The Crohn's Colitis Effect is a non-profit Inflammatory Bowel Disease advocacy group specializing in spreading awareness for IBD, Crohn's, and Colitis. Our monthly IBD Round Table Discussion brings some of the leading IBD Advocates together to talk about this invisible illness and what we can do to make life better. Regardless if you are a patient, caregiver, or just someone looking to educate themselves more about this gastrointestinal disease, there is something for everyone in these webcasts. Our mission is to make IBD a "household" name!
Episode 14 – FAQ with Dr Peter Higgins
Dr. Peter Higgins of the University of Michigan IBD Center is our special guest this month. Dr. Higgins talks to us about the latest IBD research that is going on.. New IBD drugs that have just come to market Ozanimod and Mongersen.. Can you have both Crohn’s Disease and Ulcerative Colitis? The 23andMe Study, The GEM Project… Plus much, much more!
Host: Frank Garufi Jr.
Panelist: Marisa Lauren Troy, Ryan Stevens, Sara Ringer
Special Guest: Dr. Peter Higgins of The University of Michigan IBD Center
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Google+ : https://plus.google.com/+TheCrohnsColitisEffect
LinkedIn – https://www.linkedin.com/company/the-crohn%27s-colitis-effect
SPECIAL – Meet Eric of VeganOstomy
Meet Eric Polsinelli of VeganOstomy.ca – An #IBD Advocate, Crohn’s Disease patient, Ostomate, and someone who truly believes in living a vegan lifestyle
Eric gives us a look into his life before being diagnosed with Crohn’s Disease, what lead up to needing a permanent ileostomy, and his decision to start advocating for Crohn’s and Ulcerative Colitis, Eric also gives us insight into the product reviews he does for ostomy appliances and apparel plus his advice for other ostomate’s that might find it hard trying / experimenting with new equipment.
Don’t let the name “Vegan” in his title turn you away! The information and awareness he shares with us in this interview far exceeds any diet lifestyle he subscribes too!
Links for Eric:
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SPECIAL – IBDSocialCircle at DDW14
In may, I was invited by Janssen Biotech, a Johnson and Johnson company, to attend Digestive Disease Week 2014 in Chicago and be a part of the IBDSocialCircle. The IBD Social Circle comprises of the leading IBD advocates Marisa Lauren Troy of JournalingIBD.org, Sara Ringer of InflamedandUntamed.com, Megan Starshak and Andrea Meyers of The Great Bowel Movement, Amber Tresca of About.com, and Ryan Stevens of CrohnsGuy.com
The purpose of the IBD Social Circle is to bridge the gap between IBD patients, medical professionals like gastroenterologist, and Janssen.
The video you are about to see was made while attending Digestive Disease Week in Chicago and gives you an insight on what we are trying to do. If you have any questions or feedback on this video I would love to hear from you.
Episode 13 – IBD Public Awareness
After a small summer hiatus, The IBD Round Table is BACK for Episode 13. Ryan Stevens will tell us about his AMAZING swim across Lake Erie to raise public awareness for Inflammatory Bowel Disease… We’ll discuss the ALS Ice Bucket Challenge and if IBD needs a similar campaign… And the new CCFA PSA advertisement, is it better than the Escape The Stall campaign?? We also take your questions during the show!
Episode 13 Panelist are Frank Garufi Jr., Sara Ringer, Marisa Lauren Troy, Ryan Stevens, and Sarah Choueiry
SPECIAL – Meet Frank Garufi Jr
Sara Ringer from Inflamed and Untamed ( http://inflamed-and-untamed.com ) takes over the hosting duties of The #IBD Round Table Discussion and interviews me, Frank Garufi Jr. of The Crohn’s Colitis Effect ( http://cceffect.org ).
You’ll get an in depth look at the life of Frank Garufi Jr. What life was like growing up for him.. What it’s like being the caregiver to his son Domenic who was born with Crohn’s Disease… What it’s like being IBD Advocate.. We also have a blind folded drawing contest and take your questions live during the show
Episode 12 – #DDW14 and #WorldIBDDay
We’ve got another exciting episode this month!!! We discuss #DDW14 ( Digestive Disease Week 2014 ) in Chicago, Janssen Biotech (makers of Remicade ) and the #IBDSocialCircle meeting, plus #WorldIBDDay 2014.
Episode 12 Panelist are Frank Garufi Jr., Sara Ringer, Marisa Lauren Troy, and Ryan Stevens
IBD Round Table is very helpful
The IBD Round Table Discussion is very helpful to the IBD Community… It’s helpful to patients, caregivers, and also the general public who wants to understand more about living with Inflammatory Bowel Disease
IBD Round Table
Raw unscripted discussions by actual IBD patients hosted by a courageous father of a young IBD patient. Informative, encouraging, empowering!! Please keep marching on!!!
Bringing the inflammatory bowel disease community together!
The IBD Roundtable has changed the way many advocates operate. More so in the Crohn's and ulcerative community because we have been so greatly influenced by the Roundtable. Most videos are boring and offer no hope or anything real. These are real patients discussing real things - most often things that are hard for many other patients to talk about. It can take years for IBD patients to feel comfortable talking about their disease thus forcing them to suffer in silence. This roundtable brings people together. It is interactive and really makes you feel like there is a ton of people behind you. This was an amazing thing that started last year and I'm not sure where the Crohn's and ulcerative colitis community would be if this was never started. It is also very educational for people who don't have inflammatory bowel disease. Entertainment plus informative without it being too over the top with details. Amazing podcast! Highly recommend.