16 min

Ep. #16 How to Identify infantile spasms and take action. With President of Tuberous Sclerosis Alliance- Kari Rosbeck Doctor Mommy Speaks Parenting

    • Parenting

December 1- 7th is the infantile spasms awareness week. Every year a coalition of international organisations teams up to raise awareness about these spams. Like the American Academy of Pediatricians, tuberous sclerosis alliance, epilepsy foundation, child neurology foundation, etc. I am humbled to have partnered with them to help raise awareness about infantile spasms. They are one of the primary symptoms of a condition called tuberous sclerosis.

our guest is the President and CEO of tuberous sclerosis alliance, USA.- Kari Rosbeck

We have discussed:


Why one needs to know about infantile spasms?

What are Infantile Spasms? How common are they?

When should parents be on the lookout for it?

What to do during Covid era?

What is the Outlook for Children with Infantile Spasms?

A helpful mnemonic tool – an easily remembered acronym—STOP


You can connect with Kari or support the TSA below:


Facebook: tsalliance

YouTube: TuberousSclerosisAlliance

Instagram: @tsalliance

Twitter: @tsalliance

Infantile Spasms Website: infantilespasms.org


Do subscribe to my podcast so you will be notified each time a new episode is online. you can visit my website doctormommyspeaks.com/podcasts for all the show notes and other resources on health and parenting. and while you're at it, don't forget to subscribe to our newsletter.

Do review our podcast wherever you listen, it will help others to find this podcast.

You can connect with doctormommyspeaks on Instagram, Facebook, Twitter, Linkedin.

or leave a voice message. I would love to hear your thoughts, comments, feedback or any problem that you would like to share and get expert advice on.

Until then,

Happy Parenting.


---

Send in a voice message: https://anchor.fm/doctormommyspeaks/message

December 1- 7th is the infantile spasms awareness week. Every year a coalition of international organisations teams up to raise awareness about these spams. Like the American Academy of Pediatricians, tuberous sclerosis alliance, epilepsy foundation, child neurology foundation, etc. I am humbled to have partnered with them to help raise awareness about infantile spasms. They are one of the primary symptoms of a condition called tuberous sclerosis.

our guest is the President and CEO of tuberous sclerosis alliance, USA.- Kari Rosbeck

We have discussed:


Why one needs to know about infantile spasms?

What are Infantile Spasms? How common are they?

When should parents be on the lookout for it?

What to do during Covid era?

What is the Outlook for Children with Infantile Spasms?

A helpful mnemonic tool – an easily remembered acronym—STOP


You can connect with Kari or support the TSA below:


Facebook: tsalliance

YouTube: TuberousSclerosisAlliance

Instagram: @tsalliance

Twitter: @tsalliance

Infantile Spasms Website: infantilespasms.org


Do subscribe to my podcast so you will be notified each time a new episode is online. you can visit my website doctormommyspeaks.com/podcasts for all the show notes and other resources on health and parenting. and while you're at it, don't forget to subscribe to our newsletter.

Do review our podcast wherever you listen, it will help others to find this podcast.

You can connect with doctormommyspeaks on Instagram, Facebook, Twitter, Linkedin.

or leave a voice message. I would love to hear your thoughts, comments, feedback or any problem that you would like to share and get expert advice on.

Until then,

Happy Parenting.


---

Send in a voice message: https://anchor.fm/doctormommyspeaks/message

16 min