Episode 078 - From Misdiagnosis to Mission – One Patient’s Journey with Rare Disease

Welcome to Episode 078 of the Beyond the Diagnosis Podcast. Listen in as Hank shares his courageous journey from being misdiagnosed, to finding his purpose in life to help others affected by histiocytosis in the most practical of ways. Instead of allowing his diagnosis to define him, Hank found deep purpose in reaching out to fellow patients and caregivers, participating in clinical trials, and pushing for legislative change in the world of rare disease. Join us as Hank shares how his faith, resilience, and relentless hope are helping to shape a better future for others living with histiocytosis. 

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Resources mentioned in the podcast: 

• Histiocytosis Follow-Up Study: email histio@uabmc.edu or call 866-438-1640 
• INTO-HLH Registry: www.hlhregistry.org 

• Facebook: https://www.facebook.com/histio 
• Twitter: @histiocytosis 
• Instagram: histiocytosis_association 
• YouTube: https://www.youtube.com/histiocytosisassoc 

Music: “Heroes” by Noah Smith