Managing emotions as a parent when your child receives a complex medical diagnosis can be incredibly challenging. In this episode of Raising Joy, we talk to Katie Senter, a member of the Family Advisory Council at Cook Children's. Katie's daughter, Louise, has a very rare medical condition called 1p36 deletion syndrome, which is a chromosome disorder that typically causes severe intellectual disability.
Katie shares her personal experiences of coping with Louise's diagnosis, and offers practical advice on how other parents can manage their own emotions during this difficult time. She also talks about the importance of finding support from other parents who are going through similar experiences.
If you're a parent who is struggling to cope with your child's complex medical diagnosis, this episode is for you. Katie's story is both inspiring and informative, and her advice can help you on your own journey.
Listen to this episode of Raising Joy to learn more about:
· Katie's experience of receiving Louise's diagnosis and how she coped with her emotions.
· Practical advice on how to manage your own emotions as a parent of a child with a complex medical diagnosis.
· The importance of finding support from other parents who are going through similar experiences.