Friends For Life Podcast Tony Stuart

In this enlightening episode of IDD Health Matters, host Dr. Craig Escude is joined by Lisa Burck from The Arc of Mississippi. With decades of experience in the field of intellectual and developmental disabilities (IDD), Lisa shares her profound insights into the dynamic and responsive nature of advocacy work. The conversation delves into the multifaceted roles that The Arc plays in Mississippi, from handling abuse investigations and training direct support professionals, to innovative programs like their Archangel Christmas initiative and addiction programs tailored for community integration challenges.
Lisa highlights the transformative power of supported decision-making—a dignified alternative to guardianship that honors individual needs and preferences. The episode also explores the critical importance of direct support professionals and the severe impact of staffing shortages on employment opportunities for individuals with disabilities, a crucial aspect of life that fosters purpose and integration.
Join Dr. Escude and Lisa as they discuss the practical challenges, emotional rewards, and the ongoing journey towards better health equity and quality of life for people with IDD. This episode is a must-listen for anyone involved in or caring about the disability support sector.



 
 


 

 










 
 

Join hosts Tony and Paul on the "Friends for Life Podcast," a dynamic and engaging series dedicated to exploring the lives, challenges, and triumphs of individuals with developmental disabilities. Each episode delves into meaningful discussions aimed at sparking positive change within the field, featuring a mix of expert interviews, insightful stories, and in-depth analysis of relevant issues.
Whether highlighting innovative care solutions from companies like Assured Health Services, showcasing inspiring guests like Scott DeFel, or exploring effective advocacy with veterans like Mr. John Dickerson, this podcast offers a comprehensive look into the intersection of healthcare, advocacy, and personal empowerment. Listeners will also find practical advice on navigating and improving care systems, all while the hosts maintain a light-hearted and enjoyable atmosphere.
The Friends for Life Podcast is not just a source of information but also a community platform that celebrates achievements and addresses critical needs within the developmental disabilities field. It's an essential listen for caregivers, family members, professionals, and anyone interested in making a difference in the lives of people with developmental disabilities.

In this insightful episode of the IDD Health Matters Podcast, host Dr. Craig Escude welcomes Joe MacBeth, President and CEO of the National Alliance for Direct Support Professionals (NADSP), to discuss the crucial role and challenges of direct support professionals (DSPs) in supporting individuals with intellectual and developmental disabilities. Joe shares the origins and mission of the NADSP, founded in the mid-1990s with an influential push from John F. Kennedy Jr., focusing on advocating for the direct support workforce amidst ongoing workforce issues.
The conversation delves into the persistent systemic failures to adequately address workforce challenges, highlighting the transition of the NADSP from its humble beginnings to its current state of moderate success and growth. Joe also reflects on the pivotal role of DSPs during the COVID-19 pandemic, their adaptability in the face of unprecedented challenges, and the critical importance of recognizing and compensating DSPs fairly for their multifaceted contributions to health, wellness, and quality of life for those they support.
Dr. Escude and Joe explore the transformative potential of training and professional development for DSPs, emphasizing the NADSP’s eBadge Academy which focuses on enhancing skills, knowledge, and values to improve quality support for individuals with disabilities. Additionally, Joe shares his personal journey from starting as a DSP to leading a national organization, underscoring the profound learning and growth opportunities in the field.
This episode not only highlights the invaluable work of DSPs but also calls for greater recognition, support, and investment in the direct support profession as a career path filled with growth, learning, and the chance to make a significant impact in the lives of individuals with disabilities.

In this captivating episode of the Friends for Life Podcast, hosts Tony and Paul delve into their ongoing commitment to positively impacting the lives of individuals with developmental disabilities. The episode starts with an enthusiastic introduction to the core mission of the podcast: sparking change in the field, ensuring individuals achieve their personal goals, and engaging in meaningful conversations that lead to actionable solutions.
The excitement builds as the hosts reveal the newly constructed Friends for Life podcast studio. Tony and Paul share the story of building the studio from the ground up, emphasizing the intimate, well-lit space designed to enhance the podcast experience. They express their pride in the studio's new setup and hint at their plans to innovate the podcast's format with solo episodes, teaching segments, and enriching interviews.
Tony explains the reasoning behind the new studio, focusing on the philosophy of embracing discomfort to promote growth. He outlines their vision for a format that is not only accessible to newcomers but also provides educational value to listeners unfamiliar with the developmental disabilities field. The conversation takes a personal turn as they recount the blood, sweat, and tears shed during the studio's construction, demonstrating their unwavering commitment to the project.
Accessibility is a key theme, with Paul and Tony emphasizing the studio's design to be welcoming for all. They discuss their ambition to create a community space beyond the podcast, reflecting on their community involvement, including a film festival, as evidence of their commitment to using their unique skills for the greater good.
The discussion shifts towards the upcoming eclipse and its potential effects on the community, highlighting the importance of adaptability and offering solutions rather than just discussing problems. They stress the need for resolution-focused dialogues in addressing the challenges faced by those in the developmental disabilities field.
As the episode concludes, Tony and Paul contemplate the future of the Friends for Life Podcast and their broader mission. They share insights from their business experiences, the significance of consistency over talent, and personal growth stories. This episode not only reaffirms their dedication to making a positive impact in the developmental disabilities field but also offers listeners a blend of informative content, personal stories, and visions for the future of the Friends for Life Podcast.



 
 


 

 










 
 

In this insightful episode of the IDD Health Matters Podcast, Dr. Craig Escude welcomes Kirsten Sanchirico, a graduate of the University of Vermont's LEND (Leadership Education in Neurodevelopmental Disabilities) program. Kirsten shares her unique experiences navigating the intersection of disability, policy, and education, particularly highlighting the challenges she faced attending the Disability Policy Seminar in Washington D.C. due to her physical disability and the accommodations required for travel.
Kirsten's story sheds light on the broader issues of accessibility and inclusivity, from the difficulties of securing appropriate accommodations on flights to the financial implications of receiving a stipend while on a fixed income due to disability benefits. Her journey underscores the importance of understanding and advocating for the rights and needs of individuals with disabilities, both in educational settings and beyond.
This episode is a powerful reminder of the ongoing struggles for equity and access faced by people with disabilities and the critical role of education and advocacy in driving positive change in policy and practice.

In this engaging episode of the Friends for Life Podcast, hosts Tony and Paul delve into the vibrant world of advocacy, education, and empowerment for individuals with developmental disabilities. They are joined by special guests who share their personal journeys, insights into the importance of self-determination, and the impact of community involvement in promoting inclusivity and support for people with disabilities. The conversation highlights the transformative power of advocacy groups like OSDA (Ohio Self-Determination Association) and the significance of initiatives like Project STIR (Steps Toward Independence and Responsibility), emphasizing the role of education and community support in enhancing the lives of individuals with developmental disabilities. This episode is a testament to the collective effort required to foster a more inclusive society and the belief that everyone has a vital role to play in advocacy, with no one left on the bench.