6 episodes

The Lymphoma Research Foundation (LRF) understands that a diagnosis of lymphoma may bring about many different emotions and that everyone’s journey is personal. LRF’s Living with Lymphoma podcast is here to help the lymphoma community better understand how to cope with the unique circumstances that a diagnosis of lymphoma presents. Listen in as experts and patients discuss psychosocial topics related to a diagnosis with lymphoma and other forms of cancer. Join Izumi Nakano and Victor Gonzalez from the Foundation’s Helpline as they explore various survivorship topics.

Living with Lymphoma Lymphoma Research Foundation

    • Arts
    • 5.0 • 6 Ratings

The Lymphoma Research Foundation (LRF) understands that a diagnosis of lymphoma may bring about many different emotions and that everyone’s journey is personal. LRF’s Living with Lymphoma podcast is here to help the lymphoma community better understand how to cope with the unique circumstances that a diagnosis of lymphoma presents. Listen in as experts and patients discuss psychosocial topics related to a diagnosis with lymphoma and other forms of cancer. Join Izumi Nakano and Victor Gonzalez from the Foundation’s Helpline as they explore various survivorship topics.

    Oral Therapy and Adherence in Lymphoma

    Oral Therapy and Adherence in Lymphoma

    Oral Therapy and Adherence in Lymphoma
    An increasing number of lymphoma and chronic lymphocytic leukemia (CLL) patients receive their chemotherapy not from intravenous (IV) treatments administered in a hospital or clinic, but via a pill, taken at home on a regular basis. These oral therapies have become a more standard part of patient care, and for a growing number of patients, oral therapies are their only option. Living with Lymphoma hosts, Victor Gonzalez and Izumi Nakano, sat down with LRF Lymphoma Scientific Research Mentoring Program grantee, Craig Portell, MD (University of Virginia) who explained oral therapies and its use for the treatment of certain types of lymphoma. They were joined by chronic lymphocytic leukemia (CLL) survivor, Geoff Grubbs, who discussed his experience with oral therapies and how this treatment regimen has been beneficial to him throughout his journey.
    Helpful Resources:

    LRF Helpline (800-500-9976; helpline@lymphoma.org)
    Oral Therapy Learning Center
    Oral Agents in Lymphoma Fact Sheet
    Oral Anticancer Adherence in Lymphoma Fact Sheet
    Craig Portell, MD Researcher Spotlight
    Geoff Story of Hope











    EDUCATION RESOURCESBOOKLETS AND FACT SHEETSEDUCATION PROGRAMSLIVING WITH LYMPHOMA PODCASTLRF MOBILE APPWEBINARSWEBCASTS

    • 47 min
    CAR-T Cell Therapy and Other Novel Therapies for Lymphoma

    CAR-T Cell Therapy and Other Novel Therapies for Lymphoma

    CAR-T Cell Therapy and Other Novel Therapies for Lymphoma
    In 2015, Robyn Stacy-Humphrie’s diffuse large B-Cell lymphoma (DLBCL) relapsed and she was faced with a tough decision – to follow the standard of care and receive a stem cell transplant, or opt for a new treatment called CAR-T cell therapy which at the time, was still in the clinical trialA research study to test how well new medical approaches work in people. phase. Living with Lymphoma host, Victor Gonzalez, sat down with Robyn to discuss her decision to enter a clinical trial and receive CAR T and what her experience was receiving this cutting-edge therapy. They were joined by LRF Scientific Advisory Board member, Andrew M. Evens, DO, MSc, FACP (Rutgers CancerAbnormal cell growth that cannot be controlled by the body's natural defenses. Cancerous cells can grow and eventually form tumors. Institute of New Jersey) who explained CAR-T cell therapy and its use for the treatment of certain types of lymphoma, as well as other novel therapies being used to treat relapsed/refractory DBCL. This episode was a special video event recorded for LRF’s YouTube channel. 
    Helpful Resources:

    LRF Helpline (800-500-9976; helpline@lymphoma.org)
    CAR-T Cell Therapy Learning Center
    Diffuse Large B-Cell Lymphoma Learning Center
    CAR-T Cell Therapy for Lymphoma Fact Sheet
    Biologic and Novel Therapies in Lymphoma Fact Sheet

    • 49 min
    Careers and Rights Amid Pandemic

    Careers and Rights Amid Pandemic

    Careers and Rights Amid Pandemic
    In the blink of an eye, COVID-19 swept the world and disrupted the way we interact, communicate, conduct business and live. The world has experienced an enormous economic impact, forcing several companies to make difficult decisions regarding staff reductions and salaries, and in some cases closing businesses entirely. For cancer patients and survivors, staying safe and healthy throughout a global pandemic, while worrying about the financial impact that comes with the loss of income, can be overwhelming. Experts Joanna Morales of Triage Cancer and Rachel Becker of Cancer and Careers, discuss what cancer patients should know regarding insurance, laws that can help aid patients during this difficult time, returning to work during COVID-19, and resources to help navigate it all. This episode was a special Facebook Live event recorded for the Living with Lymphoma Podcast. 

    Helpful Resources:

    LRF Helpline (800-500-9976; helpline@lymphoma.org)
    Lymphoma Support Network
    Financial Support
    Resources for Financial Assistance Fact Sheet
    COVID-19 Learning Center
    Cancer and Careers
    Triage Cancer 

    • 35 min
    A Clinical Trial Saved My Life

    A Clinical Trial Saved My Life

    A Clinical Trial Saved My Life
    Clinical Trials are important to helping advance research and provide access to the most cutting edge treatment options. Rich Zavadowski felt a clinical trial was his best chance of survival when he was diagnosed with Stage IV peripheral T-cell lymphoma (PTCL) - a rare subtype of lymphoma with no standard of care. Living with Lymphoma host, Izumi Nakano, sat down with Rich to discuss his decision to enter a clinical trial. She was also joined by LRF Scientific Advisory Board member, Kieron Dunleavy, MD (George Washington Cancer Center), one of the doctors who worked on the clinical trial that ultimately saved Rich's life.

    Helpful Resources:

    LRF Helpline (800-500-9976; helpline@lymphoma.org)
    Lymphoma Support Network
    Understanding Clinical Trials Fact Sheet
    Mindfulness Webinar
    Resources for Financial Assistance Fact Sheet

    • 34 min
    Mindfulness and Meditation

    Mindfulness and Meditation

    Mindfulness and Meditation
    Studies have shown that practicing meditation can  promote healing, both physically and emotionally/psychologically for cancer patients. Mindfulness Leadership and Coach, Amy Jin, joined hosts Victor Gonzalez and Izumi Nakano to discuss the importance of mindfulness and how meditation can help lymphoma patients and their loved ones slow-down during an incredibly stressful time in their lives.

    Helpful Resources:

    LRF Helpline (800-500-9976; helpline@lymphoma.org)
    Lymphoma Support Network
    Lymphoma Survivorship Fact Sheet
    Mindfulness Webinar
    Resources for Financial Assistance Fact Sheet

    • 56 min
    Coping with Cancer During the Holidays

    Coping with Cancer During the Holidays

    Coping with Cancer During the Holidays
    Dealing with a cancer diagnosis is hard, but during the holidays it can feel even more burdensome. Lymphoma survivor, Dexter Neal sits down with hosts, Victor Gonzalez and Izumi Nakano on the inaugural episode of, Living with Lymphoma to talk about how he dealt with a cancer diagnosis right before the holidays. Clinical Social Worker, Kristie Redfield of Memorial Sloan Kettering Cancer Center gave us advice about how to ask for help and how caregivers can offer the best support to their loved ones.

    Helpful Resources:

    LRF Helpline (800-500-9976; helpline@lymphoma.org)
    Lymphoma Support Network
    Lymphoma Survivorship Fact Sheet
    Mindfulness Webinar
    Resources for Financial Assistance Fact Sheet

    • 59 min

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