8 episodes

Fragile X Dad & Mom is a podcast about a Dad and a Mom’s journey as they parent their two children who are diagnosed with Fragile X Syndrome. Their 5 year old son is also diagnosed with Severe Nonverbal Autism, Epilepsy, and Intellectual disability. This podcast is for all of those special needs parents raising special needs children where we can all come together and share the joys, the struggles and when sh&t gets real.
Parenting a special needs child can often feel isolating & can be frustrating until we meet other parents that share similar journey.

Fragile X Dad & Mom Erika Vasquez

    • Kids & Family
    • 5.0 • 3 Ratings

Fragile X Dad & Mom is a podcast about a Dad and a Mom’s journey as they parent their two children who are diagnosed with Fragile X Syndrome. Their 5 year old son is also diagnosed with Severe Nonverbal Autism, Epilepsy, and Intellectual disability. This podcast is for all of those special needs parents raising special needs children where we can all come together and share the joys, the struggles and when sh&t gets real.
Parenting a special needs child can often feel isolating & can be frustrating until we meet other parents that share similar journey.

    7 Distance Learning or Homeschooling

    7 Distance Learning or Homeschooling

    We decided to ditch Distance learning and go with Homeschooling our kids instead. Listen to how our decision became about.

    • 25 min
    6 Dr. Randi Hagerman Special Guest Answering Fragile X Q/A

    6 Dr. Randi Hagerman Special Guest Answering Fragile X Q/A

    Dr. Hagerman is medical director of the UC Davis MIND Institute and director of the Fragile X Research and Treatment Center. She has dedicated her life to Fragile X Research with 40 years of working in the Fragile X field. Dr. Hagerman, her husband, Dr. Paul Hagerman, and their research team are the discoverers of Fragile X-associated Tremor/Ataxia Syndrome (FXTAS), a late-onset neurodegenerative disorder.
    listen to her as she answers some Q/A 

    Find Us on Facebook: https://www.facebook.com/erika.amaya0815 Instagram: https://www.instagram.com/ourfragilexlife/ Youtube at OurFragileXlife: https://www.youtube.com/channel/UCLkcITGVgGUvA4cgghC49Yw?view_as=subscriber Email: ourfragilexlife@gmail.com Blog: https://www.ourfragilexlife.com 
    Read more about Dr. Randi Hagerman 
    https://health.ucdavis.edu/team/children/598/randi-hagerman-pediatric-child-development--behavior-autism-neurodevelopmental-disorders-sacramento
    Learn more about Fragile X syndrome https://fragilex.org/

    https://www.fraxa.org/

    • 27 min
    5 Communication: AAC device for our nonverbal child.

    5 Communication: AAC device for our nonverbal child.

    Our Son Emmett turned 5 years old in March and he is still consider non-verbal. Emmett probably has less than 5 words in his verbal vocabulary.  We have tried several different forms of communication for Emmett. We found that using a AAC device (Augmentative and AAC are tools or technology that help people communicate if they can’t (always) rely on speech) was the most helpful for him. Having a non-verbal child is very difficult you don't know when they are hurting and sometimes we do not understand what he needs. Emmett having a form of communication has been a priority for us. With his AAC device he is able to communicate some of his basic needs. This has relief Emmett of frustrations and meltdowns. His meltdowns decreased so much after he started to learn how to use his AAC device. 

    More information on AAC Device meaning etc. https://www.asha.org/public/speech/disorders/aac/

    The program we use for Emmett is called Proloquo2go : https://www.assistiveware.com/learn-aac





    Find Us on Facebook: https://www.facebook.com/erika.amaya0815 Instagram: https://www.instagram.com/ourfragilexlife/ Youtube at OurFragileXlife: https://www.youtube.com/channel/UCLkcITGVgGUvA4cgghC49Yw?view_as=subscriber Email: ourfragilexlife@gmail.com Blog: https://www.ourfragilexlife.com Intro&ClosingMusic By:SongTwo-Chord Terror - Pictures (Garage)@ clipdaddy.com

    • 29 min
    4 Dealing with COVID19: Adapting to the New Crazy Normal.

    4 Dealing with COVID19: Adapting to the New Crazy Normal.

    Fragile X Dad & Mom Podcast have a very special guest our Fragile X daughter. On this episode 4 we will talk about how we are dealing COVID 19 “Pandemic” and how we are dealing with all the new changes. It has definitely been very difficult but it is not impossible. We are going through the motions just like everyone else. We are adapting to being home. You know that saying that when life gives you lemons make lemonade. Well I think we might just have to do that. Find Us on Facebook: https://www.facebook.com/erika.amaya0815
    Instagram: https://www.instagram.com/ourfragilexlife/
    Youtube at OurFragileXlife: https://www.youtube.com/channel/UCLkcITGVgGUvA4cgghC49Yw?view_as=subscriber
    Email: ourfragilexlife@gmail.com
    Blog: https://www.ourfragilexlife.com
    Intro&ClosingMusic By:SongTwo-Chord Terror - Pictures (Garage)@ clipdaddy.com

    • 25 min
    3 Sharing your child’s diagnosis

    3 Sharing your child’s diagnosis

    Welcome to Episode 3 with Fragile X Dad and Mom Podcast.  
    Sharing your Child's diagnosis with friends and family and building your support system.
    After you receive your child's diagnosis you feel so alone, and lost. Sharing your child's diagnosis feels overwhelming and scary. I know that for us it was. We didn't want anyone feeling sorry for us or to see us differently. I know I felt scared for my son and daughter I wanted them to still see them for who they truly are not just some diagnosis. 
    Find Us on Facebook: https://www.facebook.com/erika.amaya0815
    Instagram: https://www.instagram.com/ourfragilexlife/
    Youtube at OurFragileXlife: https://www.youtube.com/channel/UCLkcITGVgGUvA4cgghC49Yw?view_as=subscriber
    Email: ourfragilexlife@gmail.com
    Blog: https://www.ourfragilexlife.com
    Intro&ClosingMusic By:SongTwo-Chord Terror - Pictures (Garage)@ clipdaddy.com

    • 34 min
    2 Expect the Unexpected

    2 Expect the Unexpected

    When you are expecting a child you have all these expectations before your child is even born. 
    You can see your unborn child going to college, moving out to their own place, getting married, and even having a family one day. 
    All those expectations change when your child gets diagnosed with a disability. 
    Your expectations switch so drastically, and it makes it difficult to understand and accept your child's diagnosis. 
    On today's podcast we will talk about the expectations we had for our son Emmett before he got diagnosed with fragile x syndrome, and severe nonverbal autism. Our expectations have change but we have not lost "Hope". We are extremely hopeful for his future, and everyday he exceeds all our expectations. He is an incredible little guy. 

    Find Us on Facebook: https://www.facebook.com/erika.amaya0815                     
     Instagram: https://www.instagram.com/ourfragilexlife/                                              
    Youtube at OurFragileXlife: https://www.youtube.com/channel/UCLkcITGVgGUvA4cgghC49Yw?view_as=subscriber                                            
      Email: ourfragilexlife@gmail.com                       
     Blog: https://www.ourfragilexlife.com

    Intro&ClosingMusic By: Depechey(Electronic) @ clipdaddy.com

    • 35 min

Customer Reviews

5.0 out of 5
3 Ratings

3 Ratings

marjhatsz ,

Fx mom

I have really enjoyed listening to your podcasts! I have a daughter that is 16 months with fmfx and am pregnant with baby girl number 2 with fmfx. Thank you for sharing your story!!

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