37 episodes

This podcast is a service of the Immune Deficiency Foundation, or IDF, a nonprofit organization dedicated to improving the diagnosis, treatment and quality of life of people diagnosed with primary immunodeficiency, or PI. People living with PI are the zebras of the medical world & the IDF community is one big zebra herd.

To learn more about primary immunodeficiency and the PI community, please visit the IDF website at www.primaryimmune.org. If you have any questions you would like to be answered, email us at idf@primaryimmune.org.
Special thanks to Bryson Kemp for scoring this podcast! www.brysonkempmusic.com

Have You Herd? An IDF Podcast Immune Deficiency Foundation

    • Health & Fitness
    • 5.0 • 19 Ratings

This podcast is a service of the Immune Deficiency Foundation, or IDF, a nonprofit organization dedicated to improving the diagnosis, treatment and quality of life of people diagnosed with primary immunodeficiency, or PI. People living with PI are the zebras of the medical world & the IDF community is one big zebra herd.

To learn more about primary immunodeficiency and the PI community, please visit the IDF website at www.primaryimmune.org. If you have any questions you would like to be answered, email us at idf@primaryimmune.org.
Special thanks to Bryson Kemp for scoring this podcast! www.brysonkempmusic.com

    Navigating Access to Quality Care with Primary Immunodeficiency

    Navigating Access to Quality Care with Primary Immunodeficiency

    IDF's own Colleen Brock (RN, Manager of Medical Programs) and Stephanie Steele (Director of Payor Relations and Policy) give a presentation on making sure you, as an individual with PI, have the tools you need to get the care you deserve.

    The information, terminology, and opinions presented in this forum do not necessarily reflect the views of IDF, its Board of Trustees, sponsors, or donors.

    • 1 hr 12 min
    Returning to In-Person Events

    Returning to In-Person Events

    Returning to In-Person Events

    IDF's Tammy Black and Alissa Creamer discuss the organization's return to in-person events, as well as the safety protocols and virtual offerings available at the upcoming Walk for PI and PI Conference events.

    IDF Clinician Finder: https://primaryimmune.org/clinician-finder

    Walk for PI: https://www.walkforpi.org/

    Primary Immunodeficiency Conference: https://web.cvent.com/event/1593c0cc-9b7b-4ffc-9f24-d4964dda8206/summary

    • 17 min
    State of the States: 2022 Policy Advocacy Overview

    State of the States: 2022 Policy Advocacy Overview

    2022 is already more than half over, so we at IDF are reflecting on the goals we’ve set, and the progress we’ve made toward meeting them. On this episode, Jamie Sexton, director of state policy, and Becca Russ, grassroots advocacy specialist, discuss the organization’s advocacy work at a state level so far this year, and the progress we’ve made toward improving the lives of those in the PI community.

    Faces of IDF: https://primaryimmune.org/faces-idf

    I Am Immunocompromised Card: https://primaryimmune.org/immunocompromised-card

    Action Alerts: https://primaryimmune.org/current-action-alerts

    • 23 min
    Immunoglobulin Replacement Therapy: As Individual As You with Dr. M. Elizabeth M. Younger

    Immunoglobulin Replacement Therapy: As Individual As You with Dr. M. Elizabeth M. Younger

    M. Elizabeth M. Younger, CRNP, PhD, Assistant Professor of Pediatrics at Johns Hopkins University School of Medicine joined us at a recent IDF forum to discuss immunoglobulin replacement therapy and the various ways it can be tweaked to fit each patient's unique needs.

    The information, terminology, and opinions presented in this forum do not necessarily reflect the views of IDF, its Board of Trustees, sponsors, or donors.

    To view the slideshow used in the presentation, click here: https://primaryimmune.org/sites/default/files/4-For%20Website-IDF%20Forum-Ig%20Therapy-FINAL-5.19.22.pdf

    Thank you to Takeda, CSL Behring, Grifols, and Accredo for sponsoring this event.

    • 1 hr 15 min
    Convalescent Plasma and COVID-19 with Dr. Arturo Casadevall

    Convalescent Plasma and COVID-19 with Dr. Arturo Casadevall

    Dr. Arturo Casadevall is a Bloomberg Distinguished Professor of Molecular Microbiology & Immunology and Infectious Diseases, as well as a recent inductee to the National Academy of Sciences. Today, he joins us to discuss his research into convalescent plasma in the fight against COVID-19.

    • 27 min
    Q&A with IDF's President and CEO, Jorey Berry

    Q&A with IDF's President and CEO, Jorey Berry

    Tammy Black sits down with IDF's new President and CEO, Jorey Berry, to discuss surprises and goals after her first few months with the organization.

    • 30 min

Customer Reviews

5.0 out of 5
19 Ratings

19 Ratings

Hannahmetz ,

Great info

Super informative and well done!

pjeaston9 ,

Love Getting More Knowledge

I love getting any and all knowledge I can and especially up to date information. I don't enjoy reading articles. Hearing a conversation while I am working on things is such a great way to learn more about my CVID and educate myself on new research that is going on, how it effects us and gain more knowledge. Thanks for offering this!!

coastergirl99 ,

Perfect!

The IDF is a godsend to those of us with PI and I love that this podcast is geared towards young adults too! As someone with CVID, I am so grateful for them!Love the first episode and can’t wait for more to come!

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