61 episodes

Welcome to Health Hats, empowering people as they travel together toward best health. I am Danny van Leeuwen and I have worn many hats in my 40+ years in healthcare as a patient, caregiver, nurse, informaticist, and leader. Everyone wears many hats, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in healthcare’s Tower of Babel. Let's make some sense of all this.



My guests and I reflect on what works for people, professionals, and communities in their journeys toward best health: learning, making choices, communicating, and adjusting to realities. We can range from personal, clinical, technical, entrepreneurial, organizational, to whatever interests me at the moment. Join the ride!



Follow my blog, podcast, and resources through my website: https://www.health-hats.com/. See you around the block!

Health Hats, the Podcast Danny van Leeuwen, Health Hats

    • Medicine

Welcome to Health Hats, empowering people as they travel together toward best health. I am Danny van Leeuwen and I have worn many hats in my 40+ years in healthcare as a patient, caregiver, nurse, informaticist, and leader. Everyone wears many hats, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in healthcare’s Tower of Babel. Let's make some sense of all this.



My guests and I reflect on what works for people, professionals, and communities in their journeys toward best health: learning, making choices, communicating, and adjusting to realities. We can range from personal, clinical, technical, entrepreneurial, organizational, to whatever interests me at the moment. Join the ride!



Follow my blog, podcast, and resources through my website: https://www.health-hats.com/. See you around the block!

    A Zebra, Not a Horse: Rare Patient Voice

    A Zebra, Not a Horse: Rare Patient Voice

    Rare Patient Voice: Gateway to paid Patient Advocacy. Diagnosis-based experience brokers. Interview with Wes Michael.







    Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post.



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    Please support my podcast.

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    Episode Notes

    Prefer to read, experience impaired hearing or deafness?

    Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here

    Contents with Time-Stamped Headings

    to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript)



    Introducing Wesley Michael 00:50. 1



    Market research from Wheaties™ to healthcare 06:34. 2



    Diagnosis-based experience brokers 10:11. 3



    Health equity? 12:57. 4



    Waving a magic wand 17:50. 5



    Paying for lived experience 20:03. 5



    Focused and growing 22:16. 6



    Caregivers sharing their voice 24:37. 6



    Reflections 28:13. 7



    Joey van Leeuwen “Up” 29:28  7





    Please comments and ask questions



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    Credits

    Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger



    Sponsored by Abridge



    Thanks to these fine people who inspired me for this episode: Jack Barrette, David Goldsmith, Andrew Hopper, Jen Horonjeff, Joey van Leeuwen, Thatcher Hussain, Greg Merritt, Grace Cordovano, Regina Holliday, Pat Mastors, Libby Hoy, Geri Lynn Baumblatt, Mary Anne Sterling











































































    Links







    Rare Patient Voice



    WEGO Health



    Savvy Coop



    Patient Family-Centered Care Partners



     













































































    Related podcasts and blogs



    https://www.health-hats.com/e-patients-experts-with-lived-experience/



    https://www.health-hats.com/teachable-spirit-patient-family-advisors/

    About the Show

    Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this.



    To subscribe go to https://www.health-hats.com/

    Creative Commons Licensing

    The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is th...

    • 32 min
    Bioethics: Autonomy. For Me, On Behalf of Me.

    Bioethics: Autonomy. For Me, On Behalf of Me.

    Bioethics, the term first coined by someone (who is a controversy) in 1971, includes four principles – respect for autonomy, nonmaleficence (do no harm), beneficence (for me, on behalf of me), and justice. Ken Goodman spoke about two of the four principles autonomy and beneficence. As with much when you start peeling back the layers, bioethics are not simple, not black and white, rather shades of grey.







    Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post.



    Subscribe to Health Hats, the Podcast, on your favorite podcast player











    Please support my podcast.

    CONTRIBUTE HERE









    Episode Notes

    Prefer to read, experience impaired hearing or deafness?

    Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here

    Contents with Time-Stamped Headings

    to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript)



    Introducing Kenneth Goodman 00:55. 1



    Leavened by experience 03:44. 2



    Celebrate autonomy at any age 06:23. 2



    I’m 14. Growing into my autonomy 09:18. 3



    Consent while losing my autonomy 13:23. 4



    Substituted judgment, best interest, reasonable person, oh my 17:08. 5



    Ethics and medical technology 19:15. 6



    Ethics and artificial intelligence 25:23. 7



    A weird, balkanized, for-profit, atherapeutic system 28:19. 7



    Listen to your patient 30:31. 8



    Call to action: Do something 25:58. 9



    Reflections 39:03  10





    Please comments and ask questions



    at the comment section at the bottom of the show notes

    on LinkedIn

    via email

    DM on Instagram or Twitter to @healthhats



    Credits

    Music by permission from Joey van Leeuwen, Boston Drummer, Composer



    Sponsored by Abridge



    Thanks to these fine people who inspired me for this episode: Robert Doherty, Joe Selby, Tim Sullivan, Peter Tetrault, Joan Vitello-Ciccuci, Eileen Terrill, Paulette Seymour-Route, Jodyn Platt











































































    Links







    Kenneth Goodman



    substituted judgment



    the best interest standard



    the reasonable person standard



    cognitive capacity



    extracorporeal membrane oxygenation



    bridge therapy



    destination therapy,













































































    Related podcasts and blogs



    https://www.health-hats.com/caring-for-parents-its-their-life-open-the-door/



    https://www.health-hats.com/ceo-of-your-health-now/



    https://www.health-hats.com/trust-willing-to-be-vulnerable-worth-the-investment/

    About the Show

    Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to a...

    • 41 min
    Physical Therapy: Needed When Needed

    Physical Therapy: Needed When Needed

    Darlene Harrier talks about physical therapy for those with neurodegenerative disorders like MS and Parkinson's: intermittent, life-long care.







    Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post.



    Subscribe to Health Hats, the Podcast, on your favorite podcast player











    Please support my podcast.

    CONTRIBUTE HERE









    Episode Notes

    Prefer to read, experience impaired hearing or deafness?

    Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here

    Contents with Time-Stamped Headings

    to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript)



    Introducing Darlene Harrier 00:55. 1



    Specializing in neurologic physical therapy 03:43. 1



    Discovering the fragility of health 06:41. 2



    I need an expert when I need an expert 10:58. 3



    Developing daily habits 17:32. 4



    Integrated care 21:33. 5



    Music and dance 24:48. 5



    Reflections 28:22  6





    Please comments and ask questions



    at the comment section at the bottom of the show notes

    on LinkedIn

    via email

    DM on Instagram or Twitter to @healthhats



    Credits

    Music by permission from Joey van Leeuwen, Boston Drummer, Composer



    Sponsored by Abridge



    Thanks to these fine people who inspired me for this episode: Jacob Sloane, Rip Kinkle, Keith Puri, Jeff Harrington, Gabrielle Pitman, Dan Fox











































































    Links





    Musicians Can Thrive Podcast

    Multiple Sclerosis Center Beth Israel Deaconess Medical Center













































































    Related podcasts and blogs



    https://www.health-hats.com/overtreated-untreated-and-mistreated/



    https://www.health-hats.com/managing-pain-a-reality-check/



    https://www.health-hats.com/chiropractic-operating-at-peak-performance/

    About the Show

    Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this.



    To subscribe go to https://www.health-hats.com/

    Creative Commons Licensing

    The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines.

    The Show

    Introducing Darlene Harrier

    I’m fortunate. Today my health and well-being attention goes to function and spirit....

    • 31 min
    Accessible Yoga: Honor Your Body

    Accessible Yoga: Honor Your Body

    Melissa Reynolds talks Yoga. With chronic pain and fatigue, there's such a variation.  Some people are always at high levels of pain. Some people vary. There are various stages within fibromyalgia and chronic pain and chronic fatigue. Plus, you have other things going on.  Some people also have arthritis where their chronic pain comes from. Or there are other complexities. You can't say, “this is how you do yoga for chronic pain.” Key is letting people see that they have choices, so there's never a push. They don't need to be aiming for anything. They need to listen to their body and do what jells with their body. What feels nice? For too long, we've been told you have to push yourself. You've got to get to this point.  This is your goal.  I'm sick of external goals   I want to work on my own goals.







    Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post.



    Subscribe to Health Hats, the Podcast, on your favorite podcast player











    Please support my podcast.

    CONTRIBUTE HERE









    Episode Notes

    Prefer to read, experience impaired hearing or deafness?

    Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here

    Contents with Time-Stamped Headings

    to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript)



    Melissa Reynolds revisited 00:52. 1



    Another tool: Yoga 02:47. 1



    Keyword: Accessible 08:20. 2



    Recruiting students 16:49. 4



    Trying stuff that didn’t work before 20:10. 5



    Sleep routine 22:45. 5



    Reflections 25:03  6





    Please comments and ask questions



    at the comment section at the bottom of the show notes

    on LinkedIn

    via email

    DM on Instagram or Twitter to @healthhats



    Credits

    Music by permission from Joey van Leeuwen, Boston Drummer, Composer



    Sponsored by Abridge



    Thanks to these fine people who inspired me for this episode: Alison Rhodes, Amy Baxter, Barby Ingle, Lauren Reimer Etheridge, Lisa Deck, MarlaJan Wexler, Nancy Michaels











































































    Links





    Free five minutes a day for five days challenge https://melissavsfibromyalgia.teachable.com/p/yoga-for-chronic-pain-and-fatigue-challenge/ Learn how to "do" yoga and make your own toolkit in Foundations of Yoga for Chronic Pain and Fatigue https://melissavsfibromyalgia.teachable.com/p/foundations-of-yoga-for-fibromyalgia/













































































     

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    https://www.health-hats.com/fibromyalgia-managing-pain-doing-the-work/



    https://www.health-hats.com/pain-the-solution-many-solutions/



    https://www.health-hats.com/managingpain1pov/



    https://www.health-hats.com/adjusting-to-new-chronic-illness/

    About the Show

    Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little.

    • 26 min
    Trust: Willing to be Vulnerable. Worth the Investment.

    Trust: Willing to be Vulnerable. Worth the Investment.

    Best health builds on trust – trust in people, institutions, information, and solutions. I trust my primary care doc.  I trust my chiropractor. I trust my instincts. I trust my gut. I do. I trust my wife. She trusts me. Trust doesn’t mean blind following. Rather trust leads to more control or feeling more in control. I need trust when I’m in a crisis and can’t think clearly. I listen to my immediate family and my two lead docs (in that order). I’m likely to do what they recommend. Trust is for when I need to decide but can’t or don’t want to. Trust is for times of uncertainty.







    Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post.



    Subscribe to Health Hats, the Podcast, on your favorite podcast player











    Please support my podcast.

    CONTRIBUTE HERE









    Episode Notes

    Prefer to read, experience impaired hearing or deafness?

    Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here

    Contents with Time-Stamped Headings

    to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript)



    Trust when uncertain 00:55. 1



    Introducing Jody Platt 05:29. 2



    TRUST, time, talk, control, and connection 07:37. 2



    Be vulnerable. Act in my best interest 08:36. 2



    Trusting myself, organizations, information 12:35. 3



    Trust makes our lives easier 20:30. 4



    Trust. Worth the investment. 24:45. 5



    Reflections 28:31. 6





    Please comments and ask questions



    at the comment section at the bottom of the show notes

    on LinkedIn

    via email

    DM on Instagram or Twitter to @healthhats



    Credits

    Music by permission from Joey van Leeuwen, New Orleans Drummer, Composer



    Sponsored by Abridge



    Thanks to these fine people who inspired me for this episode: Casey Quinlan, Josh Richardson, Robert Doherty, Sarah Krug, Joe Selby, Laura Zucker, Melissa Reynolds, Barry Blumenfeld, Regina Holliday











































































    Links

    Decisions in a Bed of Trust. PCCDS-LN blog series





    Ethical, legal, and social implications of learning health systems -Platt, J, Spector‐Bagdady, K, Platt, T, et al. Ethical, legal, and social implications of learning health systems. Learn Health Sys. 2018; 2:e10051.

    Patient-Centered Clinical Decision Support Learning Network (PCCDS-LN)

    Melissa ReynoldsCancer 101

    PCORI, the Patient-Centered Outcomes Research Institute.











































































    Related podcasts and blogs



    https://www.health-hats.com/trust-and-choice-magic-levers/



    https://www.health-hats.com/trust/



    Searching Health Hats for "Trust"



     

    About the Show

    Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once.

    • 33 min
    Employed Family Caregivers – The Difference Collaborative

    Employed Family Caregivers – The Difference Collaborative

    My compatriot, Geri Lynn Baumblatt, consults and advocates on the overlapping worlds of employees, family caregivers, employers, and support, especially in nursing. In short, bread winners also caring for family and friends with acute and chronic illnesses and disabilities. I picture these overlapping worlds as balloons mashing up against each other trying not to burst. If you’re a nurse, an employer, a boss, or a caregiving staff member, this chat about the Difference Collaborative is for you.







    Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post.



    Subscribe to Health Hats, the Podcast, on your favorite podcast player











    Please support my podcast.

    CONTRIBUTE HERE









    Episode Notes

    Prefer to read, experience impaired hearing or deafness?

    Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here

    Contents with Time-Stamped Headings

    to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript)



    Introducing Geri Lynn Baumblatt 00:55. 1



    Caregiving, working, and social isolation 07:14. 2



    Manager creates a culture. Not enough. 11:38. 3



    Compassion fatigue 15:51. 4



    Is anybody good at this? 16:59. 4



    Recognizing success 23:11. 5



    Flexibility, loyalty, retention 27:03. 6



    To reveal or not to reveal 31:17. 7



    Honor the caregivers. Help the helpers. 34:49. 8



    Policy 37:20. 9



    Reflections 40:01. 9





    Please comments and ask questions



    at the comment section at the bottom of the show notes

    on LinkedIn

    via email

    DM on Instagram or Twitter to @healthhats



    Credits

    Music by permission from Joey van Leeuwen, New Orleans Drummer, Composer



    Sponsored by Abridge



    Thanks to these fine people who inspired me for this episode: George Karavattuveeti, Carol Zindler, Olga Masevich, Pete Wendel, Alan Arriaga, Denise Brown, Mary Anne Sterling, Susan Murphy, Amber Soucy, MarlaJanWexler, Jeffrey Adams



    Geri Lynn Baumblatt, MA



    Geri grew up working in her dad's primary care practice. After her own experience with the healthcare system during grad school, she decided to help patients, families and clinicians connect, communicate, and navigate the habitrail that is the U.S. Health System.



    In 2003, she joined the founders of Emmi Solutions  to design multimedia programs to educate patients and families, set expectations, equip them to ask important questions, augment informed consent, improve outcomes, and create a new channel for patient-clinician communication. Over the next 15 years, Geri designed a range resources to help people participate in shared decision making, care transitions, live with chronic conditions, and care for loved ones.



    As an independent consultant she creates and tests resources for patients and families, helps organizations incorporate the patient and family voice into the development process, and design engagement and outcomes studies.



    She recently co-founded the Difference Collaborative to help employers ensure working family caregivers maintain their health, employment, wellbeing, and sanity — and to create a culture of care so they can work, care, and thrive. They partner on research and bring together employers, employees, researchers, product/service providers, and advocacy groups to address this in the workplace. They recently conducted research on nurses who are family caregivers and hosted a summit on the topic .



    She serves on the Board of the Society for Participatory Medici...

    • 41 min

Customer Reviews

Lana Camiel ,

So inspired!

Recently discovered Danny's show and wanted to express my admiration for what he is doing. It takes amazing courage, perseverance and wisdom to do this. Looking forward to the future episodes!

JGB33podcastfan ,

Generous sharing

Danny takes us right into the inspiring lives of his guests, where they so generously share their journeys.

tpf_maria ,

Wisdom and empathy in beautiful stories!

Danny combines his wisdom with deep empathy to serve others through beautiful storytelling. His insights, guidance and humor help people move their life forward one day at a time. A must-listen podcast!

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