Mary, a doctorally prepared nurse practitioner and adult congenital heart disease survivor hosts Not A Perfect Heart Podcast: Discussions for the Heart providing conversations on topics related to mental health, women's health, transition to adult care for congenital heart disease patients, advocacy, relationships, and more. Join her as she talks to some amazing people from various walks of life about topics we are all wondering about!
Lessons Learned: Advocate
Mary speaks with Lindsay, a fellow Adult Congenital Heart Disease survivor, about the importance advocacy, mental health, relocation with a chronic illness, and so much more. Lindsay has never let CHD define her and is passionate about patient advocacy and using her own life experiences to help CHD patients and their families get the right care.
Heart of A Lion
In this episode, Mary speaks with Heather, a Labor and Deliver RN and mom to 3. Her youngest son, Judah, was born with a complex congenital heart defect. We discuss how this journey has impacted their family and her work as a nurse, specifically the importance of promoting empowerment and advocacy for her patients.
Heart Mom & Writer
Mary speaks with Anna Jaworski, she is a heart mom, host of "Heart to Heart with Anna", and writer. She has been active in the Congenital Heart Defect community for many years. We discussed what it was like to have limited information about CHD when...
Fibrosis, Cirrhosis, Congestion, Fontan Associated Liver Disease (FALD)?!
Dr. Daniel Ganger, Hepatologist at Northwestern Medicine, and Mary discuss the difference between congestive hepatopathy and Fontan Associated Liver Disease (FALD) as well as when a Heart - Liver Transplant may need to be considered.
Mary and her dad, David, discuss the murmur that changed everything for their family. His gut feeling that something wasn't right, which lead to admission to the neonatal intensive care unit and multiple open heart surgeries. Join along for their journey back to the beginning!
The First Nine Days
Mary goes back to the beginning with her own Heart Mom, Barb. They discuss the early days, months, and years of Mary's life. From finding out about Mary's congenital heart disease, being on extracorporeal membrane oxygenation (ECMO), cardiac tamponade, anxiety as a heart mom and more.
This Podcast is Amazing!
This woman Mary is amazing. I know her personally and she is an absolute saint. She is one of the best people I have ever met in my entire 32 years of life. Her imperfect heart is absolutely perfect to me. I highly recommend this podcast!