47 episodes

We are Stephen and Lori Saux and welcome to the If We Knew Then Podcast. We are parents of two children and one of them has Down Syndrome, Liam. When Liam was born we didn't know very much about Down Syndrome and most of the information we did have didn't seem very hopeful and positive. Well this podcast aims to share honest and useful conversations about supports, therapies, education and society as it pertains to Down Syndrome advocacy and parenting.

If We Knew Then - Down Syndrome Podcas‪t‬ Stephen and Lori Saux

    • Parenting
    • 5.0 • 83 Ratings

We are Stephen and Lori Saux and welcome to the If We Knew Then Podcast. We are parents of two children and one of them has Down Syndrome, Liam. When Liam was born we didn't know very much about Down Syndrome and most of the information we did have didn't seem very hopeful and positive. Well this podcast aims to share honest and useful conversations about supports, therapies, education and society as it pertains to Down Syndrome advocacy and parenting.

    46. Coming Down The Mountain: Our Interview with Julie Anne Robinson

    46. Coming Down The Mountain: Our Interview with Julie Anne Robinson

    Our conversation with Executive Producer and Director of ‘Bridgerton’, Julie Anne Robinson about the film ‘Coming Down The Mountain’ and the importance of inclusion in media.
    ‘Coming Down The Mountain’ on Prime Video: https://www.amazon.com/gp/video/detail/B082P67X6D/ref=atv_dp_share_cu_r 
    Frostig School: https://frostigschool.org
    Episode Transcript: https://ifweknewthen701833686.wordpress.com/2021/03/03/46-coming-down-the-mountain-our-interview-with-julie-anne-robinson/2/
    Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

    • 35 min
    45. Speech Therapy with Kerri Wake of McRory Pediatrics

    45. Speech Therapy with Kerri Wake of McRory Pediatrics

    Speech Pathologist, Kerri Wake, joins us to talk about communication, supportive tools parents can provide their children and the pathways to receiving speech therapy in the school setting.
    The McRory Pediatrics Website: https://www.mcrorypediatrics.com
    The Hanen Centre: http://www.hanen.org/Home.aspx
    Early Milestone List: https://speechhearing.columbian.gwu.edu/sites/g/files/zaxdzs1996/f/downloads/Milestonesguide.pdf
    Article on the benefits of AAC (speech generating devices): https://digitalcommons.unl.edu/cgi/viewcontent.cgi?article=1088&context=specedfacpub
    Episode Transcript: https://ifweknewthen701833686.wordpress.com/2021/02/25/45-speech-therapy-with-kerri-wake-of-mcrory-pediatrics/2/
    Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

    • 1 hr 10 min
    44. Looking Back At A Decade: Liam Turns 10

    44. Looking Back At A Decade: Liam Turns 10

    Stephen and Lori discuss the process of acceptance, the importance of communication and how to take time for yourself. Originally set for release a year ago, this episode celebrates Liam's 10th birthday and all the accomplishments and lessons learned over a wonderful decade.
    Episode Transcript: https://ifweknewthen701833686.wordpress.com/2021/02/18/44-looking-back-at-a-decade-liam-turns-10/2/
    Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

    • 35 min
    43. Occupational Therapy with Erin Stanford of McRory Pediatrics - Part 2

    43. Occupational Therapy with Erin Stanford of McRory Pediatrics - Part 2

    Occupational Therapist, Erin Stanford from McRory Pediatrics, visits us again for Part 2 of our OT discussion. This week we concentrate on behavior and what information parents should have to provide the best supports for their child.
    The McRory Pediatrics Website: https://www.mcrorypediatrics.com
    Episode Transcript: https://ifweknewthen701833686.wordpress.com/2021/02/08/43-occupational-therapy-erin-stanford-of-mcrory-pediatrics-part-2/2/
    Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

    • 56 min
    42. Occupational Therapy with Erin Stanford of McRory Pediatrics - Part 1

    42. Occupational Therapy with Erin Stanford of McRory Pediatrics - Part 1

    Occupational Therapist at McRory Pediatrics, Erin Stanford, visits us to discuss at home and at school OT and helps us more clearly define the overlap of this therapy with Physical Therapy, Speech and Behavior Therapies.
    The McRory Pediatrics Website: https://www.mcrorypediatrics.com
    Episode Transcript: https://ifweknewthen701833686.wordpress.com/2021/02/04/42-occupational-therapy-erin-stanford-of-mcrory-pediatrics-part-1/2/
    Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

    • 58 min
    41. Behavior: A Conversation with Kyle Davis of McRory Pediatrics

    41. Behavior: A Conversation with Kyle Davis of McRory Pediatrics

    Clinical Supervisor of Behavioral Services at McRoryPediatrics, Kyle Davis, visits us to discuss behavioral issues at home and at school. He also answers questions about when, how and why behaviors need to be addressed.
    The McRory Pediatrics Website: https://www.mcrorypediatrics.com
    Episode Transcript: https://ifweknewthen701833686.wordpress.com/2021/01/28/41-behavior-a-conversation-with-kyle-davis-of-mcrory-pediatrics/2/
    Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

    • 1 hr 23 min

Customer Reviews

5.0 out of 5
83 Ratings

83 Ratings

A Childers ,

Encouraging

This is such an encouraging and empowering podcast. Thank you for all you do for our kiddos!

Mexitalian70 ,

Casual, Informative & Educational

This was a insightful and powerful podcast! I loved the passion and strength that Georgianna brought. It’s great to know that there is a advocate like this that can stand up for all those parents that are emotionally drained and frustrated from not being heard.

johnnydc6565 ,

Informative and enlightening listen

Great listen. Stephen and Lori are engaging and quite obviously excellent parents. They share their stories of lessons learned in a relatable, authentic manner. Big fan of Lori, she’s always so thoughtful and kind! Growing up and sorting out the world can be a challenge, with or without special needs, and this podcast provides a wonderful resource for all parents!

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