49 episodes

Our journal of learning about and living with Lichen Sclerosus from a patient's point of view. Bringing community and awareness to a disorder that hardly anyone knows about. Join me as I research Lichen Sclerosus from every angle and share my struggles living with it. My hope is to build a community of survivors so we can affect change in our lives and the research.

Lichen Sclerosus Podcast Kathy

    • Health & Fitness
    • 4.9 • 29 Ratings

Our journal of learning about and living with Lichen Sclerosus from a patient's point of view. Bringing community and awareness to a disorder that hardly anyone knows about. Join me as I research Lichen Sclerosus from every angle and share my struggles living with it. My hope is to build a community of survivors so we can affect change in our lives and the research.

    Don't Let Lichen Sclerosus Take Control Of Your Life

    Don't Let Lichen Sclerosus Take Control Of Your Life

    Hey, welcome. In this episode, I decided to take a little break from the interviews, and speak from the heart. This is something I felt compelled to speak on. I want to talk about not letting Lichen Sclerosus control your life; not letting it rob you of the vibrant and wondrous person you are.

    • 16 min
    What's the best lubricant for Lichen Sclerosus?

    What's the best lubricant for Lichen Sclerosus?

    Hey! Welcome!

    Have you ever wondered what lube is best for Lichen Sclerosus? Perhaps you felt overwhelmed by the massive selection of lube options online and had no clue what to buy? Have you ever wondered what you should look for and avoid in a lube? If yes, this is the episode for you!

    • 37 min
    LS Grooming Best Practices with Dr. Cynthia Wesley

    LS Grooming Best Practices with Dr. Cynthia Wesley

    Today, I am here with Dr. Cynthia Wesley (aka Dr. Cyn), a board-certified OBGYN with over 16 years of experience and a vulvar skin expert. Dr. Cyn is passionate about vulvar care, hygiene, and grooming. She will share her tips on how to take care of your vulva when you have Lichen Sclerosus.

    We discussed everything from using the bathroom, bathing, moisturizing, hair removal, and more. So many great tips in here.

    • 1 hr 1 min
    How Pelvic Floor Physical Therapy Helps Lichen Sclerosus with Ashley Stump

    How Pelvic Floor Physical Therapy Helps Lichen Sclerosus with Ashley Stump

    This week I talked to Ashley Stump, a pelvic floor physical therapist who knows all about Lichen Sclerosus.
    We talked about what pelvic floor physical therapy is, why women with LS need it, what to expect on your first visit, and lubes. She gave us tips on what to look for when you're looking for a new pelvic floor physical therapist, and some resources are where to find one.

    For complete show notes and all the links mentioned in this episode visit lssupport.net/pfpt.

    • 50 min
    Covid Update

    Covid Update

    Heeeyyy! Longtime no see. Life's been hectic and there's exciting news. You'll be getting new episodes starting Nov 5! We've incorporated LSSN and we're an official nonprofit! Listen to find out more. Second, my husband and I ended up in the hospital with covid. Lorenzo still hasn't made it home. We could really use your help. I'm excited to be with you again. Feel free to email me at kathy@lssupport.net.

    • 16 min
    • video
    Covid Update

    Covid Update

    Heeeyyy! Longtime no see.

    Life's been hectic and there's exciting news. You'll be getting new episodes starting Nov 5!

    We've incorporated LSSN and we're an official nonprofit! Listen to find out more.

    Second, my husband and I ended up in the hospital with covid. Lorenzo still hasn't made it home. We could really use your help.

    I'm excited to be with you again. Feel free to email me at kathy@lssupport.net.

    • 16 min

Customer Reviews

4.9 out of 5
29 Ratings

29 Ratings

Nicole Ayers ,

Supportive Community

Valuable content and community care is built into every episode. This podcast is a go-to resource for women who have lichen sclerosus and the people who support them.

Madi Lee71 ,

Affirming, comforting, educational

Thank you so much for this podcast. I’m 24 and this diagnosis has flipped my life upside down. This podcast is so affirming & comforting - I have learned so much from your amazing advise. Thank you more than words can express. Sending healing energy your way.

charliethecharlestonchew ,

Very helpful for anyone making sense of this (for themselves or their partner)

My wife recently got diagnosed with LS and it just brings up so many questions. This podcast is really helpful in learning to be a support. I greatly appreciate Kathy’s vulnerability and all the helpful resources - it’s not just medical stuff but it talks through all kinds of questions that I hear my wife trying to make sense of - how to relate with doctors, what this means for her emotionally and for us. Thank you!

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