30 min
Episode 26 – From diagnosis to network director—living with XLH Rare in Common: the podcast
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- Science
Diagnosed with X-linked hypophosphatemia (XLH), Susan has faced the challenges of living with this rare disease to become an advocate of the community and an influential force behind the XLH Network. The global community recently celebrated the second annual XLH Awareness Day on June 23, 2020.
This episode is brought to you by Ultragenyx.
Diagnosed with X-linked hypophosphatemia (XLH), Susan has faced the challenges of living with this rare disease to become an advocate of the community and an influential force behind the XLH Network. The global community recently celebrated the second annual XLH Awareness Day on June 23, 2020.
This episode is brought to you by Ultragenyx.
30 min
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