New Books In Public Health New Books Network

The Occasional Human Sacrifice: Medical Experimentation and the Price of Saying No (Norton, 2024) is an intellectual inquiry into the moral struggle that whistleblowers face, and why it is not the kind of struggle that most people imagine.
Carl Elliott is a bioethicist at the University of Minnesota who was trained in medicine as well as philosophy. For many years he fought for an external inquiry into a psychiatric research study at his own university in which an especially vulnerable patient lost his life. Elliott’s efforts alienated friends and colleagues. The university stonewalled him and denied wrongdoing until a state investigation finally vindicated his claims.
His experience frames the six stories in this book of medical research in which patients were deceived into participating in experimental programs they did not understand, many of which had astonishing and well-concealed mortality rates. Beginning with the public health worker who exposed the Tuskegee Syphilis Study and ending with the four physicians who in 2016 blew the whistle on lethal synthetic trachea transplants at the Karolinska Institute, Elliott tells the extraordinary stories of insiders who spoke out against such abuses, and often paid a terrible price for doing the right thing.
Learn more about your ad choices. Visit megaphone.fm/adchoices

Each year in India more than two million people fall sick with tuberculosis (TB), an infectious, airborne, and potentially deadly lung disease. The country accounts for almost 30 percent of all TB cases worldwide and well above a third of global deaths from it. Because TB’s prevalence also indicates unfulfilled development promises, its control is an important issue of national concern, wrapped up in questions of postcolonial governance. Drawing on long-term ethnographic engagement with a village in North India and its TB epidemic, anthropologist Andrew McDowell tells the stories of socially marginalized Dalit (“ex-untouchable”) farming families afflicted by TB, and the nurses, doctors, quacks, mediums, and mystics who care for them. Each of the book’s chapters centers on a material or metaphorical substance - such as dust, clouds, and ghosts - to understand how breath and airborne illness entangle biological and social life in everyday acts of care for the self, for others, and for the environment.
From this raft of stories about the ways people make sense of and struggle with troubled breath, McDowell develops a philosophy and phenomenology of breathing that attends to medical systems, patient care, and health justice. He theorizes that breath - as an intersection between person and world - provides a unique perspective on public health and inequality. Breath is deeply intimate and personal, but also shared and distributed. Through it all, Breathless: Tuberculosis, Inequality, and Care in Rural India (Stanford UP, 2024) traces the multivalent relations that breath engenders between people, environments, social worlds, and microbes.
Andrew McDowell is Assistant Professor of Anthropology at Tulane University. He has a Ph.D. in socio-cultural anthropology from Harvard University. His research interests focus on care, contagion, pharmaceuticals, diagnosis, and inequality in North and Western Indian social worlds entangled with tuberculosis. His work has appeared in Medical Anthropology Quarterly, Ethos, and The Lancet among other venues.
Yadong Li is a PhD student in anthropology at Tulane University. His research interests lie at the intersection of the anthropology of state, the anthropology of time, hope studies, and post-structuralist philosophy. More details about his scholarship and research interests can be found here.
Learn more about your ad choices. Visit megaphone.fm/adchoices

In this Pandemic Perspectives Podcast, Ideas Roadshow founder and host Howard Burton talks to Elizabeth Anderson, Max Shaye Professor of Public Philosophy at the University of Michigan, on the need for making increased efforts to explicitly create occasions for people to frankly communicate with each other during a crisis.
Ideas Roadshow's Pandemic Perspectives Project consists of three distinct, reinforcing elements: a documentary film (Pandemic Perspectives), book (Pandemic Perspectives: A filmmaker's journey in 10 essays) and a series of 24 detailed podcasts with many of the film's expert participants. Visit www.ideasroadshow.com for more details
Howard Burton is the founder of Ideas Roadshow and host of the Ideas Roadshow Podcast. He can be reached at howard@ideasroadshow.com.
Learn more about your ad choices. Visit megaphone.fm/adchoices

Dialysis is a medical miracle, a treatment that allows people with kidney failure to live when otherwise they would die. It also provides a captive customer for the dialysis industry, which values the steady revenues that come from critically required long-term care that is guaranteed by the government. 
Tom Mueller's six year deep dive into the dialysis industry has yielded his latest book, How to Make a Killing: Blood, Death, and Dollars in American Medicine (W. W. Norton, 2023). It's both an historical account of this lifesaving treatment and an indictment of the industry that is dominated by two for-profit companies that control ~80% of the market.  
There is a precarious balance between ethical care for patients and the prioritization of profits for the providers, a tension that has led to ethical, political, and legal debates about the rationing and exploitation of life-saving care and quality of life. 
Dialysis services are desperately needed by patients who require the dangerous, uncomfortable, and exhausting treatments multiple times per week, and pay for it through complex insurance procedures.
Tom Mueller’s book includes a vivid account of CEOs who lead their companies with messianic zeal to drive revenues continually up while simultaneously reducing the cost of care. He introduces us to the doctors charged with reducing those costs even at the expense of high-quality care and negative health outcomes. And we meet the patients themselves, who have little choice but to put their lives and well-being at the mercy of this system.
How did a lifesaving medical breakthrough become a for-profit enterprise that threatens many of the people it’s meant to save? And who are the brave people -patients, doctors, and employees of the system who are willing to tell their stories despite tremendous pressure to remain silent? And why do we as Americans accept worse outcomes at higher costs than the rest of the world?
Tom Mueller's highly readable yet devastating book illustrates the dialysis industry as a microcosm of American medicine. 
Mueller challenges us to find a solution for dialysis, an approach that could also provide the opportunity to begin fixing our country’s dysfunctional healthcare system and a fighting chance at restoring human health outcomes, rather than the extraction of profits, as its true purpose.
To contact Tom Mueller, visit www.tommueller.co
Suggested reading: 


The Body's Keepers by Paul L. Kimmel, M.D.


The Occasional Human Sacrifice: Medical Experimentation and the Price of Saying No by Carl Elliott

Also mentioned: 


How to Get Away with Merger by Thomas G. Wollman (NBER working paper, 2020)


"How Acquisitions Affect Firm Behavior and Performance" by Eliason, Heebsh et al. (The Quarterly Journal of Economics, 2020)


Learn more about your ad choices. Visit megaphone.fm/adchoices

During the COVID pandemic, billions of dollars in relief aid was sent out to help us ride out the storm, although many people who struggled through it might scratch their heads at such a number, having seen little of it make any concrete impact in their own lives. This discrepancy is indicative of the underlying problem with the contemporary care economy, a series of federal and state programs, healthcare facilities and NGO’s, all trying to bend the needs of those under their care to the mechanisms and incentives laid out by capitalism. The result is a massive apparatus that regularly fails to fulfill its supposed intentions, leaving workers and those in need of help in precarious and often dangerous situations. 
This apparatus is untangled and explained in clear detail by Premilla Nadasen in her book Care: The Highest Stage of Capitalism (Haymarket Books, 2023). Informed by both her work as a historian and as a political activist, she manages to untangle and explain why the massive apparatus regularly fails to fulfill its purpose. She also outlines offramps, forms of resistance that workers and activists have taken to develop alternative anticapitalist forms of care that might someday allow us to truly flourish together.
Premilla Nadasen is a professor of history at Barnard College, Columbia University. She is the co-director of the Barnard Center for Research on Women. She is also the author of Welfare Warriors: The Welfare Rights Movement in the United States and Household Workers Unite: The Untold Story of African American Women Who Built a Movement.
Learn more about your ad choices. Visit megaphone.fm/adchoices

Ryan Reft is a historian in the Manuscript Division at the Library of Congress, where he oversees collections pertaining to 20th and 21st century domestic politics and policies. He received his PhD in U.S. urban history from the University of California San Diego in 2014, and his writing has appeared all over the place, from edited volumes to academic journals, to the Washington Post and Zocalo Public Square. He’s also currently the senior co-editor of the Urban History Association’s blog The Metropole, where he recently authored a great article called “Heroin and Chocolate City: Black Community Responses to Drug Addiction in the Nation’s Capital, 1967-1973.” While it’s not a book, “Heroin and Chocolate City” is a deeply-researched article that offers compelling new insights into how Washington, D.C., responded to heroin use in the late 60s and early 70s, when both D.C., and heroin, were really unique.
*Note to listeners: Ryan realized later he connected Julius Hobson with SNCC. Hobson was actually associated with CORE.
Emily Dufton is the author of Grass Roots: The Rise and Fall and Rise of Marijuana in America (Basic Books, 2017). A drug historian and writer, her second book, on the development of the opioid addiction medication industry, is under contract with the University of Chicago Press.
Learn more about your ad choices. Visit megaphone.fm/adchoices