EP. 219 - Fighting Rare Disease on Undiagnosed Day | Stanley Bishop & Mikk Cederroth

In this episode of DevNTell we are joined by Stanley Bishop and Mikk Cederroth. Stanley is currently affiliated with “Research to the People,” a joint program between Stanford Genetics and Stanford Medicine, where he contributes his AI expertise and leadership to unite a diverse set of collaborators tackling unaddressed problems in rare genetic illness medicine and precision oncology. Mikk, alongside his wife Helene, is the founder behind the Wilhelm Foundation, a global voice dedicated to ending the diagnostic odyssey for people living with undiagnosed diseases (PLWUD).

Viewers of this DevNTell will get to meet Stanley and Mikk, learn about Undiagnosed Day, insights into rare disease research, and more.

— TIMESTAMPS

(00:00) Intro

(00:25) Welcoming Stanley Bishop and Mikk Cederroth

(00:59) Stanley’s Mission in Science

(01:50) Mikk and the Wilhelm Foundation

(04:01) What Undiagnosed Day Means

(05:58) Why Diagnosis of Rare Disease Is So Hard

(09:10) Building Global Networks

(10:20) Data Sharing and Compliance

(13:23) Introducing the Undiagnosed Hackathon

(16:11) Inside the Mayo Hackathon

(18:17) Hackathon Impact and Results

(21:41) Upcoming Events and How to Join

(25:56) Compute Power and Decentralized AI

(33:00) Outro

— GUESTS & HOST

🤝 Mikk Cederroth, Founder @ Wilhelm Foundation - https://www.linkedin.com/in/mikk-cederroth/
🤝 Stanley Bishop, AI Scientist @ Stanford - https://x.com/ScienceStanley
🤝 Narb, DevNTell Host @ Developer DAO - https://x.com/narb_s

— RESOURCES

Episode Links

ℹ️ Wilhelm Foundation - https://wilhelmfoundation.org/
ℹ️ Undiagnosed Hackathon - https://undiagnosedhackathon.org/home
ℹ️ Rare Archive GitHub Repo - https://github.com/Wilhelm-Foundation/rare-archive
ℹ️ Wilhelm Foundation Origins - https://katiecouric.com/health/three-children-die-from-unknown-illness/
ℹ️ Lattice Discord - https://discord.gg/pYGW8WMEU
ℹ️ Wilhelm Foundation X Account - https://x.com/WilhelmFound

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