18 episodes

The Lupus Foundation of America, Greater Ohio Chapter welcomes you to My Lupus Living Room, a space where we get real about what it’s like to live with lupus. Join our host, chapter President and CEO, Suzanne Tierney, for candid conversations about topics that so often get overlooked. You’ll hear from our Ohio lupus community— including patients, caregivers, and medical experts— about the highs, lows, insights, and advice. Thanks for stopping by My Lupus Living Room. We hope you stay for a while.

My Lupus Living Room Lupus Foundation of America Greater Ohio Chapter

    • Health & Fitness
    • 5.0 • 6 Ratings

The Lupus Foundation of America, Greater Ohio Chapter welcomes you to My Lupus Living Room, a space where we get real about what it’s like to live with lupus. Join our host, chapter President and CEO, Suzanne Tierney, for candid conversations about topics that so often get overlooked. You’ll hear from our Ohio lupus community— including patients, caregivers, and medical experts— about the highs, lows, insights, and advice. Thanks for stopping by My Lupus Living Room. We hope you stay for a while.

    Episode 18- Let's Make Noise About Lupus! (Featuring Rachelle Roy)

    Episode 18- Let's Make Noise About Lupus! (Featuring Rachelle Roy)

    We are SO exited to bring you this new episode of My Lupus Living Room!  Suzanne talks to Rachelle Roy, who is a patient who is ON FIRE about spreading lupus awareness in Toledo. Rachelle has done so much for lupus, including gaining extensive media coverage on her events. You are going to see her at the Walk To End Lupus Now® on Saturday and you cant miss her! Her enthusiasm is contagious!  If you are a patient in the Toledo area, Rachelle would love to know your name.  We know you are going to really enjoy this episode! 

    • 38 min
    Episode 17- 2022 Walk To End Lupus Now®

    Episode 17- 2022 Walk To End Lupus Now®

    The Walk To End Lupus Now® will be on September 24th in Cleveland Ohio.  This walk is going to be hybrid, which means you can also join in online! The walk will be held at the Hofbräuhaus by Playhouse Square!  We will be walking through some pretty cool places, including Cleveland State university! We are so excited to be back in person and we hope to see you there!

    Click the link to register and to learn more!

    https://www.lupusgreaterohio.org/walktoendlupus/

    • 22 min
    Episode 16- Meet Mackenna!

    Episode 16- Meet Mackenna!

    On this Episode of My Lupus Living Room, Suzanne sits down with Mackenna Willis, another new addition to our LFA, GOC team!  Mackenna is our wonderful new Graphic Designer who has quite a story herself.  Mackenna tells us about her battle with Brain Cancer; the highs, the lows, and all of the things she has learned along the way.  We are happy to say that she has been in remission for a while!  We think you are really going to like this episode!

    • 14 min
    Episode 15- Meet the Newest Member of the LFA, GOC Team!

    Episode 15- Meet the Newest Member of the LFA, GOC Team!

    On this episode of My Lupus Living Room, Suzanne Sits down With Amy Filbert, the newest member of the LFA, GOC team!  Amy is an intern here at the foundation, as well as a lupus warrior!  She talks about her diagnosis journey and all of the ups and downs of getting to where she is now.  We are so happy to have Amy in our office and we hope you enjoy this episode! 

    • 21 min
    Episode 14- Hayley Shasteen on Growing up with Lupus

    Episode 14- Hayley Shasteen on Growing up with Lupus

    On this episode of My Lupus Living Room, Suzanne talks to Hayley Shasteen. Hayley is a lupus warrior with a passion for understanding the disease. She recently received her Masters from Kent State University and is an incoming Ph.D. student at Pennsylvania State University. In this episode, Hayley talks about her diagnosis journey, her experience of going from a teen to an adult with lupus, and what it is like being a patient and an avid researcher. She is a very accomplished young woman at the age of 24 and we are so excited to welcome her to our living room! 

    • 1 hr 1 min
    Episode 13- Cat's Amazing Journey

    Episode 13- Cat's Amazing Journey

    In this episode of My Lupus Living Room, Suzanne talks to Cat Liptak.  Cat is a fellow lupian who has been with the foundation for years.  She has faced many many hardships due to lupus and has an incredible story to share.  Cat is also the leader of the prayer group, Lupians Leaning on the Lord.  We hope you enjoy this episode of My Lupus Living Room!  For more information on Cat's prayer group, please email us at info@lupusgreaterohio.org.  

    • 37 min

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6 Ratings

6 Ratings

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