Fly-ing Insights: Unraveling Rare Disorders with Tiny Wings GlycoCast, a journey of families, sugars and rare disorders

We had an insightful conversation with Ann and Steve Nguyen, sharing the touching story of their son Emmett who was affected by PIGA-CDG a type of Congenital Disorder of Glycosylation (CDG). Will understand how Emmett's legacy continues to inspire and bring hope to many. We will also have Dr. Clement Chow whose cutting-edge research is unraveling the mysteries of different rare disorders, including PIGA-CDG. For more information on CDGs please visit our sponsor at cdgcare.org.