54 episodes

Each week, MIB Agents talks with the leaders and innovators in osteosarcoma surgery, research, treatment and advocacy. Questions are taken during the webinar and are included in each podcast. More information is available at www.mibagents.org

MIB Agents OsteoBites Ann Graham

    • Health & Fitness
    • 5.0 • 3 Ratings

Each week, MIB Agents talks with the leaders and innovators in osteosarcoma surgery, research, treatment and advocacy. Questions are taken during the webinar and are included in each podcast. More information is available at www.mibagents.org

    Osteobites: Back to Activity, Rotationplasty

    Osteobites: Back to Activity, Rotationplasty

    IIn this weeks Ostoebites episode we chat with Dr. Valerae Lewis & Elise Robinson Rotationplasty and back to activity!  

    Elise Robinson is 15 years old, an osteosarcoma survivor, MIB Agents Ambassador Agent, and MIB Agents Junior Board member. Elise was diagnosed with osteosarcoma in 2014 when she was eight years old. Elise is active in sports and brings awareness to childhood cancer, osteosarcoma, and amputees with her active lifestyle.  

    Valerae O. Lewis, M.D.  Professor, Orthopaedic Oncology, Division of Surgery  Chair, Department of Orthopaedic Oncology, Division of Surgery  Dr. John Murray Professor in Orthopaedic Oncology  The University of Texas M. D. Anderson Cancer Center   Dr. Lewis, the John Murray Professor of Orthopaedic Oncology, attended Yale University and matriculated at Harvard Medical School, graduating with honors. She completed her Orthopaedic training at the Harvard Combined Orthopaedic Residency Program in Boston, MA and her fellowship in Musculoskeletal Oncology at the University of Chicago. The first African American woman to be awarded the MD Anderson Faculty Achievement Award in Patient Care she is now the Chair of the Department of Orthopaedic Oncology at MD Anderson.   

    Dr. Lewis is very active nationally and internationally within Orthopaedics and Musculoskeletal Oncology. She is a strong advocate of education, and as such, served as the Chair of the Musculoskeletal Tumor Society (MSTS) Education Committee, Chair of the American Academy of Orthopaedic Surgery (AAOS) Instructional Course Lecture Tumor Subcommittee, Chair of the Musculoskeletal Oncology Content Committee for the AAOS Council on Education and Chair of the International Society of Limb Salvage (ISOLS) Education Committee. A former board member of the American Orthopaedic Association, the Western Orthopaedic Association, MSTS and the ISOLS, she was recently elected to the Board of Directors of the AAOS   Dr. Lewis’ area of expertise is in the treatment of both children and adults with bone and soft tissue sarcomas. Her clinical research focuses on the outcome of patients after hemipelvectomy surgery and her lab investigates the gene functions tied to osteosarcoma and the development of treatments that might interrupt this process. Married for 27 years, Dr. Lewis is the mother of two wonderful 18-year-old twins.   

    What We Do at MIB Agents: PROGRAMS: ✨ End-of-Life MISSIONS ✨ Gamer Agents ✨ Agent Writers ✨ Prayer Agents ✨ Healing Hearts Bereaved Parent Support ✨ Ambassador Agents - Peer Support EDUCATION for physicians, researchers and families: ✨ OsteoBites, weekly webinar & podcast with thought leaders and innovators in Osteosarcoma ✨ MIB Book: Osteosarcoma: From our Families to Yours RESEARCH: ✨ Annual MIB FACTOR Research Conference ✨ Funding $100,000 annually for OS research ✨ MIB Testing & Research Directory ✨ The Osteosarcoma Project partner with Broad Institute of MIT and Harvard ... Kids are still dying with 40+ year old treatments. Help us MakeItBetter. 🔗 https://www.mibagents.org​ Help support MIB Agents, Donate here https://www.mibagents.org/?form=donate ✨✨SUBSCRIBE for all the Osteosarcoma Intel ✨✨

    • 54 min
    OsteoBites: Clinical Trials for Relapsed or Refractory Osteosarcoma - The OLIE Study and Beyond!

    OsteoBites: Clinical Trials for Relapsed or Refractory Osteosarcoma - The OLIE Study and Beyond!

    Join Dr Filemon Dela Cruz & Dr. Julia Glade Bender as they talk about The OLIE Study - Evaluating lenvatinib in combination with chemotherapy for relapsed or refractory osteosarcoma.  
    ......
    Organization Memorial Sloan Kettering Cancer Center/MSK Kids  

    What We Do at MIB Agents:
    PROGRAMS:
    ✨ End-of-Life MISSIONS
    ✨ Gamer Agents
    ✨ Agent Writers
    ✨ Prayer Agents
    ✨ Healing Hearts Bereaved Parent Support
    ✨ Ambassador Agents - Peer Support
    EDUCATION for physicians, researchers and families:
    ✨ OsteoBites webinar & podcast with thought leaders and innovators in Osteosarcoma
    ✨ MIB Book: Osteosarcoma: From our Families to Yours
    RESEARCH:
    ✨ Annual MIB FACTOR Research Conference
    ✨ Funding $100,000 annually for OS research
    ✨ MIB Testing & Research Directory
    ✨ The Osteosarcoma Project partner with Broad Institute of MIT and Harvard

    LINKS:
    OLIE Clinical Trial: LINK
    🔗Memorial Sloan Kettering Cancer Center Pediatrics: LINK
    📧 Filemon Dela Cruz, MD: delacrf1@mskcc.org  
    📧 Julia Glade-Bender, MD: gladebej@mskcc.org
    🔗MIB Clinical Trial Finder In 60 seconds: LINK
    🔗 MIB Programs: LINK
    🔗 MIB Osteosarcoma FACTOR: LINK
    🔗 MIB Osteosarcoma Research: LINK
    ...
    Kids are still dying with 40+ year old treatments. Help us MakeItBetter. 🔗 https://www.mibagents.org
    🔗Donate HERE    ✨✨SUBSCRIBE for all the Osteosarcoma Intel ✨✨

    • 1 hr 1 min
    Encore, Testing & Research Directory

    Encore, Testing & Research Directory

    MIB Agents Osteosarcoma Webinar Series:  Alanna Church, MD of Boston Children's and Harvard Medical School and Christina Ip-Toma, MIB Scientific Advisory Board Member and lead of the MIB Testing & Research Directory, talk about navigating the Testing & Research Directory to help inform a personal treatment plan or to inform research.  



    Christina Ip-Toma, Osteomom, and Alanna Church, MD Pathologist at Dana Farber & Harvard Medical School, worked together with Matteo Trucco, MD, Katie Janeway, MD, Alejandro Sweet-Cordero, MD, Will Parsons, MD, Joshua Schiffman, MD, Ines Lohse, PhD and Al Cornelius, MD to bring the Testing & Research Directory to you as an essential decision-making document. 



    Guest Information: 

    Alanna Church, MD is the Associate Director for Molecular Pediatric Pathology Laboratory (LaMPP) Staff Pathologist, Department of Pathology Boston Children's Hospital Assistant Professor of Pathology Harvard Medical School  

    Christina Ip-Toma is an MIB Agents Scientific Advisory Board Member, Lead of the MIB Agents Testing & Research Directory, and OsteoMom to Dylan

    • 49 min
    Real Talk: What it's really like and how WE feel about Osteosarcoma.

    Real Talk: What it's really like and how WE feel about Osteosarcoma.

    Osteobites: Junior Board, Like No One is Listening  
    MIB Junior Board Osteowarriors Ally & Kara, and OsteoSiblings Annika and Valerie have an honest conversation about osteosarcoma. This session is a no-holding-back conversation about unrestricted emotions, real experiences, and new realities.
    #likenobodyislistening
    ...
    What We Do at MIB Agents:
    PROGRAMS:
    ✨ End-of-Life MISSIONS
    ✨ Gamer Agents
    ✨ Agent Writers
    ✨ Prayer Agents
    ✨ Healing Hearts Bereaved Parent Support
    ✨ Ambassador Agents - Peer Support

    EDUCATION for physicians, researchers and families:
    ✨ OsteoBites, weekly webinar & podcast with thought leaders and innovators in Osteosarcoma
    ✨ MIB Book: Osteosarcoma: From our Families to Yours

    RESEARCH:
    ✨ Annual MIB FACTOR Research Conference
    ✨ Funding $100,000 annually for OS research
    ✨ MIB Testing & Research Directory
    ✨ The Osteosarcoma Project partner with Broad Institute of MIT and Harvard
    ...
    Kids are still dying with 40+ year old treatments.
    Help us MakeItBetter. 🔗 https://www.mibagents.org​
    Help support MIB Agents, Donate here https://www.mibagents.org/?form=donate   
    ✨SUBSCRIBE for all the Osteosarcoma Intel ✨

    • 1 hr 13 min
    Planning for Dignity and What Matters Most to You

    Planning for Dignity and What Matters Most to You

    Paul Malley is President of Aging with Dignity, a national non-profit organization based in Tallahassee, Florida, with a mission to help individuals and their families receive the care they want in case of a serious illness.

    As President of Aging with Dignity, Malley coordinates the national Five Wishes advance care planning program. Created by Jim Towey, founder of Aging with Dignity and former legal counsel to Mother Teresa of Calcutta, Five Wishes is an easy-to-use legal document that addresses important medical issues as well as personal, emotional and spiritual matters at the end of life. More than 35 million Americans have turned to Five Wishes as their preferred tool to make their wishes known and to discuss their preferences with their family and doctor before a health crisis. More than 40,000 partner groups (hospitals, hospices, places of worship, employers, community organizations) make up the growing network of organizations that distribute Five Wishes in communities across the country.

    Paul Malley and the work of Aging with Dignity have been featured in national media including the CBS, NBC, and ABC evening news, CNN, MSNBC, NBC Today Show, Good Morning America, USA Today, The Wall Street Journal, The New York Times, Newsweek, Time, and Consumer Reports.

    Malley has spoken about aging issues and advance care planning to organizations such as the US Departments of State and Justice, The Johns Hopkins University School of Medicine, The National Naval Medical Center at Bethesda, Florida Department of Education and Executive Office of the Governor, Delta Airlines, 3M, The National Foundation of Women Legislators, Employee Benefits Management Forum and the Alliance for Work/Life Progress.

    Malley has also contributed to the efforts of several aging advocacy groups to improve state policy on advance care planning. He was appointed by Gov. Jeb Bush to the 2005 White House Conference on Aging.


    VIDEO: LINK to the OsteoBites with Paul Malley. Please Subscribe
    PODCAST: LINK, and know that it is available wherever you get your podcast (Apple, Google+, Spotify, etc) just look for OsteoBites.
    Aging With Dignity YouTube Channel: LINK
    Voicing My Choices Page with Free Download:  LINK
    Five Wishes Website: LINK

    Paul Malley’s Email:  Paul@FiveWishes.org
    ...
    What We Do at MIB Agents:  
    PROGRAMS:  
    ✨ End-of-Life MISSIONS  
    ✨ Gamer Agents  
    ✨ Agent Writers  
    ✨ Prayer Agents  
    ✨ Healing Hearts Bereaved Parent Support  
    ✨ Ambassador Agents - Peer Support  
    EDUCATION for physicians, researchers and families:  
    ✨ OsteoBites, weekly webinar & podcast with thought leaders and innovators in Osteosarcoma  
    ✨ MIB Book: Osteosarcoma: From our Families to Yours  
    RESEARCH:
    ✨ Annual MIB FACTOR Research Conference  
    ✨ Funding $100,000 annually for OS research  
    ✨ MIB Testing & Research Directory  
    ✨ The Osteosarcoma Project partner with Broad Institute of MIT and Harvard  
    ...  
    Kids are still dying with 40+ year old treatments.   Help us MakeItBetter. 🔗 https://www.mibagents.org
    ✨✨SUBSCRIBE for all the Osteosarcoma Intel

    • 1 hr 1 min
    Let's Talk Fertility and Osteosarcoma

    Let's Talk Fertility and Osteosarcoma

    Dr. Abha Gupta discusses "Fertility Preservation in Osteosarcoma Patients" with Junior Board Members Kara, Valerie, and Alexis. We talk about it ALL. 

    Dr. Abha Gupta received her MD at the University of Toronto.  She completed her pediatrics residency at Yale New Haven Children’s Hospital (New Haven, CT) and Children’s Hospital of Eastern Ontario (Ottawa) before moving back to Toronto to complete her fellowship in pediatric hematology/oncology at The Hospital for Sick Children.  To complement her training, Dr. Gupta completed a one-year fellowship in Adolescent and Young Adult Oncology with a focus on sarcoma at Princess Margaret Cancer Centre.   She is currently cross-appointed as a staff oncologist at both The Hospital for Sick Children (Solid Tumor Section) and Princess Margaret Cancer Center. She is the Medical Director of the Adolescent and Young Adult Oncology Program at Princess Margaret and Medical Director of the Canadian Sarcoma Research and Clinical Collaboration (CanSaRCC).



    What We Do at MIB Agents: PROGRAMS: ✨ End-of-Life MISSIONS ✨ Gamer Agents ✨ Agent Writers ✨ Prayer Agents ✨ Healing Hearts Bereaved Parent Support ✨ Ambassador Agents - Peer Support EDUCATION for physicians, researchers and families: ✨ OsteoBites, weekly webinar & podcast with thought leaders and innovators in Osteosarcoma ✨ MIB Book: Osteosarcoma: From our Families to Yours RESEARCH: ✨ Annual MIB FACTOR Research Conference ✨ Funding $100,000 annually for OS research ✨ MIB Testing & Research Directory ✨ The Osteosarcoma Project partner with Broad Institute of MIT and Harvard ... Kids are still dying with 40+ year old treatments.   Help us MakeItBetter. 🔗 https://www.mibagents.org​✨✨SUBSCRIBE for all the Osteosarcoma Intel

    • 55 min

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