Patient PrepRheum Podcast

CreakyJoints Australia
Patient PrepRheum Podcast

Patient PrepRheum is a podcast exploring important and often-misunderstood aspects of living with autoimmune arthritis and related conditions here in Australia. We'll speak with fellow patients and renowned doctors to help gain a better understanding of some of the less talked about topics of managing these diseases. At CreakyJoints Australia we are on a mission to raise awareness and deepen the collective understanding of arthritis, a disease which has more than 200 variations, empowering patients to put themselves at the centre of their own health.  In Patient PrepRheum, we are looking at three key areas: Biosimilars - a group of biologic medicines used to slow and stop the progression of Autoimmune arthritis; How medications are approved via the Therapeutic Goods Administration and the Pharmaceutical Benefits Scheme; and the importance of good patient-doctor communication. Hosted by CreakyJoints Australia National Coordinator Naomi Creek.  For more information, visit the CreakyJoints Australia website.

Episodes

  1. Psoriatic Arthritis: Self-Management and Getting on with Life

    07/22/2024

    Psoriatic Arthritis: Self-Management and Getting on with Life

    In our third episode, Naomi is chatting with Simone Bye from New South Wales, who lives with psoriatic arthritis. Simone was diagnosed in 2018 and is a mum of two young children. She says the hardest part of her journey has been trialling and medically failing so many treatments, which has made it difficult to be the parent she wants to be for her kids. Despite these challenges, she is doing her best to manage her condition and get on with life.Naomi is also joined by Sarah Comensoli from BJC Health in Sydney. Sarah has several roles there as a director, head of marketing and manager of the allied health team. She has been practising as an Accredited Exercise Physiologist since 2008 and has worked in a number of clinical and gym settings since then. Sarah has been instrumental in building the Exercise Physiology service at BJC Health to be one which is unmatched in delivering care to those with rheumatic disease.Sarah shares her expertise in working with rheumatology patients and says there is no “one size fits all” approach in helping people keep fit and healthy. She explains how tailoring an exercise program is the key to success in getting patients engaged in better lifestyle habits. Simone discusses some of the ways her allied health team are helping her integrate techniques into her daily life so she can function more efficiently, physically and mentally. Contact Us We want to hear what you think. Send your comments in the form of an email, video, or audio clip of yourself to podcasts@ghlf.org Meet the Team Host: Naomi Creek, National Coordinator at CreakyJoints Australia. A podcast episode produced by Ben Blanc, Associate Director, Digital Production and Engagement at GHLF. This second season of Patient PrepRheum is produced by the non-profit Global Healthy Living Foundation, its arthritis patient community CreakyJoints Australia, and made possible with support from UCB Australia.For more information, visit the CreakyJoints Australia website. See omnystudio.com/listener for privacy information.

    37 min
  2. Psoriatic Arthritis: Patient Journeys and the Road to Diagnosis

    07/22/2024

    Psoriatic Arthritis: Patient Journeys and the Road to Diagnosis

    In this episode, Naomi is joined by two patients. Kay Boucker is from New South Wales and was diagnosed with psoriatic arthritis in 2013. Kay lived with psoriasis for many years before experiencing other symptoms like fatigue, tendon pain and uveitis. She said it took her GP a long time to be convinced about her PsA symptoms but she was finally referred to a rheumatologist. Kay also lives with type 2 diabetes and depression and says singing is her happy pill for helping her through life’s challenges.Naomi’s second guest is Andrea McMahon from South Australia. Andrea was diagnosed with rheumatoid arthritis, Sjogren’s syndrome and fibromyalgia in 2010.  Then, four years ago, she presented to her rheumatologist with new symptoms of splitting nails and lower back pain. Shortly after that she was diagnosed with psoriatic arthritis. The ups and downs in her journey have taught her patience, pacing and resilience. Andrea remains optimistic for her future and continues her life with as much activity as she can.Kay, Andrea and Naomi share their experiences and insights on managing psoriatic arthritis and living with chronic illnesses. They emphasise the importance of lifestyle factors, seeking knowledge, and finding support systems. Kay and Andrea discuss the impact of their conditions on their daily life, while offering practical advice and personal anecdotes to help others navigate the challenges of living with chronic conditions. Contact Us We want to hear what you think. Send your comments in the form of an email, video, or audio clip of yourself to podcasts@ghlf.org Meet the Team Host: Naomi Creek, National Coordinator at CreakyJoints Australia. A podcast episode produced by Ben Blanc, Associate Director, Digital Production and Engagement at GHLF. This second season of Patient PrepRheum is produced by the non-profit Global Healthy Living Foundation, its arthritis patient community CreakyJoints Australia, and made possible with support from UCB Australia. For more information, visit the CreakyJoints Australia website. See omnystudio.com/listener for privacy information.

    37 min
  3. Psoriatic Arthritis: An Underdiagnosed Disease

    07/22/2024

    Psoriatic Arthritis: An Underdiagnosed Disease

    In this episode, we talk with Dr Premarani Sinnathurai, a specialist in the Rheumatology Department at Royal North Shore Hospital and Clinical Senior Lecturer at the University of Sydney. She was awarded her PhD from the University of Sydney in 2019 on Comorbidity and Patient-Centred Health Outcomes in Psoriatic Arthritis. Her research focuses on the role of comorbidity and adiposity on outcomes in psoriatic arthritis. Her clinical work includes specialist psoriatic arthritis clinics in addition to general rheumatology and acute referral clinics.Dr Sinnathurai discusses the complexities of psoriatic arthritis, including inflammation in joints, tendons and skin and the challenges of diagnosing the condition. We learn about the importance of early diagnosis and appropriate treatment as well as the comorbidities associated with psoriatic arthritis. We also hear about the various medications and lifestyle changes that can help people manage the condition, highlighting the importance of individualised approaches based on patient priorities and patient-doctor partnerships. Contact Us We want to hear what you think. Send your comments in the form of an email, video, or audio clip of yourself to podcasts@ghlf.org Meet the Team Host: Naomi Creek, National Coordinator at CreakyJoints Australia. A podcast episode produced by Ben Blanc, Associate Director, Digital Production and Engagement at GHLF. This second season of Patient PrepRheum is produced by the non-profit Global Healthy Living Foundation, its arthritis patient community CreakyJoints Australia, and made possible with support from UCB Australia.For more information, visit the CreakyJoints Australia website. See omnystudio.com/listener for privacy information.

    25 min
  4. Audio Guide: Patient/Doctor Communication

    04/20/2021

    Audio Guide: Patient/Doctor Communication

    This is an audio guide about patient and doctor communication brought to you by CreakyJoints Australia. Be sure to go to the CreakyJoints Australia website, and join for free to keep updated on all of our resources. TRANSCRIPT This is an audio guide about Patient and Doctor Communication, brought to you by Global Healthy Australia.Whilst many patients have had positive experiences working with their health team, there are still many of you who are unsatisfied with the quality of treatment and are frustrated by the ineffective communication experienced when approaching your GPs/ specialists...Here we would like to offer our top tips so Doctors and Patients can “Get on The Same Page” PATIENTS  Get your needs met, ask, ask and ask some more!  This is about YOU, Doctors are here for you. Be realistic - You won’t always get all the answers from a doctor, so seek advice so you know where to go next!  This process is empowering in itself, there may be setbacks along the way but keep up a proactive mentality/approach and you will land in the right place/direction  Get your needs met - if you are unsatisfied with your doctor, you are 100% entitled to ask your records to be transferred to a new one! It’s common practise and they won’t take it personally.  Helpful ways to keep up effective communication and manage any hesitancy around discussion If you feel nervous or have a particularly sensitive issue, bring a friend, a support person, social worker or someone you feel comfortable with to generate a feeling of safety and security when verbalising your issue. If helpful, Jot down some points before hand so you have a reference point that will keep your discussion on the right track in case you get confused/lost/shy etc. Remember, you are not the first one who has come with the issue you have!  Be accountable with record keeping  Doctors need as much information as possible, the more you have the better you are treated.  If you struggle with this make sure to stay as prepared and organised as possible. This is your best chance at getting the treatment and support you need! Be accountable. DOCTORS  It is essential that doctors have a proper understanding of their patients.  Whilst this may seem obvious, this is not to minimise the health care communities efforts, it’s to address the feedback that there are some barriers that need to be addressed.  Quality Communication  Get clear on your patients value systems: Sometimes patients have a hard time verbalising their needs...  Gain a clear understanding of the patient as a person, ask direct questions that get YOU clear on their needs. What do they like to do with their time?  What kind of lifestyle do they seek?  What is getting in the way of your wants/needs/desires? Pre appointment surveys may be helpful to identify your patients concerns and needs Holistic Understanding: The condition goes beyond physical aspects, affecting emotional, social, spiritual and intellectual aspects of life. Be conscious that there are topics patients struggle to discuss, so you may need to help encourage them on this, remind them its a safe, non-judgemental space.  Broaden your list of resources/ information to offer up. You are a Hub of information for them.  Every patient responds differently to therapy. Be well-versed/updated on the latest news/stats and new developments within Arthritis care. Broaden your pool of resources to suggest to your patients. Get yourself acquainted with key players in the field, help to navigate getting across everything! You’ll be more prepared.  Rosemary: “For sufferers, information is power. It’s one of the ways we cope with the condition”.  People respond differently, be conscious of their personality types when making non-medical based suggestions.  Always be meticulous with record keeping, patient history and handover to specialists  “Something huge I think is missing is an automatic referral for

    5 min
  5. Audio Guide: Medicine Approval and Access in Australia

    04/20/2021

    Audio Guide: Medicine Approval and Access in Australia

    This is an audio guide about the approval and sale of therapeutic goods in Australia, brought to you by CreakyJoints Australia.  Be sure to go to the CreakyJoints Australia website and join for free to keep updated on all of our resources. TRANSCRIPT This audio guide is about the approval and sale of therapeutic goods in Australia. It is brought to you by CreakyJoints Australia. Before therapeutic goods (including medicines, biologicals, vaccines, medical devices and products such as vitamins) can be sold in Australia, they must be approved for sale by the Therapeutic Goods Administration (or “the TGA”). The TGA is a part of the Australian Government Department of Health. Individuals or organisations, such as pharmaceutical companies, can apply for (or “sponsor”) a therapeutic good to be considered for sale in Australia by the TGA. Sponsors must also supply evidence of their product’s quality, safety and efficacy gathered through clinical trials. The submission is then evaluated by the TGA. If approved, the product is added to the Australian Register of Therapeutic Goods as a “listed” or “registered” product according to its risk profile. No medicine is 100 per cent risk-free, but the risk is greater for some medicines. Therefore, they place more rigorous controls on higher risk “registered” medicines than lower risk “listed” medicines. Listed products can be sold through supermarkets or pharmacies without a prescription, though not all are evaluated by the TGA for efficacy. All registered products are always evaluated for efficacy before they go on sale. Some are available in pharmacies over the counter after consultation with a pharmacist. Prescription products are only available with a valid prescription from an approved health professional and can only be sold through pharmacies. The Pharmaceutical Benefits Scheme (or “PBS”) heavily subsidises the cost of prescription products for all Australians with a Medicare card as well as some Australian visitors. For example, the actual cost of some medications for autoimmune arthritis is well over $1,000 but, through the PBS, consumers pay less than $50 for them at the pharmacy. Sponsors can apply for registered products to be added to the PBS. These applications are considered by the Pharmaceutical Benefits Advisory Committee (or “the PBAC”). The PBAC is an independent body of health professionals and consumer representatives appointed by the Australian Government. The PBAC meets at least three times a year to review the applications on their agenda. They assess relevant information from the sponsor, the TGA and public submissions before deciding if they should recommend products to the Minister for Health for inclusion on the PBS. Public submissions can come from patients, carers, members of the public, health professionals or consumer groups and are a valued part of the process. They help the PBAC understand how the proposed product will benefit consumers. These perspectives may be quite different from those presented by the sponsor. Products that are on the Australian Register of Therapeutic Goods but are not included on the PBS may still be sold in Australia but they are not subsidised by the Government. If there is a product that you would benefit from that is not currently listed on the PBS, you can ask your healthcare professionals or relevant consumer groups to help you bring it to the attention of the PBAC. This could start the process of making the product available to you and others like you.   See omnystudio.com/listener for privacy information.

    5 min
  6. Audio Guide: Biosimilars

    04/20/2021

    Audio Guide: Biosimilars

    This is an audio guide about biosimilar medications, brought to you by CreakyJoints Australia. Be sure to go to CreakyJoints Australia website, and join for free to keep updated on all of our resources. TRANSCRIPT Audio Guide 1: Biosimilar Medications   This is an audio guide about biosimilar medications, brought to you by CreakyJoints Australia. A biosimilar medication (also known as a “biosimilar”) is a very close duplicate of an original brand of biologic medication (or “biologic”).  Biologic medications are developed from living cells and are used for a wide range of conditions including diabetes, chronic kidney failure and some types of cancer. They are often also prescribed to treat autoimmune conditions such as rheumatoid arthritis, psoriatic arthritis and Crohn’s disease. You might already be using biologics such as etanercept (sold under the brand name Enbrel), infliximab (sold under the brand name Remicade) or adalimumab (sold under the brand name Humira) to help treat your condition. Biologics have large complex molecular structures compared to tablet medications. (Picture a basketball next to a pea and you’ll get the idea.) As a result, they cannot be processed through the digestive system. Instead, they are injected or infused into the bloodstream. Unlike the synthetically made generic versions of tablet-form medications (which are 100 per cent identical to the original brand-name medication), biosimilars are almost identical copies of biologics. Biosimilars are made using the same research and materials as the original reference biologics they replicate. The manufacturing processes are also exactly the same. Biosimilars even have the same active ingredient name as their reference biologic, but they are sold under different brand names. However, the end products can never be exactly the same as the original biologics, so they cannot be reproduced identically. Both biologics and biosimilars can even vary slightly between batches. Does this mean biosimilars are safe? Yes, they are. The very minor differences between a biosimilar and its reference biologic mean that the biosimilar has the same safety profile as the reference biologic. Both must go through the clinical trial process, although biosimilars can use some of the data from the clinical trials conducted for their reference biologic. Biosimilars must also pass the same strict regulation processes of Australia’s Therapeutic Goods Administration. Biosimilars will not be approved if they don’t meet the same quality, efficacy and safety standards as their reference biologics. Is there a cost difference between biologics and biosimilars? While biologics are planned and developed from the ground up, biosimilars are based on biologic structures that already exist. This means they are more cost-effective to produce than their reference biologic so they can be sold to the government at a lower price.  Additionally, every time a new biosimilar is launched, the price the PBS pays for ALL equivalent medicines in the category drops. For example, if a new adalimumab biosimilar is approved, the price to the PBS of the reference biologic HUMIRA plus other approved adalimumab biosimilars all drop to the same lower price. In the long run, that means less expensive medicine as the cost savings allow the government to invest in other medications and areas of the healthcare system. There is no price difference for consumers between biologics and biosimilars as these are sold at the same fixed price through the Pharmaceutical Benefits Scheme (PBS). However, consumers benefit from the increased range of treatment options available to them. How are biosimilars prescribed? Only rheumatologists and clinical immunologists are authorised to prescribe biologics and biosimilars in Australia. If you have autoimmune arthritis you will most likely see a rheumatologist to access either of these medication types.  There are several ways you may be pre

    8 min
  7. Improving Patient/Doctor Communication

    04/20/2021

    Improving Patient/Doctor Communication

    In our third episode, Naomi learns some top tips from fellow patient Sarah Clark abouthaving good communication with your doctor. Sarah tells of her rocky start with her initial diagnosis and early treatment until she found a specialist who really listened to her.  Rheumatologist, Dr David Liew shares some wonderful insights and what helps him provide the best care possible to his patients. Amongst other committee positions, he served on the Council of Australian Therapeutic Advisory Groups' Expert Advisory Group for the Guiding Principles for the Governance of Biologics and Their Biosimilars in Australian Hospitals and maintains an academic interest in adverse drug reaction surveillance. Dr David Liew ProfileDavid Liew is a rheumatologist and clinical pharmacologist at Austin Health in Melbourne and also leads the Medicines Optimisation Service there. He is also the deputy editor of Rheumatology Republic and a co-host of the Australian Prescriber Podcast. Amongst other committee positions, he served on the Council of Australian Therapeutic Advisory Groups' Expert Advisory Group for the Guiding Principles for the Governance of Biologics and Their Biosimilars in Australian Hospitals and maintains an academic interest in adverse drug reaction surveillance. HOST: Naomi Creek PATIENT: Sarah Clark DOCTOR: Dr David Liew My GP helped me find a Rheumatologist at the Rheumatology ward in Wellington. I just did not connect at all with him. He didn’t really listen to me, his approach was cold and clinical. Hi, I’m Naomi Creek and welcome to our 3rd Episode of Patient Prep Rheum. In this episode, we are diving into the art of communication between Patients, Doctors and the rest of your healthcare team.  We know that many patients have a great line of communication with the members of their healthcare management team. However, we also know there are others out there who find themselves quite overwhelmed due to poor communication when they are just trying to find the best treatments for their often complex conditions.  We believe effective conversations between doctors and patients are extremely important as this not only fosters positive relationships, it also helps to   greatly improve patient outcomes. Sarah Clark, from New Zealand, lives with rheumatoid arthritis. She knows all too well the negative impact that poor communication between a patient and doctor can have on treatment. My GP helped me find a Rheumatologist at the Rheumatology ward in Wellington. I just did not connect at all with him. He didn’t really listen to me, his approach was cold and clinical. My symptoms progressed rapidly, he did not really listen to that. Put me on anti-inflammatories, and said that that should deal with the symptoms which it did not. I was flaring everywhere at this point, probably in every joint. I just wasn’t getting anywhere with him. It was by chance that Sarah”s rheumatologist was away on the day she had her appointment, so she saw a younger female rheumatologist, Rebecca, instead. They connected instantly. She was just really holistic in her approach and could clearly see from my lab results and how I presented in the clinic that my rheumatoid arthritis was 100% not under control. She then started me on strong medications. In NZ it starts with anti-inflammatories, and then it works up tier by tier, so if you fail a medication you can go to the next tier of medications so quite swiftly she got me to try biologics and try humira and I was on methotrexate and still nothing was really helping so she got me on the infusions. One of the major things for me is that she didn’t just sit there with their head in a piece of paper and a pen, they didn’t actually take notes while I was talking to them so they were engaging with me, making eye contact and it made me feel like I was having a conversation and they were responding to me. Rheumatologist Dr. David Liew is aware that the relationship between a patien

    9 min
  8. Accessible Medication Through the TGA & PBS

    04/20/2021

    Accessible Medication Through the TGA & PBS

    In episode 2, Naomi talks with Janine Monty, who lives with multiple autoimmune conditions. Janine shares why having access to a large range of affordable medicine is key to her being able to manage her everyday life. Having to take 17 different medications, not all on the Pharmaceutical Benefits Scheme (PBS), Janine explains just how crucial the PBS is for her. We are also joined by Rheumatologist Paul Bird, who explains, in easy-to-understand terms, the important role the TGA and PBS plays and how patients can have a say in improving access to a medicine. Dr Paul Bird ProfilePaul Bird has over twenty years’ experience in treating rheumatic disease, with particular expertise in Rheumatoid arthritis, Psoriatic arthritis and Ankylosing spondylitis. A/Professor Bird received his medical degree with Honours from the University of Newcastle, and he completed his physician and rheumatology training in Sydney. Pursuing research alongside clinical medicine and patient care, he completed a PhD in 2005 examining MRI in Rheumatoid arthritis, and a Graduate Diploma in MRI. He continues to undertake arthritis research with fellow Australian rheumatologists and with international colleagues. He has held Staff Specialist roles at both St George Hospital and Prince of Wales Hospital and a visiting medical officer position at Griffith Base Hospital, where he managed a rural rheumatology clinic from 1999-2005. He continues to teach medical students and postgraduates as part of his commitment to medical education. In addition to his clinical practice Dr Bird is the Director of Optimus Clinical Research, a facility dedicated to pursuing trials of the latest developments in rheumatology. Part of review boards for several large international medical journals, he spends time reviewing research and publications, keeping up to date with the most recent medical advances. As part of his commitment to optimising rheumatology treatments, he is member of the OPAL group directorate, a dedicated group of clinicians pursuing exploration of better delivery of rheumatology care through clinician driven research. Internationally recognised as a specialist in rheumatic disease and imaging, he is the current Chair of the International Magnetic Resonance Imaging Research association and actively participates in national and international rheumatology research. HOST: Naomi Creek PATIENT: Neen Monty DOCTOR: Dr Paul Bird I need these medications, some keep me alive, some make my life more comfortable, and some just make my life more convenient, but they’re all incredibly helpful. I’m really grateful I don’t have to choose, but without the PBS I wouldn’t be able to treat all my various health problems.  Hi I’m Naomi Creek, National Coordinator for Creakyjoints Australia, I’ve been living with Rheumatoid arthritis since I was 12 years old, so I appreciate the importance of having access to a range of medicines that I can afford to treat my disease. In this episode of Patient Prep Rheum we’re uncovering the process of how medications are approved by the Therapeutic Goods Administration (the TGA), and from there, how patients can play a role in getting them listed on the Pharmaceutical Benefits Scheme (the PBS).  This is a process that can be complicated, however it is one that allows accessibility to medication, and also one that we, as patients, can influence. We spoke with Rheumatologist, Dr Paul Bird, who explained the role of The Therapeutic Goods Administration in Australia. The TGA is the body in Australia that looks after approving medications so they can be available to the general public, that’s a very important role. So their job is to look at new products as they come through, look at the data that’s presented, and say is this effective, is this safe, is there a need for people in Australia to have this medication. The information they are usually given comes from clinical trials, the TGA will look at all of the data and

    8 min
  9. The Next Step with Biosimilars

    04/20/2021

    The Next Step with Biosimilars

    In our premiere episode, we’ll be talking about biologic medicines and biosimilars.  These are medicines that are used to slow or stop the progression of autoimmune arthritis and reduce disease activity when conventional tablet-form medications aren’t working well enough for you. We’ll hear from Ann Laherty-Hunt, a patient who was diagnosed with Rheumatoid Arthritis in 2012 and was a gym junkie before starting to notice sore joints and getting night sweats. Ann shares her treatment journey of trying various DMARD therapies before getting onto biosimilars, which have changed her life. Rheumatologist, Dr David Liew will help us understand the difference between biologics and biosimilars and the safety and efficacy standards that biosimilars must meet before becoming an approved medicine. He also explains the prescribing process of how patients can access biosimilars through the Pharmaceutical Benefits Scheme. Dr David Liew ProfileDavid Liew is a rheumatologist and clinical pharmacologist at Austin Health in Melbourne and also leads the Medicines Optimisation Service there. He is also the deputy editor of Rheumatology Republic and a co-host of the Australian Prescriber Podcast. Amongst other committee positions, he served on the Council of Australian Therapeutic Advisory Groups' Expert Advisory Group for the Guiding Principles for the Governance of Biologics and Their Biosimilars in Australian Hospitals and maintains an academic interest in adverse drug reaction surveillance. HOST: Naomi Creek PATIENT: Ann Laherty-Hunt DOCTOR: Dr David Liew When my Rheumatologist spoke to me she said, you’ve got the biologics that I’m sure you’ve heard of, she said but there’s also biosimilars, which are very similar to the biologic. Welcome to Patient Prep Rheum, a podcast where we speak to people living with autoimmune arthritis and related conditions, as well as health professionals to fully understand important aspects of living with these conditions. We want to empower patients so they are prepped and ready to be at the centre of their own health and make their disease journey a smooth one. Hi, I’m Naomi Creek, the National Coordinator for CreakyJoints Australia, and I have been managing Rheumatoid arthritis since I was 12 years old. The challenges I have faced have made me a passionate advocate for people living with chronic pain.  In this episode, we’ll be highlighting two of the main options used to slow or stop the progression of autoimmune arthritis and reduce disease activity when conventional tablet-form medications aren’t working well enough for you.These options are biologics and biosimilars.” Ann Laherty-Hunt is a nurse that lives in regional Victoria, and was diagnosed with Rheumatoid arthritis in 2012. I was being a gym junkie, and my husband and I were going to the gym a lot, and I was getting sore thumb joints, and I went to a physio to get some strapping because I thought it was from overworking the joints, and then I was having night sweats and of course I'm going, well this isn’t right, and started looking into what it could be, and I was diagnosed with Rheumatoid arthritis in December 2012. I started on, of course the bog standard methotrexate, so I was on that for a while and then I still didn’t have much control, so then we added in plaquenil, and it was still better but not great, and then eventually we added in the pyralin. With those three I probably got really good control for 18 months to two years. After those two years, it looked as though Ann would go into remission, but then her condition spiralled. That is when Ann and her Rheumatologist started talking about another way to treat her condition that they hadn’t yet tried. I knew there was the next step. She said you’ve got the biologics that I’m sure you’ve heard of, but there’s also biosimilars. She said it’s not quite the same as a biologic, because it’s a slightly different compound, but it has the same

    9 min
  10. Patient PrepRheum Trailer

    SEASON 1 TRAILER

    Patient PrepRheum Trailer

    Patient PrepRheum is a new podcast series hosted by Naomi Creek, who has lived with Rheumatoid Arthritis for nearly 40 years. Naomi speaks with fellow patients and renowned doctors to explore important and often-misunderstood aspects of living with autoimmune arthritis and related conditions in Australia. Feel empowered as you listen to interesting, relevant topics that will further your understanding and make your disease journey a smoother one. Hi I’m Naomi Creek and welcome to Patient PrepRheum - a podcast exploring important and often misunderstood aspects of living with autoimmune arthritis and related conditions here in Australia.  Transcript I’ll be speaking with fellow patients and renowned doctors to help gain a better understanding of some of the less talked about topics of managing these diseases. I’ve lived with rheumatoid arthritis for nearly 40 years. Being diagnosed at just 12 years of age, it’s safe to say I know a lot about RA. I’ve experienced the highs and lows, the setbacks and the wins on my journey towards living well with this complex, difficult condition. I want to help you gain confidence, to take charge of your own health and make the road ahead a smoother one. Since 2015 I’ve been the National Coordinator of CreakyJoints Australia. Our non-profit organisation, which is part of the Global Healthy Living Foundation, supports Australia’s arthritis patient community with updated education, support, advocacy and research. We are also part of the worldwide CreakyJoints network with millions of patients and carers who want to live their lives despite their conditions. At CreakyJoints Australia we are on a mission to raise awareness and deepen the collective understanding of arthritis, a disease which has more than 200 variations. Our efforts focus on empowering patients, to put themselves at the centre of their own health, to vocalise their health care preferences and work closely with healthcare providers. To kick off our Patient PrepRheum series we’ll be looking into three key areas in the medical field: Biosimilars - a group of biologic medications used to slow and stop the progression of autoimmune arthritis; How medications are approved via the Therapeutic Goods Administration and the Pharmaceutical Benefits Scheme, and The importance of good patient/doctor communication. We’ll hear stories from patients who have experienced real life-changing breakthroughs in treatment, along with the inevitable hurdles that are all too familiar with managing these conditions. In each episode we’ll also get the medical and legal perspectives, hearing from healthcare professionals and key players working in these fields. Join me on my quest, to expand my understanding of arthritis and to learn more about the treatment options available. Together, we’ll gain all the tools necessary to be ready for the journey ahead. Patient PrepRheum is brought to you by Creak Joints Australia. Listen now wherever you get your podcasts. See omnystudio.com/listener for privacy information.

    3 min

Trailer

Ratings & Reviews

5
out of 5
7 Ratings

About

Patient PrepRheum is a podcast exploring important and often-misunderstood aspects of living with autoimmune arthritis and related conditions here in Australia. We'll speak with fellow patients and renowned doctors to help gain a better understanding of some of the less talked about topics of managing these diseases. At CreakyJoints Australia we are on a mission to raise awareness and deepen the collective understanding of arthritis, a disease which has more than 200 variations, empowering patients to put themselves at the centre of their own health.  In Patient PrepRheum, we are looking at three key areas: Biosimilars - a group of biologic medicines used to slow and stop the progression of Autoimmune arthritis; How medications are approved via the Therapeutic Goods Administration and the Pharmaceutical Benefits Scheme; and the importance of good patient-doctor communication. Hosted by CreakyJoints Australia National Coordinator Naomi Creek.  For more information, visit the CreakyJoints Australia website.

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