EDS diagnosis, new treatment options, and how to connect with the EDS community.
Experts in this episode include:
*Kelly Bontempo, a Genetic Counselor and Faculty Member at the Graduate Program in Genetic Counseling at Northwestern University.
*Jan Delariman a Senior Occupational Therapist at Lutheran General Hospital.
*Patricia Shimanek, PT, a physical therapist with expertise in EDS.
More resources and information for you: raredisease.com/eds

Hear from the experts in our conversations on a rare genetic disease: Ehlers-Danlos syndrome. We cover EDS diagnosis, new treatment options, and how to connect with the EDS community.
Experts in this episode include:
*Kelly Bontempo, a Genetic Counselor and Faculty Member at the Graduate Program in Genetic Counseling at Northwestern University.
*Jan Delariman a Senior Occupational Therapist at Lutheran General Hospital.
*Patricia Shimanek, PT, a physical therapist with expertise in EDS.
More resources and information for you: raredisease.com/eds

1 hr