38 min
Erin Book Mullen on Lobbying for Increased Down Syndrome Research Funding, Down Syndrome and Childhood Leukemia The Hope Story Podcast
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- Parenting
In this episode we talk to Erin Book Mullen about being a DC Lobbyist who works to increase funding for Down syndrome research. Erin led the effort with the Global Down Syndrome Foundation to secure the first-ever Congressional hearing on Down syndrome research where Frank Stephens declared that his life was worth living. That testimony, along with their work with Congressional Champions, resulted in a historic and significant 65% increase of Down syndrome research funding at the National Institutes of Health (NIH) from $35 million in FY2017 to $58 million in FY2018. In addition, we talk with Erin about raising two girls, one of whom has Down syndrome and has battled with childhood Leukemia. Check out the show notes by visiting https://hopestory.org/erin-book-mullen-ep-4
In this episode we talk to Erin Book Mullen about being a DC Lobbyist who works to increase funding for Down syndrome research. Erin led the effort with the Global Down Syndrome Foundation to secure the first-ever Congressional hearing on Down syndrome research where Frank Stephens declared that his life was worth living. That testimony, along with their work with Congressional Champions, resulted in a historic and significant 65% increase of Down syndrome research funding at the National Institutes of Health (NIH) from $35 million in FY2017 to $58 million in FY2018. In addition, we talk with Erin about raising two girls, one of whom has Down syndrome and has battled with childhood Leukemia. Check out the show notes by visiting https://hopestory.org/erin-book-mullen-ep-4
38 min