100 episodes

We are Stephen and Lori Saux and welcome to the If We Knew Then Podcast. We are parents of two children and one of them has Down Syndrome, Liam. When Liam was born we didn't know very much about Down Syndrome and most of the information we did have didn't seem very hopeful and positive. Well this podcast aims to share honest and useful conversations about supports, therapies, education and society as it pertains to Down Syndrome advocacy and parenting.

If We Knew Then - Down Syndrome Podcast Stephen and Lori Saux

    • Kids & Family
    • 5.0 • 106 Ratings

We are Stephen and Lori Saux and welcome to the If We Knew Then Podcast. We are parents of two children and one of them has Down Syndrome, Liam. When Liam was born we didn't know very much about Down Syndrome and most of the information we did have didn't seem very hopeful and positive. Well this podcast aims to share honest and useful conversations about supports, therapies, education and society as it pertains to Down Syndrome advocacy and parenting.

    106. Zeno Mountain Farm: Telling Stories of Diversity and Inclusion - Ila Halby

    106. Zeno Mountain Farm: Telling Stories of Diversity and Inclusion - Ila Halby

    It was so nice spending some time with founder Ila Halby to talk about the Zeno Mountain Farm Camps, their feature film “Best Summer Ever” and the power of representation in film. Whether used as a noun or a verb, Zeno stands for inclusion.

    Zeno’s Website: https://zenomountainfarm.org

    Zeno’s IG: https://www.instagram.com/zenomountainfarm/

    Episode Transcript: https://ifweknewthen701833686.wordpress.com/2022/06/23/106-zeno-mountain-farm-telling-stories-of-diversity-and-inclusion-ila-halby/2/

    Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

    • 47 min
    105. The Improvaneer Method: Using Improvisation To Build Skills and Change Perceptions - An interview with Rob Snow

    105. The Improvaneer Method: Using Improvisation To Build Skills and Change Perceptions - An interview with Rob Snow

    In this episode we are joined by Rob Snow, the founder of The Improvaneer Method. The Improvaneer Method uses improvisation to build skills that will greatly improve social, workplace and lifetime opportunities in those with developmental disabilities. With both in-person and online classes, it is widely assessable and has been a real game changer for many people in our community. We also talk briefly about Rob’s book, ‘What I Should Have Said’ and his ‘Minimize The Mountain’ talk. 

    Improvaneer Method:  https://www.theimprovaneermethod.com/

    Rob’s Book ‘What I Should Have Said’: https://www.weneedasign.net/the-book

    Minimize The Mountain (YouTube): https://youtu.be/MtZZ_7xZhT0

    Stand Up for Downs: https://www.standupfordowns.org

    Episode Transcript: https://ifweknewthen701833686.wordpress.com/2022/06/17/105-the-improvaneer-method-using-improvisation-to-build-skills-and-change-perceptions-an-interview-with-rob-snow/2/

    Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

    • 56 min
    104. Lena Dunham: A Champion For Diversity and Inclusion

    104. Lena Dunham: A Champion For Diversity and Inclusion

    This week we are honored to interview actress, writer, producer and director Lena Dunham. Lena cast our son, Liam, in her film SHARP STICK and it was one of the most supportive, inclusive and beautiful experiences we’ve had on this journey. Her set was a model environment for our society and we talk to her about how she developed her advocacy for so many marginalized groups and individuals, what she learned from working with Liam and her future family plans.

    Episode Transcript: https://ifweknewthen701833686.wordpress.com/2022/06/08/104-lena-dunham-a-champion-for-diversity-and-inclusion/2/

    Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

    • 54 min
    103. Finding Our Way Through A Tough Conversation - Lynette Louise

    103. Finding Our Way Through A Tough Conversation - Lynette Louise

    *Trigger Warning: The r-word is used in this conversation.

    This week we interview Lynette Louise who is board certified in Neurofeedback. We were very interested in the science of Neurofeedback but early on in the conversation we moved to a serious discussion about the use of the r-word and the reasons why Lynette uses it. This episode may feel a bit intense for many of you and we understand why, but we highly recommend listening all the way through to the end.

    Episode Transcript: https://ifweknewthen701833686.wordpress.com/2022/06/03/103-finding-our-way-through-a-tough-conversation-lynette-louise/2/

    Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

    • 59 min
    102. DSC2U: Preventative and Proactive Means To Staying Healthy with Dr. Brian Skotko

    102. DSC2U: Preventative and Proactive Means To Staying Healthy with Dr. Brian Skotko

    This week we get to talk to Dr. Brian Skotko again! Dr. Brian has some updates to DSC2U.org to discuss and we also chat about the T21RS International Conference that will be taking place in Long Beach, CA. June 9-12.

    Dr. Brian Skotko is the director of the Down Syndrome Program at Massachusetts General Hospital, a Board-certified medical geneticist and has dedicated his professional energies toward children with cognitive and developmental disabilities.

    DSC2U: https://www.dsc2u.org

    5-min video about DSC2U: https://youtu.be/u-DlSQanj54

    Trisomy 21 Research Society International Conference (June 2022): http://www.t21rs.org

    More about Dr. Skotko: https://www.massgeneral.org/doctors/19069/brian-skotko

    Episode Transcript: https://ifweknewthen701833686.wordpress.com/2022/05/26/102-dsc2u-preventative-and-proactive-means-to-staying-healthy/2/

    Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

    • 52 min
    101. Learning To Take Things Step By Step: with Michelle & Paul Tesori

    101. Learning To Take Things Step By Step: with Michelle & Paul Tesori

    We were so fortunate to get to spend some time with Michelle and Paul Tesori. We met this Dynamic Duo through our good friend, actor Andy Buckley, and it is fitting that this episode is being released on PGA Championship weekend since Paul has been a PGA Tour caddie for nearly 20 years. Inspired by their son Isiah, Michelle and Paul created the Tesori Family Foundation to help support the Down syndrome community. We talk about education frustrations, what the Tesori's are doing to make a change and how we can harness our anger into a motivator to make a change.

    The Tesori Foundation: https://tesorifamilyfoundation.org

    Robb Scott’s Viral Video: https://www.youtube.com/watch?v=m8sPT6-iGBE

    Episode Transcript: https://ifweknewthen701833686.wordpress.com/2022/05/19/101-learning-to-take-things-step-by-step-with-michelle-paul-tesori/2/

    Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

    • 1 hr

Customer Reviews

5.0 out of 5
106 Ratings

106 Ratings

Spraz ,

Empowering and Hopeful

The interview with Jake Pratt was so wonderful. My first thought when I found out my baby would have Down syndrome was, “I will never get to take my child to college! He will never be independent, he will never drive!” And that is NOT TRUE! So grateful for Jake’s example.

DadvocateGuy ,

This podcast makes me smile

Stephen and Lori really put themselves out there in these wonderful, wide-ranging, and honest podcasts. As a dad of a young man with DS, it’s nice to tune in and listen to calm, thoughtful and deeply kind-hearted people covering personal subjects I don’t get around to (or avoid) thinking about. They make me think and smile, and that’s a gift. Thanks, Team Saux!
~ Brian, a dadvocate

Ksweet24 ,

Special Needs Mom

This podcast has been such an encouragement to my heart during my first 9 months of adjusting to having a baby with Down Syndrome. Thank you for sharing your stories with us.

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