29 episodes

Lilly Stairs and Aaron Jun, Heads of Patient Advocacy and Marketing respectively at Clara Health, are joined by patient advocates, healthcare professionals, and more in wide-ranging discussions about healthcare health journeys in the 21st century.

Patients Have Power! Clara Health

    • Science
    • 5.0 • 11 Ratings

Lilly Stairs and Aaron Jun, Heads of Patient Advocacy and Marketing respectively at Clara Health, are joined by patient advocates, healthcare professionals, and more in wide-ranging discussions about healthcare health journeys in the 21st century.

    Lucky Number 13: Peter Morley's Endless Advocacy

    Lucky Number 13: Peter Morley's Endless Advocacy

    Peter lives with multiple chronic conditions but has spent the past two years tirelessly advocating for patients everywhere by taking the morning train from his home in New York City to Washington D.C. Aaron talks to Peter about what advocacy has accomplished, where advocacy will go next, and the things we can look forward to in 2019. 

    • 1 hr 7 min
    Combatting Ultra-Rare Disease

    Combatting Ultra-Rare Disease

    Aaron interviews Dr. Alex Solyom, senior medical director at Enzyvant, about his team's work in developing a new therapy for an ultra-rare genetic condition known as Farber disease.

    • 17 min
    Advocating for Rare Disease in Mississippi

    Advocating for Rare Disease in Mississippi

    A newborn screening is a routine procedure. Shannah didn't give it much thought as she brought her daughter, Emmalyn, home from the hospital. But a late-night call set her down a road towards advocacy that she couldn't have predicted.

    • 49 min
    Representation Matters: Increasing Inclusivity in Research

    Representation Matters: Increasing Inclusivity in Research

    Lilly chats with the ladies of the MS Minority Research Engagement Partnership Network (which is a bit of a mouthful!) Holly, Anita, and Shawn about their work in increasing inclusivity and access in scientific research. 

    • 31 min
    Beyond Sweat: How Hyperhidrosis Shapes Everyday Life

    Beyond Sweat: How Hyperhidrosis Shapes Everyday Life

    Maria Thomas joins Lilly in honor of Hyperhidrosis Awareness Month to talk about her “life as a puddle” and inspiring advocacy work.

    • 24 min
    Healthcare is on the ballot, with Matt Cortland

    Healthcare is on the ballot, with Matt Cortland

    To discuss the healthcare issues that are at stake in the upcoming midterm elections, we speak to lawyer, healthcare advocate, and professional patient, Matt Cortland. As a person living with chronic illnesses, Matt knows all too well the necessity of equitable and robust access to care in everyone's lives; as a lawyer with a Master's in Public Health, he knows the issues and the policies inside and out. Here's our conversation about American healthcare and the things that are at stake in November.

    • 56 min

Customer Reviews

5.0 out of 5
11 Ratings

11 Ratings

Branwen Defren ,

Episode 16

Really loved this episode - it's so important to remember things happening in politics that will have lasting effects on those with pre-existing conditions. Great podcast. :)

Rina Wisseau ,

Holly Thomas

I love the more fun and casual style, that's definitely something that's been missing from content in the healthcare space.

a fellow patient - jim ,

So inspiring!

Listened to the first episode and I'm hooked! It's so great to hear such honest stories being told by patients :)

Top Podcasts In Science