35 min
Treading Water with April Robson, Part One But Not All At Once
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- Relationships
April Robson had a picture-perfect family: a husband who once saved her in his phone as "April Hot Girl," two beautiful daughters, a son on the way and a loving community of (in-person and online) friends. Then she learned her two-year-old had metachromatic leukodystrophy, a rare, degenerative, terminal disorder that had a one in four chance of affecting Charlotte's newborn brother as well.
With her trademark joy and honesty, April walks through her most heartbreaking and hectic season, marveling at how a person can continue to function even when her life is unrecognizable.
Learn about how a tenacious pregnant mother disguised as a Mary Poppins-esque powder puff pushed to get answers for what was happening to her child. Hear the earliest signs of MLD, the strangest prayer April has ever prayed, and the happiness that can be found even in a hospital room.
The rest of April's story will go live next week, when we'll learn what it means to be supported in every sense by the people who care about you - whether you've met them in real life or not.
Thanks for being here, y'all! I'd love your thoughts, questions, ideas, and everything in between. You can find me at @ButNotAllAtOnce on social media or ButNotAllAtOnce.com.
For extra content, additional episodes, and upcoming details about possible 2023 in-person events, visit Patreon.
April Robson had a picture-perfect family: a husband who once saved her in his phone as "April Hot Girl," two beautiful daughters, a son on the way and a loving community of (in-person and online) friends. Then she learned her two-year-old had metachromatic leukodystrophy, a rare, degenerative, terminal disorder that had a one in four chance of affecting Charlotte's newborn brother as well.
With her trademark joy and honesty, April walks through her most heartbreaking and hectic season, marveling at how a person can continue to function even when her life is unrecognizable.
Learn about how a tenacious pregnant mother disguised as a Mary Poppins-esque powder puff pushed to get answers for what was happening to her child. Hear the earliest signs of MLD, the strangest prayer April has ever prayed, and the happiness that can be found even in a hospital room.
The rest of April's story will go live next week, when we'll learn what it means to be supported in every sense by the people who care about you - whether you've met them in real life or not.
Thanks for being here, y'all! I'd love your thoughts, questions, ideas, and everything in between. You can find me at @ButNotAllAtOnce on social media or ButNotAllAtOnce.com.
For extra content, additional episodes, and upcoming details about possible 2023 in-person events, visit Patreon.
35 min