202 episodes

Patients Rising brings its unique and established brand of patient advocacy to a weekly podcast, featuring honest and helpful discussions about issues impacting those with chronic illness. CEO Terry Wilcox hosts the show, with Robert "Dr. Bob" Goldberg, Co-Founder and Vice President of the Center for Medicine in the Public Interest.

Patients Rising Podcast Patients Rising

    • Health & Fitness
    • 5.0 • 36 Ratings

Patients Rising brings its unique and established brand of patient advocacy to a weekly podcast, featuring honest and helpful discussions about issues impacting those with chronic illness. CEO Terry Wilcox hosts the show, with Robert "Dr. Bob" Goldberg, Co-Founder and Vice President of the Center for Medicine in the Public Interest.

    QALY Ban Bill Takes Leap Forward

    QALY Ban Bill Takes Leap Forward

    This week’s podcast is all about the QALY and the bill going to the Senate that would ban its use. 
    The QALY is a metric used to determine how cost-effective a treatment is based on its ability to return a sick person to perfect health. Even if a treatment helps a chronically ill person to live longer, it will not be categorized as valuable as treatments are aimed at diseases that affect younger and healthier populations. 
    To help us understand how the QALY negatively impacts those with chronic illness, we’re joined by Michael Riotto, a member of Patients Rising, and Bill Smith, a Senior Fellow at the Pioneer Institute.
     
    Need help?
    The successful patient is one who can get what they need when they need it. We all know insurance slows us down, so why not take matters into your own hands? Our Navigator is an online tool that allows you to search a massive network of health-related resources using your zip code so you get local results. Get proactive and become a more successful patient right now at the Patients Rising Helpline.
    Have a question or comment about the show, or want to suggest a show topic or share your story as a patient correspondent?
    Drop us a line: podcast@patientsrising.org
    The views and opinions expressed herein are those of the guest(s)/ author(s) and do not reflect the official policy or position of Patients Rising, nor do the views and opinions stated on this show reflect the opinions of a guest’s current or previous employers.
     

    • 17 min
    Nation's First Obesity Bill of Rights

    Nation's First Obesity Bill of Rights

    Treating obesity would cause chronic disease rates to go down, healthcare costs would be reduced, and the lifespan of Americans would increase. But until now, the stigmas relating to obesity have prevented any significant legislation that addresses the issue. To help break it down, we’re joined by Nancy Glick, the Director of Food and Nutrition Policy at the National Consumers League. Nancy helps us understand what an Obesity Bill of Rights actually is, who it covers, and why it's a necessary step. 
    We also discuss a bill that Patients Rising has been trying to move forward for a long time. We got news this week that it finally has some life! 
     
    Need help?
    The successful patient is one who can get what they need when they need it. We all know insurance slows us down, so why not take matters into your own hands? Our Navigator is an online tool that allows you to search a massive network of health-related resources using your zip code so you get local results. Get proactive and become a more successful patient right now at the Patients Rising Helpline.
    Have a question or comment about the show, or want to suggest a show topic or share your story as a patient correspondent?
    Drop us a line: podcast@patientsrising.org
    The views and opinions expressed herein are those of the guest(s)/ author(s) and do not reflect the official policy or position of Patients Rising, nor do the views and opinions stated on this show reflect the opinions of a guest’s current or previous employers.
     

    • 18 min
    March-In Madness

    March-In Madness

    In an effort to curb drug prices, President Joe Biden announced late last year a proposed framework to guide government agencies on how to use march-in authorities if a drug’s price is considered too high.
    But what exactly constitutes “too high?” Your guess is as good as ours, and that’s just the beginning of the issues we expect to come from this framework if it moves forward.
    We spoke with Joe Allen, Executive Director of The Bayh-Dole Coalition. 
    The Bayh-Dole Act is where march-in rights stem from and we figured he would be the perfect person to explain march-in rights, what this really means, and how this framework could derail the entire drug development industry if this comes to pass. 
    You won’t want to miss what he has to say. We also discuss the increasing prevalence of Prescription Drug Affordability Boards and what that might mean as we progress into the second month of 2024.
     
    Need help?
    The successful patient is one who can get what they need when they need it. We all know insurance slows us down, so why not take matters into your own hands? Our Navigator is an online tool that allows you to search a massive network of health-related resources using your zip code so you get local results. Get proactive and become a more successful patient right now at the Patients Rising Helpline.
    Have a question or comment about the show, or want to suggest a show topic or share your story as a patient correspondent?
    Drop us a line: podcast@patientsrising.org
    The views and opinions expressed herein are those of the guest(s)/ author(s) and do not reflect the official policy or position of Patients Rising, nor do the views and opinions stated on this show reflect the opinions of a guest’s current or previous employers.
     

    • 17 min
    Presidential Candidates' Views on Healthcare

    Presidential Candidates' Views on Healthcare

    As the 2024 election season starts to ramp up, we think that it’s important that you know exactly where the presidential candidates stand on healthcare. 
    This week, we unpack what the major players in the presidential race have to say about their healthcare plans. We get into the nitty-gritty for the front runners of each party, covering Trump, Desantis, Haley, Stein, West, and Biden. 
    If we didn’t talk about a candidate you’re interested in, you can find their campaigns here.
     
    Need help?
    The successful patient is one who can get what they need when they need it. We all know insurance slows us down, so why not take matters into your own hands? Our Navigator is an online tool that allows you to search a massive network of health-related resources using your zip code so you get local results. Get proactive and become a more successful patient right now at the Patients Rising Helpline.
    Have a question or comment about the show, or want to suggest a show topic or share your story as a patient correspondent?
    Drop us a line: podcast@patientsrising.org
    The views and opinions expressed herein are those of the guest(s)/ author(s) and do not reflect the official policy or position of Patients Rising, nor do the views and opinions stated on this show reflect the opinions of a guest’s current or previous employers. 
     

    • 17 min
    4 Things Patients Can Do for 2024

    4 Things Patients Can Do for 2024

    This week, a Resource Coordinator and Patient Navigator with our Patient Helpline goes over the top four steps that patients and caregivers can take to make 2024 their smoothest and most organized healthcare year yet. From what to do in the months leading up to a visit to how to take control of your health on your own time, Levi Peterson shares everything patients and caregivers need to be prepared. 
    Also, applications for Patients Rising’s Fly-In Scholarships for this year’s event open this Wednesday, January 17th.
    Lastly, we discuss two major news stories from this past week including a report from HealthcareDive that HHS has named its first – “Chief Competition Officer” and a report from CNBC that Eli Lilly has a new website offering telehealth prescriptions and direct home delivery of certain drugs. 
     
    Need help?
    The successful patient is one who can get what they need when they need it. We all know insurance slows us down, so why not take matters into your own hands? Our Navigator is an online tool that allows you to search a massive network of health-related resources using your zip code so you get local results. Get proactive and become a more successful patient right now at the Patients Rising Helpline.
    Have a question or comment about the show, or want to suggest a show topic or share your story as a patient correspondent?
    Drop us a line: podcast@patientsrising.org
    The views and opinions expressed herein are those of the guest(s)/ author(s) and do not reflect the official policy or position of Patients Rising, nor do the views and opinions stated on this show reflect the opinions of a guest’s current or previous employers. 
     

    • 17 min
    Dual Eligible = Double Trouble?

    Dual Eligible = Double Trouble?

    This week, we discuss the idea of “dual eligibles” with Steve Peskin, the CEO of SRP Advisors. Steve explains the difficulty for dual eligible patients in knowing what part of their healthcare is covered by Medicaid and what part is covered by Medicare. He mentions the need for coordination between state and federal government and shares a few ideas for how the current system can be improved.
    Also, we talk about an announcement by the Biden administration that the Administration for Strategic Preparedness and Response will incorporate fair-pricing provisions into contracts.
     
    Need help?
    The successful patient is one who can get what they need when they need it. We all know insurance slows us down, so why not take matters into your own hands? Our Navigator is an online tool that allows you to search a massive network of health-related resources using your zip code so you get local results. Get proactive and become a more successful patient right now at the Patients Rising Helpline.
    Have a question or comment about the show, or want to suggest a show topic or share your story as a patient correspondent?
    Drop us a line: podcast@patientsrising.org
    The views and opinions expressed herein are those of the guest(s)/ author(s) and do not reflect the official policy or position of Patients Rising, nor do the views and opinions stated on this show reflect the opinions of a guest’s current or previous employers.
     

    • 17 min

Customer Reviews

5.0 out of 5
36 Ratings

36 Ratings

akamomdawg ,

Thank you for educating the public

Thank you Terry for supporting our Military and their families by educating the public so changes are more likely to happen.

Stephanie

Jody Psore Joints ,

Hug More!

What a great message to end a podcast. Love being part of the Patients Rising family.

eagleswings2004 ,

Learn more about patient advocacy

Patients Rising does a great job of bringing problems patients experience to light and how patients can navigate and change things. As a patient I need to have my voice heard or else nothing changes. This helps me be a better patient and a better advocate because I better understand the problems.

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