9 episodes

The Lupus Foundation of America, Greater Ohio Chapter welcomes you to My Lupus Living Room, a space where we get real about what it’s like to live with lupus. Join our host, chapter President and CEO, Suzanne Tierney, for candid conversations about topics that so often get overlooked. You’ll hear from our Ohio lupus community— including patients, caregivers, and medical experts— about the highs, lows, insights, and advice. Thanks for stopping by My Lupus Living Room. We hope you stay for a while.

My Lupus Living Room Lupus Foundation of America Greater Ohio Chapter

    • Health & Fitness
    • 5.0 • 5 Ratings

The Lupus Foundation of America, Greater Ohio Chapter welcomes you to My Lupus Living Room, a space where we get real about what it’s like to live with lupus. Join our host, chapter President and CEO, Suzanne Tierney, for candid conversations about topics that so often get overlooked. You’ll hear from our Ohio lupus community— including patients, caregivers, and medical experts— about the highs, lows, insights, and advice. Thanks for stopping by My Lupus Living Room. We hope you stay for a while.

    Episode 9- Katie's Story

    Episode 9- Katie's Story

    On this episode of My Lupus Living Room, Suzanne talks to Katie Gugle! Katie is a long time constituent of the Lupus Foundation of America, Greater Ohio chapter, and a Support Group Facilitator for our Westerville Support Group!   In this episode, she talks about her story with lupus as well as multiple other autoimmune diseases and how she manages them.  We are so glad we were able to speak to her and we hope you enjoy this episode! 

    • 33 min
    Episode 8- ALL IN for Lupus Nephritis with Aurinia Pharmaceuticals Inc.

    Episode 8- ALL IN for Lupus Nephritis with Aurinia Pharmaceuticals Inc.

    On this episode of My Lupus Living Room, Suzanne talks with Shannon Cabot from Aurinia Pharmaceuticals Inc..  Shannon is in charge of Regional Professional Relations & Advocacy and she talks about ALL IN for Lupus Nephritis.  The ALL IN program and website is a source of information, resources, and support for those affected by lupus nephritis. To learn more about lupus nephritis, go to www.allinforlupusnephritis.com.  We hope you enjoy this weeks episode!

    *The Lupus Foundation of America, Greater Ohio Chapter does not give medical advice to patients regarding their lupus treatment. Your physician is the best source of information regarding the medical management of your lupus. This program is available for informational and educational purposes only. The content provided by other providers and/or professionals within the context of this program is not necessarily the opinion of the Lupus Foundation of America, Greater Ohio Chapter.

    The funding for this campaign is from an earmark from the State of Ohio and managed by the Ohio Department of Health.

    • 30 min
    Episode 7- A Mans Inspiring Journey with Lupus Nephritis

    Episode 7- A Mans Inspiring Journey with Lupus Nephritis

    Lupus comes in many forms, but lupus nephritis is probably one of the most serious. In this episode of My Lupus Living Room, Suzanne talks to Ryan Pike about his long and inspiring journey with lupus nephritis. Ryan is the Client Success Manager at Terraboost Media and has done work for the LFA, GOC in the past. 

    Ryan was diagnosed with lupus when he was a teenager and has been on quite a journey! He is truly inspiring with his positive attitude and commitment to a healthy lifestyle. We think you will enjoy this episode! 

    • 31 min
    Episode 6- ExactCare Pharmaceuticals

    Episode 6- ExactCare Pharmaceuticals

    This week, Suzanne talks to Margaret Lizotte, Vice President of Clinical Development at ExactCare.  We have some exciting news to share with you regarding Hydroxychloroquine.  Listen to the episode to find out more!

    *The Lupus Foundation of America, Greater Ohio Chapter does not give medical advice to patients regarding their lupus treatment. Your physician is the best source of information regarding the medical management of your lupus. This program is available for informational and educational purposes only. The content provided by other providers and/or professionals within the context of this program is not necessarily the opinion of the Lupus Foundation of America, Greater Ohio Chapter.

    The funding for this campaign is from an earmark from the State of Ohio and managed by the Ohio Department of Health.

    • 34 min
    Episode 5- The COVID-19 Vaccine from Patients' Perspective

    Episode 5- The COVID-19 Vaccine from Patients' Perspective

    The Covid-19 Vaccine is here, and we're all eager to ensure our safety. But as a lupus patient, you might have more questions. Should you get it? Is it safe? Will it cause a flare? What are the side effects? What is the process? We hear you, and we want to answer your questions. On this episode of My Lupus Living Room, Suzanne sits down with lupus patients, Adrienne Fernandez and Kathy Holmes to talk about their experiences getting the COVID-19 vaccine. We hope you find this episode helpful!

    • 32 min
    Episode 4- All About Hair!

    Episode 4- All About Hair!

    For many lupus patients, hair loss is a real issue. How can we prevent hair loss and hair damage? What products should we use to protect our hair? What kinds of wigs are worth looking into? In this episode, Suzanne talks with stylist and Salon owner Rachelle Yarnell about all things hair! Rachelle has been working with hair for years, and she is the owner of The Studio Hair salon, Studio3 Hair Salon, and Facet Hair Salon. In this episode, she answers those important questions about hair loss. If hair loss affects you, consult a hair specialist before trying to do something on your own. 

    • 33 min

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