10 episodes

Are you living with a chronic illness? Do you feel alone and isolated? You are not alone. The Patient Activation Network Podcast was created by patients for patients to inspire real change in healthcare. Patient Activation is defined as a patient's knowledge, skills, ability, and willingness to manage his or her own health and care. When a patient becomes activated in their own care the patient experience is better overall. This podcast will share real stories about health from the lens of the patient and the provider. These stories will educate, motivate and inspire hope. Do you have a story to share and want to be featured on an upcoming podcast? To learn more please visit patientactivationnetwork.com

Patient Activation Network Patient Activation Network

    • Health & Fitness
    • 5.0, 2 Ratings

Are you living with a chronic illness? Do you feel alone and isolated? You are not alone. The Patient Activation Network Podcast was created by patients for patients to inspire real change in healthcare. Patient Activation is defined as a patient's knowledge, skills, ability, and willingness to manage his or her own health and care. When a patient becomes activated in their own care the patient experience is better overall. This podcast will share real stories about health from the lens of the patient and the provider. These stories will educate, motivate and inspire hope. Do you have a story to share and want to be featured on an upcoming podcast? To learn more please visit patientactivationnetwork.com

    PAN57: Spinal Muscular Atrophy with Dr. Susan Begelman

    PAN57: Spinal Muscular Atrophy with Dr. Susan Begelman

    Spinal Muscular Atrophy (SMA) is a rare disease that affects the motor nerve cells in the spinal cord. SMA may affect a person’s ability to eat, walk, or even, breathe. SMA is also the number one cause of death in infants. In this episode, Dr. Susan Begelman discusses what causes SMA, newborn screening and hope on the horizon.



    About Dr. Susan Begelman

    Dr. Susan Begelman is the Vice President of the Rare Disease and Neuroscience Medical Unit in US Medical Affairs at Genentech. In this role, Susan provides scientific leadership for a department responsible for generating and executing medical strategies across a broad portfolio of therapeutic areas.

    Susan is widely regarded as a respected leader with an unwavering commitment to patients and has over a decade of experience in the biopharmaceutical industry. Since joining Genentech in 2008, Susan has overseen product development activities and provided oversight of medical launch strategies and phase 3b/4 trials in multiple therapeutic areas that include cardiovascular disease, neuroscience, rare disease, and stroke. Prior to joining the biopharmaceutical industry, she was an academic vascular medicine physician in the Department of Cardiovascular Medicine and Medical Director of the Noninvasive Vascular Laboratory at the Cleveland Clinic for six years.

    Susan received a Bachelor of Arts in Biology from the University of Pennsylvania and her Medical Doctorate from Hahnemann University School of Medicine in Philadelphia. She completed her residency in internal medicine and fellowship in vascular medicine at the Cleveland Clinic. Susan is a fellow of the Society for Vascular Medicine for which she was a Committee Chair and held elected positions as a Board of Trustees Member, Secretary, and Treasurer. Susan is also a fellow of the American College of Cardiology.

    Episode Details



    * About Dr. Susan Begelman

    * What is Spinal Muscular Atrophy and how it is typically diagnosed

    * Newborn screenings how early diagnosis impacts overall prognosis

    * Parent expectations for having a child with SMA

    * Hope on the horizon for those with SMA



    Related Links



    Cure SMA (http://www.curesma.org/)

    SMA Foundation (http://www.smafoundation.org/)

    Muscular Dystrophy Association (https://www.mda.org/disease/spinal-muscular-atrophy)

    United Spinal Association (https://www.unitedspinal.org/)



    Click the podcast player above to listen, or you can find our podcast on your favorite channels: iTunes, Stitcher, TuneIn, and more. Thank you for listening and we look forward to bringi...

    • 20 min
    PAN56: Bullying in Healthcare with Phyllis S. Quinlan, PhD, RN-BC

    PAN56: Bullying in Healthcare with Phyllis S. Quinlan, PhD, RN-BC

    On this episode of the Patient Activation Network Podcast, we talk to Phyllis S. Quinlan, author and nurse entrepreneur, about bullying in healthcare. Phyllis has practiced in a variety of emergency services, acute care, subacute care and long term care settings. She holds national certifications in Critical Care, Emergency Nursing and Nursing Professional Development; and has held senior leadership positions in administration and education. She is also a Legal Nurse Consultant.















    She is a regular on the online program, Nursing Success TV http://www.nursingsuccesstv.com in her Ask Dr. Phyllis coaching segment and she was a featured speaker in five of the Take Care of Your Nursing Career Webcast Series offered by the National Healthcare Career Network.







    On this podcast, Phyllis is also discusses her new book, Bringing Shadow Behavior into the Light of Day. This book provides healthcare leaders with a guideline for the assessment and management of the disruptive behaviors of bullying and incivility. It is time to definitively address the behaviors that lurk in the shadows and undermine RN and other professional caregiver’s vitality and resilience. How we treat each other is directly related to how we engage our patients and their families.















    Episode Details







    * About Phyllis S. Quinlan, PhD, RN-BC* Bullying culture in healthcare* Where bullying originates* How disruptive behavior puts patients at risk* Why caregivers are susceptible to bullying* Reporting bullying without fear of retribution* Reforming bullying behavior* About Bringing Shadow Behavior into the Light of Day* Closing Thoughts







    Related Links







    * To learn more about Phyllis or her books, please visit: http://www.mfwconsultants.com/







    Click the podcast player above to listen, or you can find our podcast on your favorite channels: iTunes, Stitcher, TuneIn, and more. Thank you for listening and we look forward to bringing you another inspirational story soon.

    • 18 min
    PAN55: Share the Care with Sheila Warnock

    PAN55: Share the Care with Sheila Warnock

    Sheila Warnock had several profound experiences change her life. First, she became sole caregiver of her ill mother and an emotional crutch for her best friend, Susan, who was diagnosed with cancer. By undertaking this dual role, Sheila truly experienced the tremendous burden caregivers have to endure.















    In 1988, she became part of a group of 12 women (mostly strangers to each other) who came together and stayed together for the next three and a half years to care for friend Susan. The contrast of caring for someone without support to the experience of sharing responsibilities with a group proved to Sheila that this new collaborative approach to caregiving was something of immeasurable value and needed to be shared with caregivers everywhere.







    As a result, she and her co-author, Cappy Capossela, documented the systems used by the group in their book, Share The Care, How To Organize A Group To Care For Someone Who Is Seriously Ill, Simon & Schuster, 1995. This system guides friends, neighbors, co-workers, and acquaintances with the roadmap for creating and maintaining a “caregiving family” to support someone they know facing a health, aging, medical issue or any circumstance were support is needed including multiple births, or grandparents raising small children. In this episode we learn more about Sheila and her story.















    Episode Details







    * How strangers got together to form a funny family for a friend in need* How the funny family’s journey through cancer helped others with cancer* Why Share the Care was created* A teamwork approach to caregiving* How to ask for help as a caregiver* About Share the Caregiving * Understanding the Caregiving Crisis* Advice for new caregivers







    Related Links







    * https://sharethecare.org/











    Click the podcast player above to listen, or you can find our podcast on your favorite channels: iTunes, Stitcher, TuneIn, and more. Thank you for listening and we look forward to bringing you another inspirational story soon.

    • 18 min
    PAN54: Vets to BSN Program at National University with Mary Beth Prendergast

    PAN54: Vets to BSN Program at National University with Mary Beth Prendergast

    “This program helps military vets get the credits they deserve,” said Mary Beth Prendergast about the Vets to Bachelor of Science in Nursing (BSN) program at National University in San Diego. During this episode, Mary Beth discusses this program and how the flexibility of the program allowed a student to spend time with his mom in her final days.







    About Mary Beth Prendergast







    Ms. Mary Beth Prendergast is a Nursing faculty member at National University and has earned a M.S. Nursing from San Diego State University.







    About National University







    National University is San Diego’s largest private nonprofit university, founded in 1971 by retired U.S. Navy Lt. Cmdr. David Chigos. National University’s mission is to provide accessible, achievable higher education to adult learners. Today, National University educate students from across the U.S. and around the globe, with over 150,000 alumni worldwide.







    Episode Details







    * About Mary Beth Prendergast* Vets to BSN Program at National University* How Medics in the Military can qualify for this special Bachelors of Nursing Program* How the flexibility of the program and the support of the staff helped one of the students cope with the loss of his mother* Work-life balance, coaching and the student experience at National University* Closing thoughts







    Related Links







    * https://www.nu.edu/











    Click the podcast player above to listen, or you can find our podcast on your favorite channels: iTunes, Stitcher, TuneIn, and more. Thank you for listening and we look forward to bringing you another inspirational story soon.

    • 19 min
    PAN53: HIV, Needlesticks and the story of Karen Daley, PHD, MPH, RN, FAAN

    PAN53: HIV, Needlesticks and the story of Karen Daley, PHD, MPH, RN, FAAN

    “As I got on the elevator that final time, I realized that this was the end of my clinical career.” Karen Daley, RN reflected on what it felt to walk out of the Emergency Room for the last time after an accidental needle stick led to a diagnosis of HIV and Hep C. “I just never thought it would end this way.”

    On this episode of the Patient Activation, Karen Daley shares her emotional journey and the work she is doing to help raise awareness for needle stick safety.

    About Karen Daley, PHD, MPH, RN, FAAN

    Karen Daley is an American nurse, past president of the American Nurses Association, former director of the American Nurses Credentialing Center and an advocate for the prevention of needlestick injury in healthcare. Karen worked as an emergency room nurse for many years until sustaining a needlestick injury on the job in 1998. After drawing blood from a patient, she was stuck by another needle that was wedged in the container as she was trying to dispose of the needle. A few months later, Daley tested positive for HIV and hepatitis C.

    Daley has not let her diagnosis keep her down. She encouraged the passage of a bill at the Massachusetts state legislature that requires hospitals to report needlestick injuries to the Massachusetts Department of Public Health. For Daley’s work in needlestick injury prevention, she was named a Fellow of the American Academy of Nursing in 2006. Daley has served as director of the American Nurses Credentialing Center and as president of the Massachusetts Association of Registered Nurses (MARN) and the Massachusetts Center for Nursing.

    In 2010 and 2012, she was elected to two-year terms as president of the American Nurses Association, where she had previously served on the board of directors. She is on the board of trustees for the American Nurses Foundation. In 2013, she was named to the Modern Healthcare Top 25 Women in Healthcare for 2013.

    Episode Details



    * About Karen A. Daley, PHD, MPH, RN, FAAN

    * Being diagnosed with HIV and Hep C

    * Shifting from a clinical focus to raising awareness for needle safety

    * Advice for newly diagnosed HIV and Hep C patients

    * New blood draw technology for safer blood draws

    * Closing thoughts



    Related Links



    * https://velanovascular.com/



    Ways to Listen

    Click the podcast player above to listen, or you can find our podcast on your favorite channels: iTunes, Stitcher, TuneIn, and more. Thank you for listening and we look forward to bringing you another inspirational story soon.

    • 16 min
    PAN52: Pushing the Limits with Dr. Shawna Pandya

    PAN52: Pushing the Limits with Dr. Shawna Pandya

    Dr. Shawna Pandya dreamed of being a super hero as a little girl. As she grew, her dreams shifted to becoming an astronaut and medical doctor. While she may not done a cape to work, she is an every day hero who helps patients everyday and helps further our mission to explore this galaxy and beyond. On this episode of the Patient Activation Network podcast, we discuss Dr. Pandya’s fascinating career journey along with physician communication, soft skills, patient experience and what doctors can learn from pilots.  

    About Dr. Shawna Pandya

    Dr. Shawna Pandya is a physician, speaker, martial artist, citizen-scientist astronaut candidate with Projects PoSSUM & PHEnOM, and prime crew aquanaut with Project Poseidon. Through her involvement with Project PoSSUM, Dr. Pandya was part of the first crew to test a commercial spacesuit in micro-gravity. Dr. Pandya holds degrees in Honors Neuroscience (BSc. Hons, University of Alberta), Space Studies (MSc., International Space University) and medicine (MD, University of Alberta). She is licensed as a general practitioner. She is an accomplished speaker, having given talks at TEDxUAlberta, TEDxEdmonton and the University of Alberta’s Peter Lougheed Leadership College at the invitation of former Prime Minister Rt. Hon. Kim Campbell. 

    Episode Details



    * About Dr. Shawna Pandya

    * Becoming an astronaut

    * What physicians can learn from pilots

    * Physician communication and the patient experience

    * Physician soft skills and communication

    * Closing thoughts



    Related Links



    * http://shawnapandya.com/

    * Instagram

    * Facebook

    * Twitter



    Ways to Listen

    Click the podcast player above to listen, or you can find our podcast on your favorite channels: iTunes, Stitcher, TuneIn, and more. Thank you for listening and we look forward to bringing you another inspirational story soon.

    • 11 min

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