The Desperate for a Diagnosis Podcast with Laura Nozicka

Laura Nozicka
  • 5.0 (4)
  • Health & Fitness
  • Updated Semiweekly

Tired of the healthcare revolving door? Feeling dismissed, labeled, pigeonholed? Have you heard, "It's all in your head!" or "You don't look sick." Have you seen doctor after doctor begging to put a name to your symptoms? How long have you been seeking answers? Months? Years? This podcast walks through the journeys of patients who have successfully found a diagnosis as well as those who are still searching for answers. Healthcare professionals also tell stories from their side of the bedside highlighting challenges in the heallthcare system often preventing patients from getting a diagnosis.

  1. Who Takes Care of the Caregiver? How Love and Loss Inspired a Mission to Support Caregivers with Paul Kidwell

    Mar 8

    Who Takes Care of the Caregiver? How Love and Loss Inspired a Mission to Support Caregivers with Paul Kidwell

    In this heartfelt episode, Laura Nozicka sits down with Paul Kidwell, a veteran caregiver, author and advocate, to share his profound journey caring for his wife, AiBai, who battled Parkinson's disease for over 18 years. Their story highlights the emotional, physical, and societal challenges of caregiving, especially from a male perspective and explores innovative projects aimed at supporting caregivers. In this episode: Paul’s personal story caring for AiBai and her life beyond Parkinson'sThe unique experience of caregiving for a loved one with a progressive illnessHow caregivers often feel isolated and how to combat lonelinessThe importance of inclusion of caregivers in medical conversations and decision-makingDetails about Paul’s upcoming "Butterfly Season" project—bringing opera and caregiving togetherThe role of masculinity and societal perceptions in caregiving rolesPractical resources and strategies for new caregivers to navigate their journeyThe transformational power of grief, love, and storytelling in healingIn Sickness Men in the Culture of Caregiving Podcast PBS Caregiving DocumentaryPaul on LinkedInTimestamps: 00:00 - Introducing Paul Kidwell and his caregiving journey 02:20 - Current weather in Boston and Chicago - going with the flow 05:02 - Paul’s deepest condolences on his wife’s passing 05:40 - Understanding Parkinson’s disease and her diagnosis 07:20 - The progression of AiBai’s illness and dementia aspects 09:45 - Celebrating AiBai’s life, her passions and her love for mechanical tinkering 10:42 - Heartwarming stories of her love for fixing things and community connections 15:14 - Paul’s touching final moments with AiBai and reflecting on her legacy 16:38 - Connecting their love for ballroom dancing and opera 18:42 - Paul’s own journey with opera, from childhood to recent projects 32:49 - The upcoming "Butterfly Season" tour and engaging local caregivers 35:22 - Using storytelling and grief processing through the arts 40:11 - Addressing the isolation of caregivers and the importance of community 45:24 - Gender roles in caregiving and the importance of sharing men's stories 50:30 - Strategies for new caregivers and the importance of resources 58:29 - How healthcare can better support caregivers at appointments and in daily life 63:15 - The societal gaps in caregiver support and workplace accommodations 65:45 - Loving memories and how AiBai would support Paul’s advocacy 68:36 - Closing thoughts and Rosalind Carter's wisdom on supporting caregivers Connect with Laura Nozicka Email: lauramarie@desperateforadiagnosis.com Website: www.desperateforadiagnosis.com ⁠⁠⁠⁠⁠⁠⁠⁠Facebook⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ YouTube ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠@desperateforadiagnosis ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ Instagram ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ @desperateforadiagnosis ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ TikTok @desperateforadiagnosis

    1h 10m
  2. A Scleroderma Warrior’s Journey: From Diagnosis to Advocacy with Falguni Desai

    Feb 19

    A Scleroderma Warrior’s Journey: From Diagnosis to Advocacy with Falguni Desai

    In this powerful episode of Desperate for a Diagnosis, Laura sits down with Falguni Desai, a scleroderma warrior, advocate, and survivor who nearly lost her life after a rapid progression of this rare autoimmune disease. Falguni shares her path from early misdiagnosis to a life-threatening renal crisis, the reality of living with a complex chronic condition, and how she rebuilt her life, voice, and purpose through advocacy. This conversation explores the importance of early diagnosis, self-advocacy, collaborative care, and the emotional resilience required to navigate rare disease. If you or someone you love is searching for answers, support, or hope — this episode is for you. Resources:1. Scleroderma Research Foundationhttps://srfcure.org/ 2. Steffens Scleroderma Foundationhttps://www.steffens-scleroderma.org/ 3. National Scleroderma Foundationhttps://scleroderma.org/ 4. Scleroderma Foundation of Californiahttps://myscleroderma.org/  5. Scleroderma Newshttps://sclerodermanews.com 6. Instagram - Dr Volkmann the_holistic_rheumatologist 7. Checklist created by Dr Volkmann when visiting a doctor. Contact Falguni: Linkedin https://www.linkedin.com/in/falgunidesai13/ Connect with Laura Nozicka Email: lauramarie@desperateforadiagnosis.com Website: www.desperateforadiagnosis.com ⁠⁠⁠⁠⁠⁠⁠Facebook⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ YouTube ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠@desperateforadiagnosis ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ Instagram ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ @desperateforadiagnosis ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ TikTok @desperateforadiagnosis

    1h 7m
  3. LIVE RECORDING: Unheard & Unhealed: The Silent Epidemic of Dismissed Patients and Broken Trust in Healthcare

    11/10/2025

    LIVE RECORDING: Unheard & Unhealed: The Silent Epidemic of Dismissed Patients and Broken Trust in Healthcare

    Recorded live at the Illinois Society for Healthcare Marketing and Public Relations (ISHMPR) annual conference on September 18, 2025, this presentation by Laura Nozicka, founder of Big Idea Tango and host of Desperate for a Diagnosis, takes a bold look at one of healthcare’s most unspoken challenges...what happens when patients feel dismissed, disbelieved, or left without a diagnosis. With over 30 years of experience in healthcare marketing, branding, and market research, Laura brings both professional insight and personal passion to the stage. Through patient stories and physician perspectives, she uncovers the deep emotional and systemic roots of medical gaslighting, communication breakdowns, and eroding patient trust. You’ll hear how real people — including patients who saw dozens of doctors before finding answers — navigated years of misdiagnoses and disbelief. You’ll also hear from physicians like Dr. Alan Rapoport, Dr. Joan Naidorf, and Dr. Colette Edwards, who share their own revealing perspectives from the other side of the bedside. Key Themes: What medical gaslighting sounds like — and how it feels Why women and marginalized groups face greater diagnostic delays The ripple effects of physician burnout on patient experience Systemic blind spots that cause trust breakdowns How hospital marketers and communicators can help restore trust The power of storytelling, empathy, and co-created communication Laura closes with a call to action for healthcare professionals: to elevate patient experience by moving beyond promotion and toward trust-building — one honest conversation at a time. About Laura Nozicka: Laura is a healthcare marketer, facilitator, and podcaster dedicated to elevating the human experience in healthcare. Through her company Big Idea Tango and her podcast Desperate for a Diagnosis, she helps systems, teams, and patients find their voices, bridge communication gaps, and rebuild trust through empathy and storytelling. Stay well—and keep pushing for answers. Connect with Laura Nozicka Email: lauramarie@desperateforadiagnosis.com Website: www.desperateforadiagnosis.com ⁠⁠⁠⁠⁠⁠⁠Facebook⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ YouTube ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠@desperateforadiagnosis ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ Instagram ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ @desperateforadiagnosis ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ TikTok @desperateforadiagnosis

    55 min

  4. 07/07/2025

    36 procedures, 26 doctors and a 30-year search to solve a medical mystery with NYC writer and producer, Nika C. Beamon

    In this episode of the Desperate for a Diagnosis podcast, host Laura Nozicka welcomes Nika Beamon, an accomplished writer and producer in New York City. Nika shares her inspirational story of navigating nearly three decades of misdiagnosed symptoms and her relentless pursuit of a diagnosis. From experiencing spontaneous fevers and joint pain in her college years to being diagnosed with a rare autoimmune disease, IgG4-related disease, Nika discusses her journey, the impact on her life, and how she turned her struggles into a message of advocacy. The conversation also delves into her advocacy work, her achievements in journalism, and the importance of being your own health advocate. With a mix of humor and resilience, Nika's story is a testament to living life fully despite chronic illness. Connect with Nika C. Beamon https://nikabeamon.com/ Connect with Laura Nozicka Email: lauramarie@desperateforadiagnosis.com Website: www.desperateforadiagnosis.com ⁠⁠⁠⁠⁠⁠Facebook⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ YouTube ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠@desperateforadiagnosis ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ Instagram ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ @desperateforadiagnosis ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ TikTok @desperateforadiagnosis

    1h 10m

  5. 06/11/2025

    What Happens After the Diagnosis? Inside the AYA Cancer Experience with Ambreen Maan, MSW, LSW

    In this episode, I interview Ambreen Maan, a dedicated cancer advocate and licensed social worker. Ambreen shares her harrowing yet inspiring journey from being a young cancer patient, initially misdiagnosed with potential malaria, to becoming a champion for the adolescent and young adult (AYA) cancer community. She discusses the uniquechallenges faced by AYA cancer patients, the importance of self-advocacy, and the critical need for support tailored to the AYA demographic. Ambreen also delves into her experiences with healthcare disparities and how they influenced her shift from aspiring to be a doctor to focusing on social work and advocacy. Through her story, Ambreen highlights the significance of finding one's voice and support network during and after a cancer diagnosis. Connect with Ambreen American Tumor Board Association - info@atba.org Connect with Laura Nozicka Email: lauramarie@desperateforadiagnosis.com Website: www.desperateforadiagnosis.com ⁠⁠⁠⁠⁠Facebook⁠⁠⁠⁠⁠⁠⁠⁠⁠ YouTube ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠@desperateforadiagnosis ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ Instagram ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ @desperateforadiagnosis ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ TikTok @desperateforadiagnosis

    1h 17m
  6. Pelvic Floor Physical Therapy: What Your Doctor Didn’t Tell You (But Should Have) with Alina Gur, DPT, PT, RYT

    05/29/2025

    Pelvic Floor Physical Therapy: What Your Doctor Didn’t Tell You (But Should Have) with Alina Gur, DPT, PT, RYT

    Join host Laura Nozicka on the 'Desperate for a Diagnosis' podcast as she talks with Alina Gur, an experienced pelvic floor physical therapist, in honor of Pelvic Health Awareness Month. They discuss the importance of pelvic floor health and break down misconceptions about pelvic floor therapy. Medical gaslighting or feeling dismissed can also be a common experience for women with chronic pelvic pain, especially when standard imaging and lab work fail to reveal a clear cause, leaving physicians with limited tools like medications or hormones. The truth is, pelvic pain is often multifactorial—arising from complex, overlapping issues across the gastrointestinal, urinary, gynecological, musculoskeletal, neurological, hormonal, and even psychosocial systems—making it hard to isolate a single diagnosis. Because our fragmented medical system rarely considers how these systems interact, patients are often dismissed or bounced between specialists without ever receiving comprehensive care. Alina shares her extensive experience, treatment modalities, and the benefitsof telehealth services. The conversation aims to demystify pelvic floor therapy and encourage patients to seek care early. Connect with AlinaYogalina.PT@gmail.com⁠ Resources: Cozean Screening Tool:  https://docs.wixstatic.com/ugd/d1026c_42a0fda8e5644930950d754619586614.pdfContact info for listeners:  Coming soon: women’s holistic health/wellness Instagram and podcast @linaloveswellness – would love to connect listeners with that once up and running. SimpleTherapy or Traveling! I could be anywhere! :) www.pausitivehealth.com Connect with Laura Nozicka Email: lauramarie@desperateforadiagnosis.com Website: www.desperateforadiagnosis.com ⁠⁠⁠⁠Facebook⁠⁠⁠⁠⁠⁠⁠⁠ YouTube ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠@desperateforadiagnosis ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ Instagram ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ @desperateforadiagnosis ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ TikTok @desperateforadiagnosis

    1h 14m

  7. 05/14/2025

    What Doctors Don’t See Could Hurt You: Reclaiming Your Story in the Healthcare System

    In this powerful episode of Desperate for a Diagnosis, host Laura Nozicka is joined by Irene Woerner and Paul Evans for a deeply insightful conversation about one of the most overlooked threats to patient care: fragmented, incomplete, and inaccessible medical data. What happens when your doctor doesn’t have the full picture? The consequences can be devastating—misdiagnoses, adverse drug interactions, delayed treatments, and even medical errors that could’ve been prevented with the right information at the right time. Irene, a former NASA software innovator, and Paul, a longtime healthcare researcher, bring both technical expertise and personal compassion to the conversation. They shine a light on what’s broken in the healthcare data system and what patients can do to take control of their own health narratives. Together, we explore: Why you should own your health data—and what that really means The impact of data gaps on diagnosis, treatment, and medical safety How patients unknowingly lose control of their health information What it takes to track, protect, and share your records with the right people How new technologies (like AI and blockchain) can actually work for patients What happens when health systems are legally liable for your privacy—and why that matters What it means to build a “digital twin” of your health story to support continuity of care Real-life stories of patients and families navigating this confusing system Whether you're managing a chronic illness, caring for a loved one, or simply trying to be proactive about your health, this episode offers both a wake-up call and a toolkit for becoming your own most powerful advocate. Key Takeaways: You shouldn’t have to repeat your story at every appointment—your records should move with you. Healthcare providers often work with partial information, increasing your risk of harm. Most patients don’t know who has access to their data—or how it’s being used. You deserve transparency, ownership, and agency over your health journey. Empowering yourself with your own data is one of the most protective actions you can take. Don’t forget to subscribe, rate, and share the podcast—especially with someone who’s navigating the system and deserves to feel seen and heard. Connect with emTruth https://www.emtruth.com/ Connect with Laura Nozicka Email: lauramarie@desperateforadiagnosis.com Website: www.desperateforadiagnosis.com ⁠⁠⁠Facebook⁠⁠⁠⁠⁠⁠⁠ YouTube ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠@desperateforadiagnosis ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ Instagram ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ @desperateforadiagnosis ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ TikTok @desperateforadiagnosis

    1h 13m
  8. Sex, Drugs and a Side of Therapy: A Legal Perspective on Mental Health Malpractice with Scott Hammer

    05/03/2025

    Sex, Drugs and a Side of Therapy: A Legal Perspective on Mental Health Malpractice with Scott Hammer

    In this compelling episode of The Desperate for a Diagnosis Podcast, host Laura Nozicka welcomes attorney Scott Hammer, a legal expert who has represented mental health professionals for over 40 years. Known for his sharp insight and extensive experience, having handled more than 2,000 cases, Scott shares an unfiltered look into the legal challenges that psychiatrists, psychologists, social workers, and therapists face today. Hear Scott detail the most common reasons mental health providers get sued, including suicide-related cases, medication errors, breaches of confidentiality, and boundary violations. He pulls back the curtain on some of the most shocking and ethically complex cases he’s encountered, from therapists having inappropriate relationships with patients to questionable uses of alternative treatments like ketamine and ecstasy. This episode also explores how societal shifts from increased openness about therapy to the influence of social media have changed the landscape of mental health treatment and litigation. Scott provides practical advice for both clinicians and patients, emphasizing the importance of boundaries, documentation, and trust. With stories that range from tragic to downright bizarre, this episode offers critical insights into a world where compassion and caution must coexist. 🎙️ Bonus: Scott shares his love for blues music and his 28-year run as host of Hambone's Blues Party on WDCB 90.9 FM. Topics Include: Boundary violations and dual relationshipsSuicide and the legal expectations placed on therapistsConfidentiality breaches in the digital ageThe legal risks of non-traditional therapiesWhy therapists must remain vigilant and supported in their practiceAdvice for families and patients navigating mental health systems Connect with Scott Hammer: Scott.Hammer@wilsonelser.com Connect with Laura Nozicka Email: lauramarie@desperateforadiagnosis.com Website: www.desperateforadiagnosis.com ⁠⁠Facebook⁠⁠⁠⁠⁠⁠ YouTube ⁠⁠⁠⁠⁠⁠⁠⁠⁠@desperateforadiagnosis ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ Instagram ⁠⁠⁠⁠⁠⁠⁠⁠⁠ @desperateforadiagnosis ⁠⁠⁠⁠⁠⁠⁠⁠⁠ TikTok @desperateforadiagnosis

    1h 33m
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Ratings & Reviews

5
out of 5
4 Ratings

About

Tired of the healthcare revolving door? Feeling dismissed, labeled, pigeonholed? Have you heard, "It's all in your head!" or "You don't look sick." Have you seen doctor after doctor begging to put a name to your symptoms? How long have you been seeking answers? Months? Years? This podcast walks through the journeys of patients who have successfully found a diagnosis as well as those who are still searching for answers. Healthcare professionals also tell stories from their side of the bedside highlighting challenges in the heallthcare system often preventing patients from getting a diagnosis.

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